hip pain

[Guest guest]

Thanks

Matt,

But my

hip pain is nothing compared to your pain with those darn stones, are they all

out yet? I keep praying you can just pass them all.

Smiles,

Marla

From: Neurosarcoidosis

[mailto:Neurosarcoidosis ] On

Behalf Of Cohen

Sent: Tuesday, June 27, 2006 2:08

PM

To:

Neurosarcoidosis

Subject: RE:

Re: HIP pain

Marla i

am so sorry u are having a rough time- i

sincerly hope that u are able to find out what is

wrong and that you better soon. MATT

--- Marla <mebramer (AT) gmail (DOT) com>

wrote:

> Ruth,

>

> Thanks for sharing, I can lay on my right side, the

> pain is on the left and

> I can't lay on my left. I can't lay on my back

> either, I have trouble

> breathing, and will start coughing, and won't stop

> until I get off my back.

> I think I will get it checked out though.

>

> I'm praying for a pain free day for us all.

>

> Marla

>

>

>

> _____

>

> From: Neurosarcoidosis

> [mailto:Neurosarcoidosis ]

On Behalf

> Of Ruth

> Sent: Sunday, June 25, 2006 8:24 PM

> To: Neurosarcoidosis

> Subject: Re: HIP pain

>

>

>

> Marla,

>

> My hip pain was worse at night when I laid in on my

> sides..right

> side puts pressure on the joint itself and left side

> pulls the

> ligament. Dr explained that with the extra bone

> growth the ligament

> gets pulled over the joint, it just isn't long

> enough for for the

> extra bone. I was stuck laying on my back. I'd had

> this pain for 5-

> 6 years when one morning I stood up and could not

> put any weight on

> my right hip. I was panic thinking I'd broken my hip

> rolling over

> so something. Primary care said I'd " sprained " my

> hip and sent me

> for an xray and got me into a ortho immediately. The

> is the doc

> that finially explained about the sarc causing the

> extra bone

> growth. I had two injections the first worked great

> the second not

> so much. The day may come when I will have to have

> something done

> but it is doing ok right now. Wonder if the Remicade

> will help it

> the bone growth? I have my third infusion on

> Thursday. My

> headaches have come back in the last week and some

> joint pain but

> other than that I have been doing well. Compared to

> what I had this

> I can deal with. It is nothing less than a miracle

> for me.

>

> If you can get your hip checked out I think you

> should....there may

> be something that can be done. The shots are not

> pleasant and they

> hurt like crazy...but only for about 30 seconds..the

> relief is

> immediate.

>

> Good Luck....

>

> Ruth

>

>

> > >

> > > My husband (pulmonary sarcoidosis) is having

> right shoulder

> pain.

> > We

> > > have had him to an ortho-pod and he is willing

> to perform

> surgery

> > > (shave off part of the bone). Does anyone else

> have shoulder

> pain -

> > > that may be attributed to saroidosis?

> > >

> >

>

>

>

>

__________________________________________________

[Guest guest]

Hi marla- good news- i think i passed my last kidney

stone yesterday- had real intense pain yesterday

morning then all of a sudden the pain stoped and i

have been pain free ever since- will have my eye

surgery next wednesday then will hopefully be pain

free for a while- Also my docs have finally agreed to

do another brain scan so that we can see y i am having

the dizzy spells - so i am feeling better about life

right now MATT

--- Marla mebramer@...> wrote:

> Thanks Matt,

>

> But my hip pain is nothing compared to your pain

> with those darn stones, are

> they all out yet? I keep praying you can just pass

> them all.

>

> Smiles,

>

> Marla

>

>

>

> _____

>

> From: Neurosarcoidosis

> [mailto:Neurosarcoidosis ] On Behalf

> Of Cohen

> Sent: Tuesday, June 27, 2006 2:08 PM

> To: Neurosarcoidosis

> Subject: RE: Re: HIP pain

>

>

>

> Marla i am so sorry u are having a rough time- i

> sincerly hope that u are able to find out what is

> wrong and that you better soon. MATT

>

> --- Marla

com> wrote:

>

> > Ruth,

> >

> > Thanks for sharing, I can lay on my right side,

> the

> > pain is on the left and

> > I can't lay on my left. I can't lay on my back

> > either, I have trouble

> > breathing, and will start coughing, and won't stop

> > until I get off my back.

> > I think I will get it checked out though.

> >

> > I'm praying for a pain free day for us all.

> >

> > Marla

> >

> >

> >

> > _____

> >

> > From: Neurosarcoidosis@

>

> yahoogroups.com

> > [mailto:Neurosarcoidosis@

>

> yahoogroups.com] On Behalf

> > Of Ruth

> > Sent: Sunday, June 25, 2006 8:24 PM

> > To: Neurosarcoidosis@

>

> yahoogroups.com

> > Subject: Re: HIP pain

> >

> >

> >

> > Marla,

> >

> > My hip pain was worse at night when I laid in on

> my

> > sides..right

> > side puts pressure on the joint itself and left

> side

> > pulls the

> > ligament. Dr explained that with the extra bone

> > growth the ligament

> > gets pulled over the joint, it just isn't long

> > enough for for the

> > extra bone. I was stuck laying on my back. I'd had

> > this pain for 5-

> > 6 years when one morning I stood up and could not

> > put any weight on

> > my right hip. I was panic thinking I'd broken my

> hip

> > rolling over

> > so something. Primary care said I'd " sprained " my

> > hip and sent me

> > for an xray and got me into a ortho immediately.

> The

> > is the doc

> > that finially explained about the sarc causing the

> > extra bone

> > growth. I had two injections the first worked

> great

> > the second not

> > so much. The day may come when I will have to have

> > something done

> > but it is doing ok right now. Wonder if the

> Remicade

> > will help it

> > the bone growth? I have my third infusion on

> > Thursday. My

> > headaches have come back in the last week and some

> > joint pain but

> > other than that I have been doing well. Compared

> to

> > what I had this

> > I can deal with. It is nothing less than a miracle

> > for me.

> >

> > If you can get your hip checked out I think you

> > should....there may

> > be something that can be done. The shots are not

> > pleasant and they

> > hurt like crazy...but only for about 30

> seconds..the

> > relief is

> > immediate.

