Guest guest Posted February 13, 1999 Report Share Posted February 13, 1999 le, You are so right, but I believe the only way to weed out the frauds is for more of us to start local support groups, My story is appearing in 5 or 6 newspapers in my area and I am getting many calls from people that recognized it from how I describe it.. It's bringing them out of the woodwork, and after our first meeting, sleep clinics and neurologist are going to hear from us big time in this area. Just think how the doctors, nurses & researchers ears would perk up if these support groups popped up all over. All of these new RLS sufferers are going to need a neurologist or doctor, so they'll be hearing from us armed with info. When enough HOLLER, they will hear. I didn't think I could start one, but I'm doing it, and I already have 26 members and so far it's only shown up in 2 small town newspapers. WOW!!! the impact we could all make, if we just do it. Mine will meet quarterly, so that's not too much of a hardship on anyone.' and the foundation is helping me tremendously. Well, I'm like you le, I'd better get off my soapbox and quit before I go on & on & on. June 64-(3 more days) Delaware Quote Link to comment Share on other sites More sharing options...
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