Guest guest Posted July 1, 1999 Report Share Posted July 1, 1999 Dear Diane, It sounds like your PA is limited to the fingers and toes. Sometimes that is not enough inflammation to show up in a sed rate- or to show appreciable change when you have a flare. You can certainly ask for that along with a CRP. Both tests are non-specific indicators of inflammation in the body. There has been a lot of discussion on these tests. Scan the archives using the word C-Reactive Protein or Sed Rate and you will catch all the chat on that. I hope your PA does not go any further. I know myself how bad the hands can be. Right now, I am still and the skin is very red and tender - but no frank P! This higher dose of Arava seems to be working on it! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 1999 Report Share Posted July 31, 1999 So many important issues- it is great to see parents sharing their expertise. In terms of safety issues- seat belts, etc., I agree with the ideas expressed that safety needs to be non-negotiable. While there are ways to help your child see the point of safety- the bottom line is that OCD is not going to trick you too into being unsafe. Beginning with your child's competency, you can ask her to name the safety rules she knows and why they are important. She will feel proud of what she knows. Then you can talk about how OCD is being " bossy " but not " smart " about seatbelts- how would your daughter boss back a bully at school who was telling her to be unsafe- she would probably say, " Hey, leave me alone, you don't know what's right for me! " or something of the like. Then you can help her practice that same boss back talk with OCD in the car: " OCD you are not allowed in the car, you are giving me bad advice, you aren't smart about safety so I'm not going to listen to you " etc. There was a question about sensory integration. An excellent book is Carol Stock Kranowitz. The Out of Sync Child. There is a an occupational therapy website- haven't visited it yet myself: www.aota.org. Occupational therapists often run social skills groups which can be helpful in bringing out the shy child, and modulating the impulsive child. To locate a group, you can try finding an OT association in your area via the website mentioned above, or the OT or developmental psychology department at your local University. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2000 Report Share Posted January 17, 2000 At 10:44 AM 1/17/2000 -0000, Multiples-DSonelist wrote: > > >Message: 4 > Date: Sun, 16 Jan 2000 18:13:22 -0500 > From: " " <lauranra@...> >Subject: %/Dr. Len Leshin > >Does anyone know what the percentages are for having twins, one with ds are? I've looked for this and haven't been able to find any such statistics. Len Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2000 Report Share Posted January 25, 2000 In a message dated 00-01-25 06:25:06 EST, you write: << Lanolin...can't tell you where it comes from exactly...a lamb...a tree. >> Actually, some lanolin is made up of fat from dogs and cats that are killed at shelters. Not the most pleasant thought is it. Cyan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2000 Report Share Posted January 25, 2000 Lanolin comes from sheeps wool Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2000 Report Share Posted January 26, 2000 I never heard this before! Where did you see this? How is it marked on the label, if at all? I grew up on a farm and knew about the lanolin from the wool (when you pet a sheep, sometimes you can feel it on your hands. But shelter animals? Since I work with a volunteer shelter, I would like to know more. Re: Digest Number 178 > From: Cyan451762@... > > In a message dated 00-01-25 06:25:06 EST, you write: > > << Lanolin...can't tell you where it comes from exactly...a lamb...a tree. >> > > Actually, some lanolin is made up of fat from > dogs and cats that are killed at shelters. > Not the most pleasant thought is it. > Cyan > > -------------------------------------------------------------------------- ------ > > > Please click above to support our sponsor > > > -------------------------------------------------------------------------- ------ > ~*~*Thanks for joining! Tell your friends!!!!!All natural is the way to go!!~*~* > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2000 Report Share Posted June 8, 2000 Dear Constance: While my wife was on therapy she also noticed that mosquitoes did not bite her. But, several days after completing therapy, it was like they all decided to wait and hit at once. So, its probably your body chemistry and the medications together that has something to do with it. This is very common in many types of medications. Marty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2000 Report Share Posted June 8, 2000 Hi Marty, This has been happening for years. I figure it had something to do with my congenital ITP and maybe also the Hep C. The Dr's just think I am just, plain old weird...lol...Connie PS: I have been off the Combo since end of September last year. --- byteme <byteme@...