> >

> > Good Luck....

> >

> > Ruth

> >

> >

> > > >

> > > > My husband (pulmonary sarcoidosis) is having

> > right shoulder

> > pain.

> > > We

> > > > have had him to an ortho-pod and he is willing

> > to perform

> > surgery

> > > > (shave off part of the bone). Does anyone else

> > have shoulder

> > pain -

> > > > that may be attributed to saroidosis?

> > > >

> > >

> >

> >

> >

> >

>

>

=== message truncated ===

__________________________________________________

[Guest guest]

Hi marla- good news- i think i passed my last kidney

stone yesterday- had real intense pain yesterday

morning then all of a sudden the pain stoped and i

have been pain free ever since- will have my eye

surgery next wednesday then will hopefully be pain

free for a while- Also my docs have finally agreed to

do another brain scan so that we can see y i am having

the dizzy spells - so i am feeling better about life

right now MATT

--- Marla mebramer@...> wrote:

> Thanks Matt,

>

> But my hip pain is nothing compared to your pain

> with those darn stones, are

> they all out yet? I keep praying you can just pass

> them all.

>

> Smiles,

>

> Marla

>

>

>

> _____

>

> From: Neurosarcoidosis

> [mailto:Neurosarcoidosis ] On Behalf

> Of Cohen

> Sent: Tuesday, June 27, 2006 2:08 PM

> To: Neurosarcoidosis

> Subject: RE: Re: HIP pain

>

>

>

> Marla i am so sorry u are having a rough time- i

> sincerly hope that u are able to find out what is

> wrong and that you better soon. MATT

>

> --- Marla

com> wrote:

>

> > Ruth,

> >

> > Thanks for sharing, I can lay on my right side,

> the

> > pain is on the left and

> > I can't lay on my left. I can't lay on my back

> > either, I have trouble

> > breathing, and will start coughing, and won't stop

> > until I get off my back.

> > I think I will get it checked out though.

> >

> > I'm praying for a pain free day for us all.

> >

> > Marla

> >

> >

> >

> > _____

> >

> > From: Neurosarcoidosis@

>

> yahoogroups.com

> > [mailto:Neurosarcoidosis@

>

> yahoogroups.com] On Behalf

> > Of Ruth

> > Sent: Sunday, June 25, 2006 8:24 PM

> > To: Neurosarcoidosis@

>

> yahoogroups.com

> > Subject: Re: HIP pain

> >

> >

> >

> > Marla,

> >

> > My hip pain was worse at night when I laid in on

> my

> > sides..right

> > side puts pressure on the joint itself and left

> side

> > pulls the

> > ligament. Dr explained that with the extra bone

> > growth the ligament

> > gets pulled over the joint, it just isn't long

> > enough for for the

> > extra bone. I was stuck laying on my back. I'd had

> > this pain for 5-

> > 6 years when one morning I stood up and could not

> > put any weight on

> > my right hip. I was panic thinking I'd broken my

> hip

> > rolling over

> > so something. Primary care said I'd " sprained " my

> > hip and sent me

> > for an xray and got me into a ortho immediately.

> The

> > is the doc

> > that finially explained about the sarc causing the

> > extra bone

> > growth. I had two injections the first worked

> great

> > the second not

> > so much. The day may come when I will have to have

> > something done

> > but it is doing ok right now. Wonder if the

> Remicade

> > will help it

> > the bone growth? I have my third infusion on

> > Thursday. My

> > headaches have come back in the last week and some

> > joint pain but

> > other than that I have been doing well. Compared

> to

> > what I had this

> > I can deal with. It is nothing less than a miracle

> > for me.

> >

> > If you can get your hip checked out I think you

> > should....there may

> > be something that can be done. The shots are not

> > pleasant and they

> > hurt like crazy...but only for about 30

> seconds..the

> > relief is

> > immediate.

> >

> > Good Luck....

> >

> > Ruth

> >

> >

> > > >

> > > > My husband (pulmonary sarcoidosis) is having

> > right shoulder

> > pain.

> > > We

> > > > have had him to an ortho-pod and he is willing

> > to perform

> > surgery

> > > > (shave off part of the bone). Does anyone else

> > have shoulder

> > pain -

> > > > that may be attributed to saroidosis?

> > > >

> > >

> >

> >

> >

> >

>

>

=== message truncated ===

__________________________________________________

[Guest guest]

Matt, That really is good news! Sounds like things are finally starting to look up for you. I am really happy for you. Hugs, Debbie Cohen wrote: Hi marla- good news- i think i passed my last kidneystone yesterday- had real intense pain yesterdaymorning then all of a sudden the pain stoped and ihave been pain free ever since- will have my eyesurgery next wednesday then will hopefully be painfree for a while- Also my docs have finally agreed todo another brain scan so that we can see y i am havingthe dizzy spells - so i am feeling better about liferight now MATT--- Marla wrote:> Thanks Matt, > > But my hip pain is nothing compared to your pain> with

those darn stones, are> they all out yet? I keep praying you can just pass> them all. > > Smiles,> > Marla > > > > _____ > > From: Neurosarcoidosis > [mailto:Neurosarcoidosis ] On Behalf> Of Cohen> Sent: Tuesday, June 27, 2006 2:08 PM> To: Neurosarcoidosis > Subject: RE: Re: HIP pain> > > > Marla i am so sorry u are having a rough time- i> sincerly hope that u are able to find out what is> wrong and that you better soon. MATT > > --- Marla > com> wrote:> > > Ruth, > > > > Thanks for sharing, I can lay on my right side,> the> > pain is on the left and> > I can't lay on my left. I can't lay on my

back> > either, I have trouble> > breathing, and will start coughing, and won't stop> > until I get off my back.> > I think I will get it checked out though. > > > > I'm praying for a pain free day for us all. > > > > Marla> > > > > > > > _____ > > > > From: Neurosarcoidosis@> > yahoogroups.com> > [mailto:Neurosarcoidosis@> > yahoogroups.com] On Behalf> > Of Ruth> > Sent: Sunday, June 25, 2006 8:24 PM> > To: Neurosarcoidosis@> > yahoogroups.com> > Subject: Re: HIP pain> > > > > > > > Marla,> > > > My hip pain was worse at night when I laid

