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Cindy

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I would tell her what you told us. I would tell her to hold off until the

official diagnosis is in. Let her do what she is comfortable doing. We all

coped different in the beginning - some with research, denial, etc. Some ate

and never stopped LOL...I am now 659 pounds....just kidding...but food is a

close friend......Wanna laugh? My dad is Bill W. - that true - my maiden

name began with W and my dad is Bill....go figure.....

Honesty is always best with friends...even if it hurts.

Rosemary in New York with 3 children with CF - they are 11.9, 9.6, 5..8...I

coined the phrase " BREATHE DAMMIT " ; and now we have a dog named - are you

ready TOBI

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  • 1 year later...

Hi Cindy! I have been to the Radisson in Corning for a couple of state

nursing association conventions......it was very nice. I am glad you are doing

well.

Take care.

le M

Peace Out :o)

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Hi Cindy! I have been to the Radisson in Corning for a couple of state

nursing association conventions......it was very nice. I am glad you are doing

well.

Take care.

le M

Peace Out :o)

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Hi Cindy! I have been to the Radisson in Corning for a couple of state

nursing association conventions......it was very nice. I am glad you are doing

well.

Take care.

le M

Peace Out :o)

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  • 4 months later...

Hey Cindy how are you?

How are you aches and pains? What week are you in now? Sorry I lose

track of everyone even though I try really hard to remember - LOL.

You to will be at 30 weeks before you know it. We will have a real

baby boom here in a couple of months :)

Take care and I'll be thinking of you.

Love

Elaine

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  • 7 months later...
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Hi Grace,

This kid doesn't go to the Drs. He's one of those that has to be in agony before

he goes. I am taking him to the family Dr today to get this all figured out. I

want him to see a neurologist. He has to have a migraine med on board so he'll

have it for the next time, if there is one. His eyes haven't been checked for

about 5 years. I think it's time. Time will tell if he has EDS too, but for now

at least the migraine is just a little headache. I'm so glad yours settled down

too. Those migraines are horrible!

I'll ask him if he sees the lightning flashes.

Thanks, Cindylouwho

Cindy

Hi Cindy,

My continued prayers are with you both. It's strange cause I've had a migraine

and was in the hospital last week. They didn't find anything wrong either. They

sent me home with some meds. I still have it off and on. At least now I have

periods of calm time. I try not to take my meds though cause I hate them....lol

I have a family to care for and they make me soooooo sleepy. Question.....Have

you had his eyes checked lately? I know that sounds funny, but my eye doc had

mentioned something happening to the eyes with EDS patients. Ask your son if he

see's lightning type flashes? I have been about 2 weeks before my migraine hit.

I still see them off and on. I've asked my husband if it was lightening out

several times. I hope they figure out what's going on soon and can give your

son some relief. You hang in there!!! God Bless!

HUGGLES

Grace

EDS, It's a Life Thing

http://www.ehlersdanlos.ca/whateds.htm

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