> wrote: > Dear Constance: > While my wife was on therapy she also noticed > that mosquitoes did > not bite her. But, several days after completing > therapy, it was like > they all decided to wait and hit at once. So, its > probably your body > chemistry and the medications together that has > something to do with it. > This is very common in many types of medications. > Marty > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2000 Report Share Posted June 8, 2000 Hi everyone, This is just 1 point of view, if HIV cannot be transmitted through mosquito bits, I really don't think HCV could be. Also if you are on treatment, and they could be transmitted, I would think we would be safe. The meds. we are taking should kill what ever is trying to get in out systems, right? I live in New York, and we are having a major problem with birds carrying west Nile virus, if bitten could give the elderly and people with poor immune systems ENCEPHALITIS, I believe 7-10 people died last year here from it, so I would be more afraid of this. They do say only 1 percent of the population will get bitten, and do not even know it, but I think we have to be more careful that the average person. It could go anywhere this summer, the only way we found out, was dead birds were popping up, birds cannot give it to us, only the mosquito. They are recommending that you use something with deet in it, it only lasts 4 hours at a time, If bitten, and you are the very small percentage that does get sick, it takes 5-15 days for systems to come. We have no cure. This paper I am getting my information from the City of NEW YORK. So if your going out, put something on that will keep them away. Just one more thing, the researchers are just tested now, there is a big difference from a dish or animal, than human. Hope I helped Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2000 Report Share Posted June 15, 2000 Mother said that if you are judging someone you don't have time to love. I just want to strangle these holier than thou types! Isn't the basis of all religion love, compassion, etc? Where is it with people like this? Yet they walk around thinking they are the best in Gods eyes. I once was told that a church is liken to a hospital, it is where the sick go to get better and you should not go to church expecting to find " Holy " perfect people. Amen to that! I too have been hurt badly by my church. Of course well meaning holy old biddies who are perfect in Gods eyes...or so they think. OH THIS MAKES ME SO MAD!!!!! You don't need this. I quit going to church years ago. I strongly belive in my God but, I didn't find him in any church I went to. My " church " is my little piece of the world. Do the best you can for whom ever you can. I am my own church so to speak. No one has a right to judge you. I would look the biddies in the eyes and tell them that you love them, or say father forgive them for they know not what they do. HA I would probably do the first, who can keep on when you just keep saying I love you and refuse to be drawn into the turmoil....which in my humble opinion is evil forces at work trying to divide and concur. You will never talk sense to people like his so why try? Asiha...I thought I had the in-laws from HELL. My dear I now officially declare you the winner of that title. How wicked they are!!!!! Take care of you people, Dorie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2000 Report Share Posted June 16, 2000 Hello Dorie, Absolutely love this background. Its so pretty. "Isn't the basis of all religion love, compassion, etc?" Don't forget tolerance and the brotherhood of mankind regardless of race, religion and colour. Makes me really angry too when people who preach "unconditional love" are nothing but gossiping wannabe's. "My "church" is my little piece of the world. Do the best you can for whom ever you can. I am my own church so to speak." Exactly. We are all sacred as far as I am concerned. Its what is in your heart that matters. "Aisha...I thought I had the in-laws from HELL. My dear I now officially declare you the winner of that title. How wicked they are!!!!! " Well they are wonderful now as I have nothing to do with them LOL. The mother-in-law is making an effort to acknowledge her son and rebuild some sort of relationship with him, and I encourage him as family is important. Doesn't mean I have to have anything to do with them though. My own family are far worse then his though. My Aunt has said and done some of