in on> my> > sides..right > > side puts pressure on the joint itself and left> side> > pulls the > > ligament. Dr explained that with the extra bone> > growth the ligament > > gets pulled over the joint, it just isn't long> > enough for for the > > extra bone. I was stuck laying on my back. I'd had> > this pain for 5-> > 6 years when one morning I stood up and could not> > put any weight on > > my right hip. I was panic thinking I'd broken my> hip> > rolling over > > so something. Primary care said I'd "sprained" my> > hip and sent me > > for an xray and got me into a ortho immediately.> The> > is the doc > > that finially explained about the sarc causing the> > extra bone > > growth. I had two injections the first worked> great> >

the second not > > so much. The day may come when I will have to have> > something done > > but it is doing ok right now. Wonder if the> Remicade> > will help it > > the bone growth? I have my third infusion on> > Thursday. My > > headaches have come back in the last week and some> > joint pain but > > other than that I have been doing well. Compared> to> > what I had this > > I can deal with. It is nothing less than a miracle> > for me. > > > > If you can get your hip checked out I think you> > should....there may > > be something that can be done. The shots are not> > pleasant and they > > hurt like crazy...but only for about 30> seconds..the> > relief is > > immediate.> > > > Good Luck....> > > > Ruth> >

> > > > > >> > > > My husband (pulmonary sarcoidosis) is having> > right shoulder > > pain. > > > We > > > > have had him to an ortho-pod and he is willing> > to perform > > surgery > > > > (shave off part of the bone). Does anyone else> > have shoulder > > pain - > > > > that may be attributed to saroidosis?> > > >> > >> > > > > > > > > > === message truncated ===__________________________________________________

[Guest guest]

Matt, That really is good news! Sounds like things are finally starting to look up for you. I am really happy for you. Hugs, Debbie Cohen wrote: Hi marla- good news- i think i passed my last kidneystone yesterday- had real intense pain yesterdaymorning then all of a sudden the pain stoped and ihave been pain free ever since- will have my eyesurgery next wednesday then will hopefully be painfree for a while- Also my docs have finally agreed todo another brain scan so that we can see y i am havingthe dizzy spells - so i am feeling better about liferight now MATT--- Marla wrote:> Thanks Matt, > > But my hip pain is nothing compared to your pain> with

those darn stones, are> they all out yet? I keep praying you can just pass> them all. > > Smiles,> > Marla > > > > _____ > > From: Neurosarcoidosis > [mailto:Neurosarcoidosis ] On Behalf> Of Cohen> Sent: Tuesday, June 27, 2006 2:08 PM> To: Neurosarcoidosis > Subject: RE: Re: HIP pain> > > > Marla i am so sorry u are having a rough time- i> sincerly hope that u are able to find out what is> wrong and that you better soon. MATT > > --- Marla > com> wrote:> > > Ruth, > > > > Thanks for sharing, I can lay on my right side,> the> > pain is on the left and> > I can't lay on my left. I can't lay on my

back> > either, I have trouble> > breathing, and will start coughing, and won't stop> > until I get off my back.> > I think I will get it checked out though. > > > > I'm praying for a pain free day for us all. > > > > Marla> > > > > > > > _____ > > > > From: Neurosarcoidosis@> > yahoogroups.com> > [mailto:Neurosarcoidosis@> > yahoogroups.com] On Behalf> > Of Ruth> > Sent: Sunday, June 25, 2006 8:24 PM> > To: Neurosarcoidosis@> > yahoogroups.com> > Subject: Re: HIP pain> > > > > > > > Marla,> > > > My hip pain was worse at night when I laid

in on> my> > sides..right > > side puts pressure on the joint itself and left> side> > pulls the > > ligament. Dr explained that with the extra bone> > growth the ligament > > gets pulled over the joint, it just isn't long> > enough for for the > > extra bone. I was stuck laying on my back. I'd had> > this pain for 5-> > 6 years when one morning I stood up and could not> > put any weight on > > my right hip. I was panic thinking I'd broken my> hip> > rolling over > > so something. Primary care said I'd "sprained" my> > hip and sent me > > for an xray and got me into a ortho immediately.> The> > is the doc > > that finially explained about the sarc causing the> > extra bone > > growth. I had two injections the first worked> great> >

the second not > > so much. The day may come when I will have to have> > something done > > but it is doing ok right now. Wonder if the> Remicade> > will help it > > the bone growth? I have my third infusion on> > Thursday. My > > headaches have come back in the last week and some> > joint pain but > > other than that I have been doing well. Compared> to> > what I had this > > I can deal with. It is nothing less than a miracle> > for me. > > > > If you can get your hip checked out I think you> > should....there may > > be something that can be done. The shots are not> > pleasant and they > > hurt like crazy...but only for about 30> seconds..the> > relief is > > immediate.> > > > Good Luck....> > > > Ruth> >

> > > > > >> > > > My husband (pulmonary sarcoidosis) is having> > right shoulder > > pain. > > > We > > > > have had him to an ortho-pod and he is willing> > to perform > > surgery > > > > (shave off part of the bone). Does anyone else> > have shoulder > > pain - > > > > that may be attributed to saroidosis?> > > >> > >> > > > > > > > > > === message truncated ===__________________________________________________

[Guest guest]

Matt, That really is good news! Sounds like things are finally starting to look up for you. I am really happy for you. Hugs, Debbie Cohen wrote: Hi marla- good news- i think i passed my last kidneystone yesterday- had real intense pain yesterdaymorning then all of a sudden the pain stoped and ihave been pain free ever since- will have my eyesurgery next wednesday then will hopefully be painfree for a while- Also my docs have finally agreed todo another brain scan so that we can see y i am havingthe dizzy spells - so i am feeling better about liferight now MATT--- Marla wrote:> Thanks Matt, > > But my hip pain is nothing compared to your pain> with

those darn stones, are> they all out yet? I keep praying you can just pass> them all. > > Smiles,> > Marla > > > > _____ > > From: Neurosarcoidosis > [mailto:Neurosarcoidosis ] On Behalf> Of Cohen> Sent: Tuesday, June 27, 2006 2:08 PM> To: Neurosarcoidosis > Subject: RE: Re: HIP pain> > > > Marla i am so sorry u are having a rough time- i> sincerly hope that u are able to find out what is> wrong and that you better soon. MATT > > --- Marla > com> wrote:> > > Ruth, > > > > Thanks for sharing, I can lay on my right side,> the> > pain is on the left and> > I can't lay on my left. I can't lay on my

