Guest guest Posted March 10, 2001 Report Share Posted March 10, 2001 Thank you for posting and letting us know you are okay. Glad the surgery went well and you are feeling good enough to enjoy the flowers. Take care and get well soon! Lots of Love Glenda --- Mlier325@... wrote: > Dear RP group: > Thank you for the beautiful flowers. They are so > bright and cheery -- > daisies, tulips, snapdragons and tiger lilies. > Truly a wonderful and warm > way to wake up. > Also, thank you all for your thoughts and prayers. > The surgery went well and > hopefully, it will take care of some of the pain on > that side. > Anyway, thanks again for everything. It means a > great deal to me. > Love, hugs and smiles, > :>) > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2002 Report Share Posted August 4, 2002 Great news to receive this Sunday morning. maybe all news will be good this week. you will find over time , that the lists are wonderful . there are several & most of us are on all. It keeps you busy, but the friends AND wonderful info & FAMILy is terrific!! Welcome & so glad about that job too----will it bring insurance into the picture, to perhaps double cover whatever isn't elsewhere?? sometimes that happens ,when you lucky...........your a great grandmom. Bless you.. LOVE & HUGS, grandmomBEV mine is ERIN...18 year ...... Thank You! Hi! I wanted to thank everyone that wrote me on the message board and to my e-mail about the problem with the insurance. So far we havent recieved a bill for the Pulmozyme so Im guessing that Autumn's insurance is paying for it. We are looking into appealing the SSI denial. And some good news! Autumn's daddy finally got a job and will be starting on Monday.Thank you all for your advice. It sure is a help knowing I can come here and communicate with people who are going through the same thing we are. Autumn is doing well and is over this bout with pnumonia. (Autumn's grandma) PLEASE do not post religious emails to the list. ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. -------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2002 Report Share Posted August 4, 2002 Great news to receive this Sunday morning. maybe all news will be good this week. you will find over time , that the lists are wonderful . there are several & most of us are on all. It keeps you busy, but the friends AND wonderful info & FAMILy is terrific!! Welcome & so glad about that job too----will it bring insurance into the picture, to perhaps double cover whatever isn't elsewhere?? sometimes that happens ,when you lucky...........your a great grandmom. Bless you.. LOVE & HUGS, grandmomBEV mine is ERIN...18 year ...... Thank You! Hi! I wanted to thank everyone that wrote me on the message board and to my e-mail about the problem with the insurance. So far we havent recieved a bill for the Pulmozyme so Im guessing that Autumn's insurance is paying for it. We are looking into appealing the SSI denial. And some good news! Autumn's daddy finally got a job and will be starting on Monday.Thank you all for your advice. It sure is a help knowing I can come here and communicate with people who are going through the same thing we are. Autumn is doing well and is over this bout with pnumonia. (Autumn's grandma) PLEASE do not post religious emails to the list. ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. -------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2002 Report Share Posted August 4, 2002 Great news to receive this Sunday morning. maybe all news will be good this week. you will find over time , that the lists are wonderful . there are several & most of us are on all. It keeps you busy, but the friends AND wonderful info & FAMILy is terrific!! Welcome & so glad about that job too----will it bring insurance into the picture, to perhaps double cover whatever isn't elsewhere?? sometimes that happens ,when you lucky...........your a great grandmom. Bless you.. LOVE & HUGS, grandmomBEV mine is ERIN...18 year ...... Thank You! Hi! I wanted to thank everyone that wrote me on the message board and to my e-mail about the problem with the insurance. So far we havent recieved a bill for the Pulmozyme so Im guessing that Autumn's insurance is paying for it. We are looking into appealing the SSI denial. And some good news! Autumn's daddy finally got a job and will be starting on Monday.Thank you all for your advice. It sure is a help knowing I can come here and communicate with people who are going through the same thing we are. Autumn is doing well and is over this bout with pnumonia. (Autumn's grandma) PLEASE do not post religious emails to the list. ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. -------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2002 Report Share Posted August 4, 2002 HI!! I AM NEW TO THIS SITE AND I WAS WONDERING IF ANYBODY COULD TELL ME HOW DO YOU PUT MESSAGES ON THE BOARD ALL I CAN DO IS REPLY , I HAVE A DAUGHTER THAT IS 2 1/2 THAT HAS CF AND I WOULD LIKE TO WRITE, AND ASK QUESTIONS?? THANKS IF ANYONE CAN BE A HELP, KAREN Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2002 Report Share Posted August 4, 2002 When you write we ALL get the email. Its so simple. Welcome. I have learned so much and learn more each day from this group. Rosemary in New York with 3 children with CF - they are 12, 9.8, 5.9...I coined the phrase " BREATHE DAMMIT " ; and now we have a dog named - are you ready for this - TOBI after their medication! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2002 Report Share Posted August 4, 2002 THANK YOU FOR YOUR HELP , KAREN MOTHER OF 2WCF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2002 Report Share Posted August 28, 2002 Danna, Please for your sake and your child just blow them off, they actually still think they're God's. If anyone knows your child it is you. Just press on. Debi, mom of 22yr. wcf & transplant Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2002 Report Share Posted September 18, 2002 Hi Theresa, thankfully no tune-ups were necessary for Fiona yet. She receives a course of oral antibiotics against her staph every three months and this has limited her lung problems so far. I assume that Miranda cultures for Pseudo already and needs the tune-ups to fight that nasty bug, right? Peace Torsten > -Yes, it is getting to be very nice around here. Do you do the tune- > ups with Fiona? They are terriable, but good also. > Thank you for welcoming me back. > > > > Theresa,mom to (ncf), Miranda(wcf) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2002 Report Share Posted September 18, 2002 Hi Theresa, thankfully no tune-ups were necessary for Fiona yet. She receives a course of oral antibiotics against her staph every three months and this has limited her lung problems so far. I assume that Miranda cultures for Pseudo already and needs the tune-ups to fight that nasty bug, right? Peace Torsten > -Yes, it is getting to be very nice around here. Do you do the tune- > ups with Fiona? They are terriable, but good also. > Thank you for welcoming me back. > > > > Theresa,mom to (ncf), Miranda(wcf) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2003 Report Share Posted November 26, 2003 Thank you and Alyssa. Shane thought that was so nice. He says, " Thank you, " for the Happy Birthday from you guys. We want to wish everyone a Happy Thanksgiving! Donna Shane - allergic to wheat, gluten, dairy, soy, and anything in the pickle family. Minnesota Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2006 Report Share Posted July 1, 2006 rUTH, Darlene, Rose, Kim, Debbie and I-- along with many others that were part of this group in the beginning-- have been willing and able to share their knowledge, and so much of the leg work was done when Darlene and I took over. For that we both are so very grateful. It truly means alot when the work (a labor of love- for each others struggle) that has been put into this pays off. Thank you, Tracie NS Co-owner/moderator Quote Link to comment Share on other sites More sharing options...
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