the most spiteful and bitter things, as has my grandmother. They are the ones that hurt me the most. I have nothing to do with them either. We got yelled at for sending them Christmas presents!! Its sad that my grandmother who I loved is now a spiteful bitter old woman. She is turning 80 this year and it would be wonderful to celebrate that. But she didn't even phone to see how we were when they were in Sydney. Although she had plenty of time to meet with people she did not know very well anyhow.... its too late now. That I find sad. That someone who you used to love, care for and respect, turned out to be someone who willingly thrust the knife in with a vicious twist. (that was well said huh... have to keep that for the book LOL). Anyhow..... Dorie.... I'm right there with you! Makes me damn angry too. But this background is just beautiful! *HGUS* <---------- I still hate it when I do that! *HUGS TO ALL*Aisha.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2001 Report Share Posted March 6, 2001 Melinda, Please send me a packet Txs At 01:28 PM 3/6/2001 +0000, you wrote: >To Post a message, send it to: eGroups > >To Unsubscribe, send a blank message to: -unsubscribeeGroups >------------------------------------------------------------------------ > >There are 11 messages in this issue. > >Topics in this digest: > > 1. Re: Farmworker Awareness Week--please forward > From: mikemrwc@... > 2. RE: Re: Farmworker Awareness Week--plea se forward > From: " Serrano, Pedro J " <SERP235@...> > 3. RE: Re: Farmworker Awareness Week--plea se forward > From: " Serrano, Pedro J " <SERP235@...> > 4. Re: Farmworker Awareness Week--please forward > From: <sdavis@...> > 5. RE: Re: Farmworker Awareness Week--plea se forward > From: " Serrano, Pedro J " <SERP235@...> > 6. Re: Re: Farmworker Awareness Week--plea seforward > From: " Coffey " <david.coffey@...> > 7. RE: Farmworker Awareness Week--please forward > From: " Shipp, Eva " <eshipp@...> > 8. Re: Farmworker Awareness Week--please forward > From: wilcoxen.katy@... > 9. Farmworker packet. > From: " Serrano, Pedro J " <SERP235@...> > 10. Re: Re: Farmworker Awareness Week--please forward > From: Barron <patb@...> > 11. Cholinesterase levels in plantation workers and their families. > From: " Tania Barron " <taniabarron@...> > > >________________________________________________________________________ >________________________________________________________________________ > >Message: 1 > Date: Mon, 05 Mar 2001 15:48:18 -0000 > From: mikemrwc@... >Subject: Re: Farmworker Awareness Week--please forward > >Could you please send me a packet also, thank you > > Hyde >Maine Rural Workers Coalition > > > >> > Please send me a packet. Thank you very much for sharing this. >> > >> > Neander >> > OHSU School of Nursing @SOU >> > 1250 Siskiyou Blvd >> > Ashland Oregon 97520 >> > >> > <<< Melinda Wiggins <mwiggins@d...> 3/ 2 12:34p >>> >> > *** FARMWORKER AWARENESS WEEK * MARCH 25-31, 2001 *** >> > >> > Student Action with Farmworkers wants to encourage you to support >> > FARMWORKER AWARENESS WEEK 2001- MARCH 25-31! >> > >> > >> > Farmworker Awareness Week is a national effort to inform as many >> > people as possible about farmworker justice issues. Through this >> > awareness blitz, we hope not only to educate, but to generate >> > momentum for future community activism. >> > >> > IT'S EASY. I am putting together a packet including flyers, >> > information sheets, table tents, and other materials which you can >> > simply photocopy and distribute or post throughout your community. >> > SO SIMPLE!!! If you would like to receive a packet, just reply to >> > this email and let me know. I would love to send you one! >> > >> > Of course, it's great to plan activities as well. You can schedule >> a >> > showing of " H2 Worker " or " Harvest of Shame " with a follow-up >> > discussion, or get people to write letters about one of the >> > farmworker boycotts. You can make presentations to community >> groups, >> > write editorials, send out emails, get speakers....so many >> > possibilities! If you are currently planning a Farmworker >> Awareness >> > Week activity for your campus or community, we'd love to hear about >> > it. If you need other ideas, please contact me and I can tell you >> > what different campuses are doing. >> > >> > Remember: >> > ****FARMWORKER AWARENESS WEEK IS MARCH 25-31**** >> > Join us in raising the awareness necessary >> > to advance the farmworker justice movement! >> > >> > >> > I look forward to hearing from you! >> > >> > ÃSi se puede! >> > Podolsky >> > SAF Apprentice >> > -- >> > Podolsky >> > Expansion Coordinator, >> > Student Action with Farmworkers >> > 1317 W. Pettigrew St. Durham, NC 27705 >> > 919-660-3660, 919-681-7600(fax) >> > lbp@d... >> >> >> To