back> > either, I have trouble> > breathing, and will start coughing, and won't stop> > until I get off my back.> > I think I will get it checked out though. > > > > I'm praying for a pain free day for us all. > > > > Marla> > > > > > > > _____ > > > > From: Neurosarcoidosis@> > yahoogroups.com> > [mailto:Neurosarcoidosis@> > yahoogroups.com] On Behalf> > Of Ruth> > Sent: Sunday, June 25, 2006 8:24 PM> > To: Neurosarcoidosis@> > yahoogroups.com> > Subject: Re: HIP pain> > > > > > > > Marla,> > > > My hip pain was worse at night when I laid

in on> my> > sides..right > > side puts pressure on the joint itself and left> side> > pulls the > > ligament. Dr explained that with the extra bone> > growth the ligament > > gets pulled over the joint, it just isn't long> > enough for for the > > extra bone. I was stuck laying on my back. I'd had> > this pain for 5-> > 6 years when one morning I stood up and could not> > put any weight on > > my right hip. I was panic thinking I'd broken my> hip> > rolling over > > so something. Primary care said I'd "sprained" my> > hip and sent me > > for an xray and got me into a ortho immediately.> The> > is the doc > > that finially explained about the sarc causing the> > extra bone > > growth. I had two injections the first worked> great> >

the second not > > so much. The day may come when I will have to have> > something done > > but it is doing ok right now. Wonder if the> Remicade> > will help it > > the bone growth? I have my third infusion on> > Thursday. My > > headaches have come back in the last week and some> > joint pain but > > other than that I have been doing well. Compared> to> > what I had this > > I can deal with. It is nothing less than a miracle> > for me. > > > > If you can get your hip checked out I think you> > should....there may > > be something that can be done. The shots are not> > pleasant and they > > hurt like crazy...but only for about 30> seconds..the> > relief is > > immediate.> > > > Good Luck....> > > > Ruth> >

> > > > > >> > > > My husband (pulmonary sarcoidosis) is having> > right shoulder > > pain. > > > We > > > > have had him to an ortho-pod and he is willing> > to perform > > surgery > > > > (shave off part of the bone). Does anyone else> > have shoulder > > pain - > > > > that may be attributed to saroidosis?> > > >> > >> > > > > > > > > > === message truncated ===__________________________________________________

[Guest guest]

Matt, I am so happy that things are going a little better for you right now. I'll be praying that it just continues in that direction. It's so great to hear you are improving!/////Connie Cohen wrote: Hi marla- good news- i think i passed my last kidneystone yesterday- had real intense pain yesterdaymorning then all of a sudden the pain stoped and ihave been pain free ever since- will have my eyesurgery next wednesday then will hopefully be

painfree for a while- Also my docs have finally agreed todo another brain scan so that we can see y i am havingthe dizzy spells - so i am feeling better about liferight now MATT--- Marla <mebramer (AT) gmail (DOT) com> wrote:> Thanks Matt, > > But my hip pain is nothing compared to your pain> with those darn stones, are> they all out yet? I keep praying you can just pass> them all. > > Smiles,> > Marla > > > > _____ > > From: Neurosarcoidosis > [mailto:Neurosarcoidosis ] On Behalf> Of Cohen> Sent: Tuesday, June 27, 2006 2:08 PM> To: Neurosarcoidosis > Subject: RE: Re: HIP pain> > > > Marla i am so sorry u are having a rough time- i> sincerly hope that u are able to find out what is> wrong and that you better soon. MATT > > --- Marla <mebramer (AT) gmail (DOT) > <mailto:mebramer%40gmail.com> com> wrote:> > > Ruth, > > > > Thanks for sharing, I can lay on my right side,> the> > pain is on the left and> > I can't lay on my left. I can't lay on my back> > either, I have trouble> > breathing, and will start coughing, and won't stop> > until I get off my back.> > I think I will get it checked out though. > > > > I'm praying for a pain free day for us all. > > > > Marla> > > >

> > > > _____ > > > > From: Neurosarcoidosis@> <mailto:Neurosarcoidosis%40yahoogroups.com>> yahoogroups.com> > [mailto:Neurosarcoidosis@> <mailto:Neurosarcoidosis%40yahoogroups.com>> yahoogroups.com] On Behalf> > Of Ruth> > Sent: Sunday, June 25, 2006 8:24 PM> > To: Neurosarcoidosis@> <mailto:Neurosarcoidosis%40yahoogroups.com>> yahoogroups.com> > Subject: Re: HIP pain> > > > > > > > Marla,> > > > My hip pain was worse at night when I laid in on> my> > sides..right > > side puts pressure on the joint itself and left> side> > pulls the > > ligament. Dr explained that with the extra bone> > growth the ligament > > gets pulled

over the joint, it just isn't long> > enough for for the > > extra bone. I was stuck laying on my back. I'd had> > this pain for 5-> > 6 years when one morning I stood up and could not> > put any weight on > > my right hip. I was panic thinking I'd broken my> hip> > rolling over > > so something. Primary care said I'd "sprained" my> > hip and sent me > > for an xray and got me into a ortho immediately.> The> > is the doc > > that finially explained about the sarc causing the> > extra bone > > growth. I had two injections the first worked> great> > the second not > > so much. The day may come when I will have to have> > something done > > but it is doing ok right now. Wonder if the> Remicade> > will help it > > the bone growth? I have my third

infusion on> > Thursday. My > > headaches have come back in the last week and some> > joint pain but > > other than that I have been doing well. Compared> to> > what I had this > > I can deal with. It is nothing less than a miracle> > for me. > > > > If you can get your hip checked out I think you> > should....there may > > be something that can be done. The shots are not> > pleasant and they > > hurt like crazy...but only for about 30> seconds..the> > relief is > > immediate.> > > > Good Luck....> > > > Ruth> > > > > > > >> > > > My husband (pulmonary sarcoidosis) is having> > right shoulder > > pain. > > > We > > > > have had him to an ortho-pod and he is willing> > to perform > > surgery > > > > (shave off part of the bone). Does anyone else> > have shoulder > > pain - > > > > that may be attributed to saroidosis?> > > >> > >> > > > > > > > > > === message truncated ===__________________________________________________

