Guest guest Posted September 29, 2002 Report Share Posted September 29, 2002 Hi Rosemary, I am often at a loss to know what to say to you. I am sure some of my experiences now and in the future may be similiar but yet it could never compare. I feel tired and exhausted with one CF kid and my husband is involved with Emma's care. I can't even begin to imagine what your life and your families is like. If it makes you feel any better, I hate CF too. I hate knowing what a granuloma is, pseuodnomas, tobi, delta F508, gastric tubes, etc. I hate not being able to relate to people anymore and always mulling over the silly comments and listening to friends complain about their life that I once would have laughed about and agreed with. Most of all I hate the non-stop worrying about everything from soil, water, mold to air. That's not even mentioning worrying about health, every cough, every sniffle, every tossed up meal. I really hate CF. Sometimes I do wonder how different Emma would be if she didn't have it. Would her personality be different? She is an amazing kid. I love her. Anyway ... we are with you , any time you want to vent, we're here. I hope the I.V.s go better this week. I keep thinking about you and wondering how both of your girls are doing. I hope the home I.V.s help. - mom to Emma 2 years w/cf and Isabelle 4 years wo/cf and who has not peed in her pants in over 2 weeks (thank goodness ... I hope that's it). ________________________________________________________________ GET INTERNET ACCESS FROM JUNO! Juno offers FREE or PREMIUM Internet access for less! Join Juno today! For your FREE software, visit: http://dl.www.juno.com/get/web/. Quote Link to comment Share on other sites More sharing options...
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