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Hello Gretchen!

Thanks so much for your research about alcohol. I wrote to a neuro. about

this and he just said that CMT:ers should be very moderate with drinking

alcohol. I do know that alcoholics can get damages on the nerves and the

brain.

I use to drink 2-3 glasses of wine once a week and of course I now wonder

if that is to much for most CMT:ers (I don´t feel bad after such

consumption).

I talked to a friend about this who has a whiplashinjury in her neck after

a caraccident (some kind of nervdamage) and she told me that she nowadays

just can drink 1 glass of wine, otherwise she gets such terrible hangovers

compered to what was the case before the accident. I know about myself

that if I on a party for example also take stronger drinks than wine I

also get terrible hangovers (not just headach, the hole body seems to

protest) compered with others. Is it possible here is a connection or is

it just a individual thing?

For some months ago, when I got internet to my home and found for example

CMTnet I had never heard anything about toxic medicines and that alcohol

can be bad for us CMT:ers. From my doctors I received som papers with

information about CMT when I got the diagnose. I also have found

information on the internet about CMT in Swedish but nowhere they mention

anything about toxic medicines or alcohol. I must say I got surprised when

I found this lists. It´s sad they for some reason don´t mention this for

us patients here.

Thanks, Rose from Sweden

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