[Guest guest]

Matt, I am so happy that things are going a little better for you right now. I'll be praying that it just continues in that direction. It's so great to hear you are improving!/////Connie Cohen wrote: Hi marla- good news- i think i passed my last kidneystone yesterday- had real intense pain yesterdaymorning then all of a sudden the pain stoped and ihave been pain free ever since- will have my eyesurgery next wednesday then will hopefully be

painfree for a while- Also my docs have finally agreed todo another brain scan so that we can see y i am havingthe dizzy spells - so i am feeling better about liferight now MATT--- Marla <mebramer (AT) gmail (DOT) com> wrote:> Thanks Matt, > > But my hip pain is nothing compared to your pain> with those darn stones, are> they all out yet? I keep praying you can just pass> them all. > > Smiles,> > Marla > > > > _____ > > From: Neurosarcoidosis > [mailto:Neurosarcoidosis ] On Behalf> Of Cohen> Sent: Tuesday, June 27, 2006 2:08 PM> To: Neurosarcoidosis > Subject: RE: Re: HIP pain> > > > Marla i am so sorry u are having a rough time- i> sincerly hope that u are able to find out what is> wrong and that you better soon. MATT > > --- Marla <mebramer (AT) gmail (DOT) > <mailto:mebramer%40gmail.com> com> wrote:> > > Ruth, > > > > Thanks for sharing, I can lay on my right side,> the> > pain is on the left and> > I can't lay on my left. I can't lay on my back> > either, I have trouble> > breathing, and will start coughing, and won't stop> > until I get off my back.> > I think I will get it checked out though. > > > > I'm praying for a pain free day for us all. > > > > Marla> > > >

> > > > _____ > > > > From: Neurosarcoidosis@> <mailto:Neurosarcoidosis%40yahoogroups.com>> yahoogroups.com> > [mailto:Neurosarcoidosis@> <mailto:Neurosarcoidosis%40yahoogroups.com>> yahoogroups.com] On Behalf> > Of Ruth> > Sent: Sunday, June 25, 2006 8:24 PM> > To: Neurosarcoidosis@> <mailto:Neurosarcoidosis%40yahoogroups.com>> yahoogroups.com> > Subject: Re: HIP pain> > > > > > > > Marla,> > > > My hip pain was worse at night when I laid in on> my> > sides..right > > side puts pressure on the joint itself and left> side> > pulls the > > ligament. Dr explained that with the extra bone> > growth the ligament > > gets pulled

over the joint, it just isn't long> > enough for for the > > extra bone. I was stuck laying on my back. I'd had> > this pain for 5-> > 6 years when one morning I stood up and could not> > put any weight on > > my right hip. I was panic thinking I'd broken my> hip> > rolling over > > so something. Primary care said I'd "sprained" my> > hip and sent me > > for an xray and got me into a ortho immediately.> The> > is the doc > > that finially explained about the sarc causing the> > extra bone > > growth. I had two injections the first worked> great> > the second not > > so much. The day may come when I will have to have> > something done > > but it is doing ok right now. Wonder if the> Remicade> > will help it > > the bone growth? I have my third

infusion on> > Thursday. My > > headaches have come back in the last week and some> > joint pain but > > other than that I have been doing well. Compared> to> > what I had this > > I can deal with. It is nothing less than a miracle> > for me. > > > > If you can get your hip checked out I think you> > should....there may > > be something that can be done. The shots are not> > pleasant and they > > hurt like crazy...but only for about 30> seconds..the> > relief is > > immediate.> > > > Good Luck....> > > > Ruth> > > > > > > >> > > > My husband (pulmonary sarcoidosis) is having> > right shoulder > > pain. > > > We > > > > have had him to an ortho-pod and he is willing> > to perform > > surgery > > > > (shave off part of the bone). Does anyone else> > have shoulder > > pain - > > > > that may be attributed to saroidosis?> > > >> > >> > > > > > > > > > === message truncated ===__________________________________________________

[Guest guest]

Matt, I am so happy that things are going a little better for you right now. I'll be praying that it just continues in that direction. It's so great to hear you are improving!/////Connie Cohen wrote: Hi marla- good news- i think i passed my last kidneystone yesterday- had real intense pain yesterdaymorning then all of a sudden the pain stoped and ihave been pain free ever since- will have my eyesurgery next wednesday then will hopefully be

painfree for a while- Also my docs have finally agreed todo another brain scan so that we can see y i am havingthe dizzy spells - so i am feeling better about liferight now MATT--- Marla <mebramer (AT) gmail (DOT) com> wrote:> Thanks Matt, > > But my hip pain is nothing compared to your pain> with those darn stones, are> they all out yet? I keep praying you can just pass> them all. > > Smiles,> > Marla > > > > _____ > > From: Neurosarcoidosis > [mailto:Neurosarcoidosis ] On Behalf> Of Cohen> Sent: Tuesday, June 27, 2006 2:08 PM> To: Neurosarcoidosis > Subject: RE: Re: HIP pain> > > > Marla i am so sorry u are having a rough time- i> sincerly hope that u are able to find out what is> wrong and that you better soon. MATT > > --- Marla <mebramer (AT) gmail (DOT) > <mailto:mebramer%40gmail.com> com> wrote:> > > Ruth, > > > > Thanks for sharing, I can lay on my right side,> the> > pain is on the left and> > I can't lay on my left. I can't lay on my back> > either, I have trouble> > breathing, and will start coughing, and won't stop> > until I get off my back.> > I think I will get it checked out though. > > > > I'm praying for a pain free day for us all. > > > > Marla> > > >

