Guest guest Posted July 29, 2002 Report Share Posted July 29, 2002 Dear Heidi, I think that this is another case that demonstrates that there really are no " hard and fasts " where CP is concerned - and that what works perfectly well for one individual might be disastrous for another. It's good to have the different input however, so that each person may, as Poncho often suggests, look hard at what they're doing/not doing, and make their decisions based on what their own body is telling them. What keeps me healthy may well put you in the hospital. And what you are able to live on would probably put me in the position of dealing with malnutrition (though I eat far, FAR less than any of my counterparts who weigh considerably less than I do - 188, 5' 9.5 " ). I suspect that which is wrong with each of our respective pancreas is probably slightly - or not so slightly - different. It's a big area with lots and lots of different things that can make it a pretty unhappy organ/string of organs... and we each have to work diligently to find out what makes us sick, healthy, lethargic, energetic, depressed, fulfilled, etc... We just don't know enough yet for there to be ANY cookie-cutter answers... So information from ALL sources is great to see published, so long as we all keep publishing our own experiences for others to draw from and use in their own quest for health on all fronts. Wishing you the BEST health in all respects, Peace, Terry in KC << > In a message dated 7/27/02 8:16:30 AM Pacific Daylight Time, > http://www.pancreatitis.org.uk/ > > Some excerpts: > " A well balanced diet is probably helpful. You need not restrict fatty food > and in fact an adequate intake of fat may help to prevent weight loss. If you > have access to a dietician, you should ask for advice on how to maintain an > intake of 100 grams of fat and 100 grams of protein each day. If this diet > causes symptoms such as diarrhoea or looseness of stools it is better to > begin or increase the dose of pancreatic enzyme supplements rather than to > cut down the amount you are eating. > This statement concerns me greatly, and I am personally opposed to the idea of advising a patient with pancreatitis that 100 grams of fat and 100 grams of protein are recommended as a daily dietary intake with pancreatitis. That amount of fat and protein would put me in the emergency room within hours! My gastroenterologist recommended NO MORE than 20-25 grams of fat on a daily basis, and no more than 30 grams of protein, as the protein is also hard for a person with CP to digest. I have tested this advice, and attempted at times to eat more than the usual 20 grams of fat, and automatically find myself in pain and severe discomfort within half a day. This also causes havoc with my bowels, even though I do take high dosage enzymes. Just my 2 cents worth. With hope and prayers, (On the road in Virginia) Heidi >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2002 Report Share Posted July 29, 2002 Dear Heidi, I think that this is another case that demonstrates that there really are no " hard and fasts " where CP is concerned - and that what works perfectly well for one individual might be disastrous for another. It's good to have the different input however, so that each person may, as Poncho often suggests, look hard at what they're doing/not doing, and make their decisions based on what their own body is telling them. What keeps me healthy may well put you in the hospital. And what you are able to live on would probably put me in the position of dealing with malnutrition (though I eat far, FAR less than any of my counterparts who weigh considerably less than I do - 188, 5' 9.5 " ). I suspect that which is wrong with each of our respective pancreas is probably slightly - or not so slightly - different. It's a big area with lots and lots of different things that can make it a pretty unhappy organ/string of organs... and we each have to work diligently to find out what makes us sick, healthy, lethargic, energetic, depressed, fulfilled, etc... We just don't know enough yet for there to be ANY cookie-cutter answers... So information from ALL sources is great to see published, so long as we all keep publishing our own experiences for others to draw from and use in their own quest for health on all fronts. Wishing you the BEST health in all respects, Peace, Terry in KC << > In a message dated 7/27/02 8:16:30 AM Pacific Daylight Time, > http://www.pancreatitis.org.uk/ > > Some excerpts: > " A well balanced diet is probably helpful. You need not restrict fatty food > and in fact an adequate intake of fat may help to prevent weight loss. If you > have access to a dietician, you should ask for advice on how to maintain an > intake of 100 grams of fat and 100 grams of protein each day. If this diet > causes symptoms such as diarrhoea or looseness of stools it is better to > begin or increase the dose of pancreatic enzyme supplements rather than to > cut down the amount you are eating. > This statement concerns me greatly, and I am personally opposed to the idea of advising a patient with pancreatitis that 100 grams of fat and 100 grams of protein are recommended as a daily dietary intake with pancreatitis. That amount of fat and protein would put me in the emergency room within hours! My gastroenterologist recommended NO MORE than 20-25 grams of fat on a daily basis, and no more than 30 grams of protein, as the protein is also hard for a person with CP to digest. I have tested this advice, and attempted at times to eat more than the usual 20 grams of fat, and automatically find myself in pain and severe discomfort within half a day. This also causes havoc with my bowels, even though I do take high dosage enzymes. Just my 2 cents worth. With hope and prayers, (On the road in Virginia) Heidi >> Quote Link to comment Share on other sites More sharing options...
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