Post a message, send it to: eGroups >> >> To Unsubscribe, send a blank message to: >> -unsubscribeeGroups >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2001 Report Share Posted March 9, 2001 I would love to have a packet Ilda Islas For Healthy Kids Fred Hutchinson Cancer Research Center 500 E. Edison Sunnyside, WA 98944 > -----Original Message----- > From: > [mailto: ] > Sent: Tuesday, March 06, 2001 5:28 AM > > Subject: [ ] Digest Number 178 > > > To Post a message, send it to: eGroups > > To Unsubscribe, send a blank message to: > -unsubscribeeGroups > ------------------------------------------------------------------------ > > There are 11 messages in this issue. > > Topics in this digest: > > 1. Re: Farmworker Awareness Week--please forward > From: mikemrwc@... > 2. RE: Re: Farmworker Awareness Week--plea se forward > From: " Serrano, Pedro J " <SERP235@...> > 3. RE: Re: Farmworker Awareness Week--plea se forward > From: " Serrano, Pedro J " <SERP235@...> > 4. Re: Farmworker Awareness Week--please forward > From: <sdavis@...> > 5. RE: Re: Farmworker Awareness Week--plea se forward > From: " Serrano, Pedro J " <SERP235@...> > 6. Re: Re: Farmworker Awareness Week--plea seforward > From: " Coffey " <david.coffey@...> > 7. RE: Farmworker Awareness Week--please forward > From: " Shipp, Eva " <eshipp@...> > 8. Re: Farmworker Awareness Week--please forward > From: wilcoxen.katy@... > 9. Farmworker packet. > From: " Serrano, Pedro J " <SERP235@...> > 10. Re: Re: Farmworker Awareness Week--please forward > From: Barron <patb@...> > 11. Cholinesterase levels in plantation workers and their families. > From: " Tania Barron " <taniabarron@...> > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 1 > Date: Mon, 05 Mar 2001 15:48:18 -0000 > From: mikemrwc@... > Subject: Re: Farmworker Awareness Week--please forward > > Could you please send me a packet also, thank you > > Hyde > Maine Rural Workers Coalition > > > > > > Please send me a packet. Thank you very much for sharing this. > > > > > > Neander > > > OHSU School of Nursing @SOU > > > 1250 Siskiyou Blvd > > > Ashland Oregon 97520 > > > > > > <<< Melinda Wiggins <mwiggins@d...> 3/ 2 12:34p >>> > > > *** FARMWORKER AWARENESS WEEK * MARCH 25-31, 2001 *** > > > > > > Student Action with Farmworkers wants to encourage you to support > > > FARMWORKER AWARENESS WEEK 2001- MARCH 25-31! > > > > > > > > > Farmworker Awareness Week is a national effort to inform as many > > > people as possible about farmworker justice issues. Through this > > > awareness blitz, we hope not only to educate, but to generate > > > momentum for future community activism. > > > > > > IT'S EASY. I am putting together a packet including flyers, > > > information sheets, table tents, and other materials which you can > > > simply photocopy and distribute or post throughout your community. > > > SO SIMPLE!!! If you would like to receive a packet, just reply to > > > this email and let me know. I would love to send you one! > > > > > > Of course, it's great to plan activities as well. You can schedule > > a > > > showing of " H2 Worker " or " Harvest of Shame " with a follow-up > > > discussion, or get people to write letters about one of the > > > farmworker boycotts. You can make presentations to community > > groups, > > > write editorials, send out emails, get speakers....so many > > > possibilities! If you are currently planning a Farmworker > > Awareness > > > Week activity for your campus or community, we'd love to hear about > > > it. If you need other ideas, please contact me and I can tell you > > > what different campuses are doing. > > > > > > Remember: > > > ****FARMWORKER AWARENESS WEEK IS MARCH 25-31**** > > > Join us in raising the awareness necessary > > > to advance the farmworker justice movement! > > > > > > > > > I look forward to hearing from you! > > > > > > ÃSi se puede! > > > Podolsky > > > SAF Apprentice > > > -- > > > Podolsky > > > Expansion Coordinator, > > > Student Action with Farmworkers > > > 1317 W. Pettigrew St. Durham, NC 27705 > > > 919-660-3660, 919-681-7600(fax) > > > lbp@d... > > > > > > To Post a message, send it to: eGroups > > > > To Unsubscribe, send a blank message to: > > -unsubscribeeGroups > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2001 Report Share Posted March 15, 2001 Hi, my name is Adrienne and I'm a 16 year old with Achalasia. I just wanted to kind of share my experiences with everyone and share what happened to me with people deciding on therapy. I tried having pneumatic dilations three times and those only lasted two weeks at a time, so we knew that we had to consider the myotomy. We decided not to go with the laproscopic method becuase one of my doctor's patients has achalasia as well and had this technique