> > > > _____ > > > > From: Neurosarcoidosis@> <mailto:Neurosarcoidosis%40yahoogroups.com>> yahoogroups.com> > [mailto:Neurosarcoidosis@> <mailto:Neurosarcoidosis%40yahoogroups.com>> yahoogroups.com] On Behalf> > Of Ruth> > Sent: Sunday, June 25, 2006 8:24 PM> > To: Neurosarcoidosis@> <mailto:Neurosarcoidosis%40yahoogroups.com>> yahoogroups.com> > Subject: Re: HIP pain> > > > > > > > Marla,> > > > My hip pain was worse at night when I laid in on> my> > sides..right > > side puts pressure on the joint itself and left> side> > pulls the > > ligament. Dr explained that with the extra bone> > growth the ligament > > gets pulled

over the joint, it just isn't long> > enough for for the > > extra bone. I was stuck laying on my back. I'd had> > this pain for 5-> > 6 years when one morning I stood up and could not> > put any weight on > > my right hip. I was panic thinking I'd broken my> hip> > rolling over > > so something. Primary care said I'd "sprained" my> > hip and sent me > > for an xray and got me into a ortho immediately.> The> > is the doc > > that finially explained about the sarc causing the> > extra bone > > growth. I had two injections the first worked> great> > the second not > > so much. The day may come when I will have to have> > something done > > but it is doing ok right now. Wonder if the> Remicade> > will help it > > the bone growth? I have my third

infusion on> > Thursday. My > > headaches have come back in the last week and some> > joint pain but > > other than that I have been doing well. Compared> to> > what I had this > > I can deal with. It is nothing less than a miracle> > for me. > > > > If you can get your hip checked out I think you> > should....there may > > be something that can be done. The shots are not> > pleasant and they > > hurt like crazy...but only for about 30> seconds..the> > relief is > > immediate.> > > > Good Luck....> > > > Ruth> > > > > > > >> > > > My husband (pulmonary sarcoidosis) is having> > right shoulder > > pain. > > > We > > > > have had him to an ortho-pod and he is willing> > to perform > > surgery > > > > (shave off part of the bone). Does anyone else> > have shoulder > > pain - > > > > that may be attributed to saroidosis?> > > >> > >> > > > > > > > > > === message truncated ===__________________________________________________

[Guest guest]

Matt, I am so happy that things are going a little better for you right now. I'll be praying that it just continues in that direction. It's so great to hear you are improving!/////Connie Cohen wrote: Hi marla- good news- i think i passed my last kidneystone yesterday- had real intense pain yesterdaymorning then all of a sudden the pain stoped and ihave been pain free ever since- will have my eyesurgery next wednesday then will hopefully be

painfree for a while- Also my docs have finally agreed todo another brain scan so that we can see y i am havingthe dizzy spells - so i am feeling better about liferight now MATT--- Marla <mebramer (AT) gmail (DOT) com> wrote:> Thanks Matt, > > But my hip pain is nothing compared to your pain> with those darn stones, are> they all out yet? I keep praying you can just pass> them all. > > Smiles,> > Marla > > > > _____ > > From: Neurosarcoidosis > [mailto:Neurosarcoidosis ] On Behalf> Of Cohen> Sent: Tuesday, June 27, 2006 2:08 PM> To: Neurosarcoidosis > Subject: RE: Re: HIP pain> > > > Marla i am so sorry u are having a rough time- i> sincerly hope that u are able to find out what is> wrong and that you better soon. MATT > > --- Marla <mebramer (AT) gmail (DOT) > <mailto:mebramer%40gmail.com> com> wrote:> > > Ruth, > > > > Thanks for sharing, I can lay on my right side,> the> > pain is on the left and> > I can't lay on my left. I can't lay on my back> > either, I have trouble> > breathing, and will start coughing, and won't stop> > until I get off my back.> > I think I will get it checked out though. > > > > I'm praying for a pain free day for us all. > > > > Marla> > > >

> > > > _____ > > > > From: Neurosarcoidosis@> <mailto:Neurosarcoidosis%40yahoogroups.com>> yahoogroups.com> > [mailto:Neurosarcoidosis@> <mailto:Neurosarcoidosis%40yahoogroups.com>> yahoogroups.com] On Behalf> > Of Ruth> > Sent: Sunday, June 25, 2006 8:24 PM> > To: Neurosarcoidosis@> <mailto:Neurosarcoidosis%40yahoogroups.com>> yahoogroups.com> > Subject: Re: HIP pain> > > > > > > > Marla,> > > > My hip pain was worse at night when I laid in on> my> > sides..right > > side puts pressure on the joint itself and left> side> > pulls the > > ligament. Dr explained that with the extra bone> > growth the ligament > > gets pulled

over the joint, it just isn't long> > enough for for the > > extra bone. I was stuck laying on my back. I'd had> > this pain for 5-> > 6 years when one morning I stood up and could not> > put any weight on > > my right hip. I was panic thinking I'd broken my> hip> > rolling over > > so something. Primary care said I'd "sprained" my> > hip and sent me > > for an xray and got me into a ortho immediately.> The> > is the doc > > that finially explained about the sarc causing the> > extra bone > > growth. I had two injections the first worked> great> > the second not > > so much. The day may come when I will have to have> > something done > > but it is doing ok right now. Wonder if the> Remicade> > will help it > > the bone growth? I have my third

infusion on> > Thursday. My > > headaches have come back in the last week and some> > joint pain but > > other than that I have been doing well. Compared> to> > what I had this > > I can deal with. It is nothing less than a miracle> > for me. > > > > If you can get your hip checked out I think you> > should....there may > > be something that can be done. The shots are not> > pleasant and they > > hurt like crazy...but only for about 30> seconds..the> > relief is > > immediate.> > > > Good Luck....> > > > Ruth> > > > > > > >> > > > My husband (pulmonary sarcoidosis) is having> > right shoulder > > pain. > > > We > > > > have had him to an ortho-pod and he is willing> > to perform > > surgery > > > > (shave off part of the bone). Does anyone else> > have shoulder > > pain - > > > > that may be attributed to saroidosis?> > > >> > >> > > > > > > > > > === message truncated ===__________________________________________________

[Guest guest]

