Re: Welcome a

[Guest guest]

Hi a -- welcome. I am 48 and have CMT2 (I think) and in the process

of moving from Roseburg to Salem. I go to a surgical podiatrist in Eugene

who is the best. So if you ever need a referral, let me know.

Your daughter sounds just wonderful. Her courage and spunk will cause her

to go far in life. I have three brothers and while they might tease at

home, they would have seriously gotten in anybody's face who tried to give

me a hard time.

Yes, some sunshine (not the liquid variety) would really be appreciated --

let me know if Eugene gets some -- I'll be down to soak it up.

Hope to hear from you soon.

nne

Introduction of my daughter

>From: mikerobertac@...

>

>Dear all,

>

>I have spoken with a few of you already but let me introduce myself to you

>and my daughter. My beloved daughter was diagnosed with either CMT 2

>or Kugelberg-Wielander at age 8. It appears that she has CMT which we are

>happier about than the other. She has and is still learning to adapt. She

has

>some amazing people in her life who love her for who she is, not the way

she

>walks, or sits, or the way her hands look. Yes, she has had her fair share

of

>ridicule but like every other adversity, she seems to rise above it.

>She is now 13, that wonderful age of self reproach and self-doubt. When she

>tells me she hates what has happened to her and who she is, I tell her how

>much she is loved and that she has a purpose on this earth; she will need

to

>find it. She wants to be a child psychologist.

>Her 17 yo brother used to be embarrassed by her. He is now prepared to

punch

>anybody that gives her a hard time next year when she goes to his high

>school. That is a great step for him too.

>But more than anything, as I read all the notes from you all, I realize

that

>you all too get tired easily and that reminds us not to expect too much

from

>her. I think she pushes herself to hard.

>She has been experiencing electrical shock-type pains in her feet and hands

>lately. I in my hopes, was thinking it might be nerve regeneration. It

sounds

>like this is a common complaint among CMT people. Any advice? We have not

>seen the DR recently.

>WE live in the great rainy Pacific Nothwest. I am waiting for some

SUNSHINE!

>

>Thanks for listening

>a

>

>------------------------------------------------------------------------

>GET A NEXTCARD VISA, in 30 seconds! Get rates as low as 2.9%

>Intro or 9.9% Fixed APR and no hidden fees. Apply NOW!

>http://click.egroups.com/1/936/5/_/616793/_/953164895/

>------------------------------------------------------------------------

>

>