performed by Dr. Heller, the man who invented the surgery, and now is suffering from SERIOUS complications and now has to endure a horribly invasive surgery. Therefore, I decided not to have the laproscopic technique and I'm SOOO pleased with the results. I was in the hospital for only 6 days and they told me to expect around 15. The pain wasn't nearly as bad as I thought it was going to be. Even the chest tubes didn't hurt at all being pulled out. I would suggest this surgery to anyone. The recovery isn't bad at all! I just had the surgery and right now I'm home and catching up on homework. If anyone wants more information, I'd be happy to offer it. sincerely Adrienne P.S. Not to mention the scar is a lot smaller than I anticipated. I have one 4 inch incision under my left arm which you can't even see when you wear a bra (for the females) and two tiny cuts from the chest tubes. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2001 Report Share Posted March 25, 2001 Adreinne - Thanks for sharing your story. For those who may not be able to have the laparoscopic technique, knowing that there are positive outcomes such as yours when the thoracic approach is performed will bring great comfort, I'm sure. Good luck with your continued recovery! Take care - Carol Re: Digest Number 178 > Hi, my name is Adrienne and I'm a 16 year old with Achalasia. I just wanted > to kind of share my experiences with everyone and share what happened to me > with people deciding on therapy. I tried having pneumatic dilations three > times and those only lasted two weeks at a time, so we knew that we had to > consider the myotomy. We decided not to go with the laproscopic method > becuase one of my doctor's patients has achalasia as well and had this > technique performed by Dr. Heller, the man who invented the surgery, and now > is suffering from SERIOUS complications and now has to endure a horribly > invasive surgery. Therefore, I decided not to have the laproscopic technique > and I'm SOOO pleased with the results. I was in the hospital for only 6 days > and they told me to expect around 15. The pain wasn't nearly as bad as I > thought it was going to be. Even the chest tubes didn't hurt at all being > pulled out. I would suggest this surgery to anyone. The recovery isn't bad at > all! I just had the surgery and right now I'm home and catching up on > homework. If anyone wants more information, I'd be happy to offer it. > sincerely Adrienne > P.S. Not to mention the scar is a lot smaller than I anticipated. I have one > 4 inch incision under my left arm which you can't even see when you wear a > bra (for the females) and two tiny cuts from the chest tubes. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2001 Report Share Posted April 23, 2001 My 3 year-old son was diagnosed with what the doctor called at the time " hypotonia " (and " hypertonia " ) at 1 year old. He's been receiving various therapies since. He has low tone in the upper body and some high tone in his legs/arms. He was 5 weeks premature and only 4lbs. 10oz. He has recently been diagnosed with Apraxia. My question is: what is the difference between " hypotonia " and Cerebral Palsy? My neurologist has told us that hypotonia (and hypertonia, which is tightness in the muscles) is just another name for Cerebral Palsy (which has varying degrees from mild to severe). He said that Cerebral Palsy is a muscle disorder that is neurologically based. He now refers to my son as having " mild Cerebral Palsy " and interchanges the term with hypotonia. Thanks, Michele Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2001 Report Share Posted June 4, 2001 Dear Toni, Thanks for your best wishes to those of us that were " reborn " on May 31st........ Francine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2002 Report Share Posted July 7, 2002 > > ------------------------------------------------------------------------ > > We just found out that our 7 yr old has some food > allergies. What I > would like to know is whether or not the offending > foods cause any > damage to his neurological system if he happens to > eat one of them? I recommend the book Unraveling the mystery of Autism and PDD by Seroussi. It was very enlightning for our family regarding our sons food intollerances and why it's important to remove these from his diet. Good Luck Janice __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2002 Report Share Posted October 15, 2002 In a message dated 10/15/2002 4:46:55 AM Eastern Standard Time, writes: > An independence milestone for a 6 year old > > You go h!! Vickie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2003 Report Share Posted September 10, 2003 Here are some of the questions I ask, during a pre-op visit. 