Teens with Cf

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Adolescents With Cystic Fibrosis: Family Reports of Adolescent Health-Related

Quality of Life and Forced Expiratory Volume in One Second

Peggy M. Powers*, Gerstle, and Lapey§ PurposeTo assess the

relationship between adolescent and parent reports of adolescent

health-related quality of life (HRQL) and between adolescent pulmonary

function (forced expiratory volume in 1 second as percent of predicted) and

reporter perceptions of adolescent health. MethodsTwenty-four adolescents

with cystic fibrosis (CF), their mothers, and their fathers completed the

Child Health Questionnaire during routine CF clinic visits at 2 urban

hospitals. Patients were between the ages of 11 and 18 years (mean age: 14.2

years) and were predominantly male (75%). The best measure of forced

expiratory volume in 1 second as percent of predicted for the year of the

study was also collected for each adolescent. ResultsAdolescent pulmonary

function was related to the perceived adolescent physical health scales. It

was not, however, associated to perceptions of adolescent emotional, social,

or behavioral HRQL by any of the 3 family reporters. Associations were found

between adolescent pulmonary function and self-reports of general health

(0.73), role/social limitations-physical (0.47), and bodily pain (0.42).

Adolescent pulmonary function was related to mother reports of adolescent

general health (0.73), role/social limitations-physical (0.73), bodily pain

(0.55), and physical functioning (0.70). Father perceptions of adolescent

health were associated to adolescent pulmonary function on general health

(0.54), role/social limitations-physical (0.60), and physical functioning

(0.64). Associations between adolescent and parent perceptions of adolescent

HRQL were also health scale-specific. Mother and child reports of adolescent

HRQL were related on adolescent behavior problems (0.71) and role/social

limitations attributable to behavior (0.48), role/social limitations

attributable to physical (0.62), bodily pain (0.69), physical functioning

(0.69), family activities (0.45), and general health (0.66). Associations

were found between father and adolescent reports on perceived adolescent

behavior problems (0.66); self-esteem (0.65); and role/social limitations

attributable to physical (0.49), general health (0.61), and perceived mental

health (0.48). ConclusionsResults demonstrate the need to include multiple

informants and comprehensive, multidimensional measures of HRQL, in addition

to pulmonary function, when assessing health in adolescents with CF.

Author/Article InformationFrom the * Department of Child Development, Tufts

University, Medford, Massachusetts;Department of Pediatrics, Baystate Medical

Center, Springfield, Massachusetts; and the § Department of Pediatrics,

Massachusetts General Hospital, Boston, Massachusetts. Received Nov 15, 1999;

accepted Nov 27, 2000. (Pediatrics. 2001;107:5:e70)© Copyright 2001 American

Academy of PediatricsPEDIATRICS serves as a medium for expression to the

general medical profession as well as pediatricians. The Executive Board and

Officers of the American Academy of Pediatrics have delegated to the Editor

and Associate Editor the selection of articles appearing in PEDIATRICS.

Statements and opinions expressed in such articles are those of the authors

and not necessarily those of the American Academy of Pediatrics, its

Committees, or the Editor or Editorial Board of PEDIATRICS.

Becki

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