Matt, I am so happy that things are going a little better for you right now. I'll be praying that it just continues in that direction. It's so great to hear you are improving!/////Connie Cohen wrote: Hi marla- good news- i think i passed my last kidneystone yesterday- had real intense pain yesterdaymorning then all of a sudden the pain stoped and ihave been pain free ever since- will have my eyesurgery next wednesday then will hopefully be

painfree for a while- Also my docs have finally agreed todo another brain scan so that we can see y i am havingthe dizzy spells - so i am feeling better about liferight now MATT--- Marla <mebramer (AT) gmail (DOT) com> wrote:> Thanks Matt, > > But my hip pain is nothing compared to your pain> with those darn stones, are> they all out yet? I keep praying you can just pass> them all. > > Smiles,> > Marla > > > > _____ > > From: Neurosarcoidosis > [mailto:Neurosarcoidosis ] On Behalf> Of Cohen> Sent: Tuesday, June 27, 2006 2:08 PM> To: Neurosarcoidosis > Subject: RE: Re: HIP pain> > > > Marla i am so sorry u are having a rough time- i> sincerly hope that u are able to find out what is> wrong and that you better soon. MATT > > --- Marla <mebramer (AT) gmail (DOT) > <mailto:mebramer%40gmail.com> com> wrote:> > > Ruth, > > > > Thanks for sharing, I can lay on my right side,> the> > pain is on the left and> > I can't lay on my left. I can't lay on my back> > either, I have trouble> > breathing, and will start coughing, and won't stop> > until I get off my back.> > I think I will get it checked out though. > > > > I'm praying for a pain free day for us all. > > > > Marla> > > >

> > > > _____ > > > > From: Neurosarcoidosis@> <mailto:Neurosarcoidosis%40yahoogroups.com>> yahoogroups.com> > [mailto:Neurosarcoidosis@> <mailto:Neurosarcoidosis%40yahoogroups.com>> yahoogroups.com] On Behalf> > Of Ruth> > Sent: Sunday, June 25, 2006 8:24 PM> > To: Neurosarcoidosis@> <mailto:Neurosarcoidosis%40yahoogroups.com>> yahoogroups.com> > Subject: Re: HIP pain> > > > > > > > Marla,> > > > My hip pain was worse at night when I laid in on> my> > sides..right > > side puts pressure on the joint itself and left> side> > pulls the > > ligament. Dr explained that with the extra bone> > growth the ligament > > gets pulled

over the joint, it just isn't long> > enough for for the > > extra bone. I was stuck laying on my back. I'd had> > this pain for 5-> > 6 years when one morning I stood up and could not> > put any weight on > > my right hip. I was panic thinking I'd broken my> hip> > rolling over > > so something. Primary care said I'd "sprained" my> > hip and sent me > > for an xray and got me into a ortho immediately.> The> > is the doc > > that finially explained about the sarc causing the> > extra bone > > growth. I had two injections the first worked> great> > the second not > > so much. The day may come when I will have to have> > something done > > but it is doing ok right now. Wonder if the> Remicade> > will help it > > the bone growth? I have my third

infusion on> > Thursday. My > > headaches have come back in the last week and some> > joint pain but > > other than that I have been doing well. Compared> to> > what I had this > > I can deal with. It is nothing less than a miracle> > for me. > > > > If you can get your hip checked out I think you> > should....there may > > be something that can be done. The shots are not> > pleasant and they > > hurt like crazy...but only for about 30> seconds..the> > relief is > > immediate.> > > > Good Luck....> > > > Ruth> > > > > > > >> > > > My husband (pulmonary sarcoidosis) is having> > right shoulder > > pain. > > > We > > > > have had him to an ortho-pod and he is willing> > to perform > > surgery > > > > (shave off part of the bone). Does anyone else> > have shoulder > > pain - > > > > that may be attributed to saroidosis?> > > >> > >> > > > > > > > > > === message truncated ===__________________________________________________

[Guest guest]

Matt, I am so happy that things are going a little better for you right now. I'll be praying that it just continues in that direction. It's so great to hear you are improving!/////Connie Cohen wrote: Hi marla- good news- i think i passed my last kidneystone yesterday- had real intense pain yesterdaymorning then all of a sudden the pain stoped and ihave been pain free ever since- will have my eyesurgery next wednesday then will hopefully be

painfree for a while- Also my docs have finally agreed todo another brain scan so that we can see y i am havingthe dizzy spells - so i am feeling better about liferight now MATT--- Marla <mebramer (AT) gmail (DOT) com> wrote:> Thanks Matt, > > But my hip pain is nothing compared to your pain> with those darn stones, are> they all out yet? I keep praying you can just pass> them all. > > Smiles,> > Marla > > > > _____ > > From: Neurosarcoidosis > [mailto:Neurosarcoidosis ] On Behalf> Of Cohen> Sent: Tuesday, June 27, 2006 2:08 PM> To: Neurosarcoidosis > Subject: RE: Re: HIP pain> > > > Marla i am so sorry u are having a rough time- i> sincerly hope that u are able to find out what is> wrong and that you better soon. MATT > > --- Marla <mebramer (AT) gmail (DOT) > <mailto:mebramer%40gmail.com> com> wrote:> > > Ruth, > > > > Thanks for sharing, I can lay on my right side,> the> > pain is on the left and> > I can't lay on my left. I can't lay on my back> > either, I have trouble> > breathing, and will start coughing, and won't stop> > until I get off my back.> > I think I will get it checked out though. > > > > I'm praying for a pain free day for us all. > > > > Marla> > > >

> > > > _____ > > > > From: Neurosarcoidosis@> <mailto:Neurosarcoidosis%40yahoogroups.com>> yahoogroups.com> > [mailto:Neurosarcoidosis@> <mailto:Neurosarcoidosis%40yahoogroups.com>> yahoogroups.com] On Behalf> > Of Ruth> > Sent: Sunday, June 25, 2006 8:24 PM> > To: Neurosarcoidosis@> <mailto:Neurosarcoidosis%40yahoogroups.com>> yahoogroups.com> > Subject: Re: HIP pain> > > > > > > > Marla,> > > > My hip pain was worse at night when I laid in on> my> > sides..right > > side puts pressure on the joint itself and left> side> > pulls the > > ligament. Dr explained that with the extra bone> > growth the ligament > > gets pulled

over the joint, it just isn't long> > enough for for the > > extra bone. I was stuck laying on my back. I'd had> > this pain for 5-> > 6 years when one morning I stood up and could not> > put any weight on > > my right hip. I was panic thinking I'd broken my> hip> > rolling over > > so something. Primary care said I'd "sprained" my> > hip and sent me > > for an xray and got me into a ortho immediately.> The> > is the doc > > that finially explained about the sarc causing the> > extra bone > > growth. I had two injections the first worked> great> > the second not > > so much. The day may come when I will have to have> > something done > > but it is doing ok right now. Wonder if the> Remicade> > will help it > > the bone growth? I have my third