1. How many information sessions on weight loss surgery have you attended? How fast do you normally eat? How often do you eat fast food or convenience foods? Do you know how to keep a detailed food and beverage intake log? Yes No Do you know how to measure foods and beverages accurately? Yes No Do you understand how to read food labels? Yes No 11. Have you ever followed a Low Carbohydrate Diet? Yes No How Long? How much weight was lost? How much re-gained? 14. Are you planning a pregnancy in the next 3 years? Yes No 15. Do you swallow supplements easily? Yes No 16. Can you tell the difference between hunger and thirst? Yes No 17. Do you like to drink water? Yes No How much water do you drink now? 18. Are you an emotional or compulsive or binge eater ? Yes no 19. Which sugar substitutes do you use: Sweet and Low Equal Splenda Stevia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2005 Report Share Posted June 17, 2005 - Good to hear how much recovery you've had. Two suggestions: 1. There's a newer AD called Cymbalta (duloxetine) which is both a serotonin and norepihephrine reuptake inhibiter. It works much better than the previous combined RI (Effexor) and has minimal side effects. i'm a psychologist, and a few of my patients are starting to use it with good response and no side effects. It has a more energizing effect than regular SSRI's. It's also approved for fibromyalgia because it lowers pain response. I use it for that and for fatigue, and find it helpful. I've not been able to tolerate any of the SSRI's. 2. you might also checck out Recup, a salt/mineral supplement from spain. It's clearly different than anything else in effect, although it seems on the surface a simple mineral drink. The proportions and ionic availability make it a very different substance in it's effect. You may be suffering from continued ion depletion and imabalance, despite better microbiological balance, and the resulting ion channelopathy. i've used it, and it clearly caused herx, so much I decided to stop until the Cpn load was lower. So it seems to gear up ones own system. The group is at AlfredblasiprotocolFMSCFS/ It's also discussed related to other salt protocals at Kurtsblog (I don't know if I have the link or not.) Jim Message: 6 Date: Fri, 17 Jun 2005 02:21:27 -0000 From: " Hodologica " <usenethod@...> Subject: treatment report I am one heck of alot better than I was before 7 months of oral doxy, tini, cefuroxime axetil, and antibabesials. I am doing intensive summer organic chem, about 40h a week of work. In February I often felt like it was preposterous for me to be trying to go to school part time, now it is not difficult to go full- time (so far). The foundation of my semi-recovery has been antimicrobials. But serious depression/malaise remained, and I began antidepressants, thus making it hard to see whether, say, tini was especially effective. Summer weather could also be a huge contributor. I still feel bad many days, but I feel completely fine much of the time recently, normal or so close that it doesnt matter much, at least within the parameters of my tame lifestyle. Other days I am sick; occasionally I cannot read any chemistry whatsoever because of ADD. My lymph swellings have never changed at all. I have failed both amitriptyline and mirtazapine. They did alot for malaise and depression (esp mirtaz) but both ended up intolerable. The sedation got worse and worse, causing depression/fatigue/ADD. I am going to try something non-antihistamine. I dont have many sleeping problems anymore. I actually ride my bike around town, and there are some hills. But on worse days it is intolerably tiring even when walking feels totally normal. On better days its a blast. I was late somewhere today and actually jogged for about 90 seconds. Sometimes I feel very whupped at the end of a day of many errands, as I did long ago when I had a job once chainsawing 8 hours a day. But it doesnt feel awful. I actually even climbed a tree the other day, but realized I was feeling a little spaced out up there which almost caused me to have a panic attack. Climbing was pretty intimidating too. In the old wild man days I wouldnt have thought twice about climbing that tree drunk, weak with hunger, or after having stayed up working for 2 days. Whether I can find an AD I can stay on, keep improving, weather the winter, or be stable for years, we shall see. But before treatment I used to be consistently suicidal and house-ridden, and had to lie down or slouch like hell much of the time, minus a few weeks of spontaneous improvement during which I felt sorta OK. Last November when I stood in line for an hour to vote I was very exhausted, and that was totally typical. I'm pretty glad I met up with yall last September. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.