infusion on> > Thursday. My > > headaches have come back in the last week and some> > joint pain but > > other than that I have been doing well. Compared> to> > what I had this > > I can deal with. It is nothing less than a miracle> > for me. > > > > If you can get your hip checked out I think you> > should....there may > > be something that can be done. The shots are not> > pleasant and they > > hurt like crazy...but only for about 30> seconds..the> > relief is > > immediate.> > > > Good Luck....> > > > Ruth> > > > > > > >> > > > My husband (pulmonary sarcoidosis) is having> > right shoulder > > pain. > > > We > > > > have had him to an ortho-pod and he is willing> > to perform > > surgery > > > > (shave off part of the bone). Does anyone else> > have shoulder > > pain - > > > > that may be attributed to saroidosis?> > > >> > >> > > > > > > > > > === message truncated ===__________________________________________________

[Guest guest]

Hi Connie- thanks MATT

--- Connie Griffis conaugusta@...> wrote:

> Matt, I am so happy that things are going a little

> better for you right now. I'll be praying that it

> just continues in that direction.

>

> It's so great to hear you are

> improving!/////Connie

>

> Cohen belltown_mac@...> wrote:

> Hi marla- good news- i think i passed my

> last kidney

> stone yesterday- had real intense pain yesterday

> morning then all of a sudden the pain stoped and i

> have been pain free ever since- will have my eye

> surgery next wednesday then will hopefully be pain

> free for a while- Also my docs have finally agreed

> to

> do another brain scan so that we can see y i am

> having

> the dizzy spells - so i am feeling better about life

> right now MATT

>

> --- Marla mebramer@...> wrote:

>

> > Thanks Matt,

> >

> > But my hip pain is nothing compared to your pain

> > with those darn stones, are

> > they all out yet? I keep praying you can just pass

> > them all.

> >

> > Smiles,

> >

> > Marla

> >

> >

> >

> > _____

> >

> > From: Neurosarcoidosis

> > [mailto:Neurosarcoidosis ] On

> Behalf

> > Of Cohen

> > Sent: Tuesday, June 27, 2006 2:08 PM

> > To: Neurosarcoidosis

> > Subject: RE: Re: HIP pain

> >

> >

> >

> > Marla i am so sorry u are having a rough time- i

> > sincerly hope that u are able to find out what is

> > wrong and that you better soon. MATT

> >

> > --- Marla

> com> wrote:

> >

> > > Ruth,

> > >

> > > Thanks for sharing, I can lay on my right side,

> > the

> > > pain is on the left and

> > > I can't lay on my left. I can't lay on my back

> > > either, I have trouble

> > > breathing, and will start coughing, and won't

> stop

> > > until I get off my back.

> > > I think I will get it checked out though.

> > >

> > > I'm praying for a pain free day for us all.

> > >

> > > Marla

> > >

> > >

> > >

> > > _____

> > >

> > > From: Neurosarcoidosis@

> >

> > yahoogroups.com

> > > [mailto:Neurosarcoidosis@

> >

> > yahoogroups.com] On Behalf

> > > Of Ruth

> > > Sent: Sunday, June 25, 2006 8:24 PM

> > > To: Neurosarcoidosis@

> >

> > yahoogroups.com

> > > Subject: Re: HIP pain

> > >

> > >

> > >

> > > Marla,

> > >

> > > My hip pain was worse at night when I laid in on

> > my

> > > sides..right

> > > side puts pressure on the joint itself and left

> > side

> > > pulls the

> > > ligament. Dr explained that with the extra bone

> > > growth the ligament

> > > gets pulled over the joint, it just isn't long

> > > enough for for the

> > > extra bone. I was stuck laying on my back. I'd

> had

> > > this pain for 5-

> > > 6 years when one morning I stood up and could

> not

> > > put any weight on

> > > my right hip. I was panic thinking I'd broken my

> > hip

> > > rolling over

> > > so something. Primary care said I'd " sprained "

> my

> > > hip and sent me

> > > for an xray and got me into a ortho immediately.

> > The

> > > is the doc

> > > that finially explained about the sarc causing

> the

> > > extra bone

> > > growth. I had two injections the first worked

> > great

> > > the second not

> > > so much. The day may come when I will have to

> have

> > > something done

> > > but it is doing ok right now. Wonder if the

> > Remicade

> > > will help it

> > > the bone growth? I have my third infusion on

> > > Thursday. My

> > > headaches have come back in the last week and

> some

> > > joint pain but

> > > other than that I have been doing well. Compared

> > to

> > > what I had this

> > > I can deal with. It is nothing less than a

> miracle

> > > for me.

> > >

> > > If you can get your hip checked out I think you

> > > should....there may

> > > be something that can be done. The shots are not

> > > pleasant and they

> > > hurt like crazy...but only for about 30

> > seconds..the

> > > relief is

> > > immediate.

> > >

> > > Good Luck....

> > >

> > > Ruth

> > >

> > >

> > > >

> > > > I keep wondering if I should have my hip

> checked

> > > out, I have pain

> > > in it most

> > > > of the time, not just the neuro type pain, I

> > wake

> > > up at night with

> > > the hip

> > > > pain, I just keep saying it's just the sarcoid

> > and

> > > there's nothing

> > > anyone

> > > > can do about it, I don't know what do you all

> > > think?

> > > >

> > > > Marla

> > > >

> > > >

> > > >

> > > > _____

> > > >

> > > > From: Neurosarcoidosis@

> > >

> > > yahoogroups.com

> > > > [mailto:Neurosarcoidosis@

> > >

> > > yahoogroups.com] On Behalf Of Ruth

> > > > Sent: Saturday, June 24, 2006 5:37 PM

> > > > To: Neurosarcoidosis@

> > >

> > > yahoogroups.com

> > > > Subject: Re: Shoulder

> Pain...

> > > >

> > > >

> > > >

> > > > I don't have shoulder pain but for several

> years

> > I

> > > have had hip

> > > pain

> > > > which finially was explained in the last year

> as

>

=== message truncated ===

__________________________________________________