Re: [rls support] Questions

[Guest guest]

Hi Juli, I have rls for about 35 yrs.Since a few yrs I am treated for it, by a

neurologist.

A lot of GP's or even neurologists, don't know what it is, or how to treat it.

I had Sinemet, that helped me for quite some time, then it stopped working, now

I am on Permax, (pergolide) and it helps also.Most of the time that is.

Here in Holland we just started a RLS foundation, with 2 rlssers and 2

neurologists.

Have fun in our group, ask whatever you want to, Marleen

JuliPeck@... wrote:

> From: JuliPeck@...

>

> Dear Group,

> I am new here (no, duh), but have been suffering with RLS for 8 yrs.

Always

> thought it was something I just had to live with. Glad to learn that's not

> the case. Anyway, what's the best type of Dr. to see,neurologist, or someone

> else?

>

> BTW, all the bickering didn't bother me. Helps me get to know the different

> personalities in the group.

>

> Juli, 37, Ohio

>

> ------------------------------------------------------------------------

> We have a new web site!

> http://www.onelist.com

> Onelist: The leading provider of free email community services

> ------------------------------------------------------------------------

> This forum is for support only. The information posted to this List is for

support purposes

> and is not intended to replace the examination, diagnosis and treatment of a

licensed

> physician and no such claims are inferred.

[Guest guest]

Welcome , What you need is someone who is knowledgeable about rls.

The information you receive here and on the web sites will help you help

them. Ideally you should see a neurologist. But a caring informed gp is

better than an ....(you get the picture.) Good luck and keep us informed

about your treatment and its success (hopefully). Dr. Mom, 56, PA

[rls support] Questions

>From: JuliPeck@...

>

>Dear Group,

> I am new here (no, duh), but have been suffering with RLS for 8 yrs.

Always

>thought it was something I just had to live with. Glad to learn that's not

>the case. Anyway, what's the best type of Dr. to see,neurologist, or

someone

>else?

>

>BTW, all the bickering didn't bother me. Helps me get to know the

different

>personalities in the group.

>

>Juli, 37, Ohio

>

>------------------------------------------------------------------------

>We have a new web site!

>http://www.onelist.com

>Onelist: The leading provider of free email community services

>------------------------------------------------------------------------

>This forum is for support only. The information posted to this List is for

support purposes

>and is not intended to replace the examination, diagnosis and treatment of

a licensed

>physician and no such claims are inferred.

>

[Guest guest]

Thanks Juli and welcome. I think personalities are important as well. Makes the

whole cyber thing seem more human doncha think?

Sharifa 45 Vail, CO

[Guest guest]

Thanks Juli and welcome. I think personalities are important as well. Makes the

whole cyber thing seem more human doncha think?

Sharifa 45 Vail, CO

[Guest guest]

Thanks Juli and welcome. I think personalities are important as well. Makes the

whole cyber thing seem more human doncha think?

Sharifa 45 Vail, CO

[Guest guest]

In a message dated 3/31/99 6:07:39 PM !!!First Boot!!!, JuliPeck@...

writes:

<< Anyway, what's the best type of Dr. to see,neurologist, or someone

else? >>

Well, since RLS is a neurologic disease, you would think that seeing a

neurologist would be the place to start; however, I have seen the following

doctors: internal medicine doc, internal medicine sleep doc (two of them),

orthopedic doc, psychiatrist specializing in sleeping disorders, and I talked

with a neurologist.

Based on my personal experience, I got the best advice & treatment from the

psychiatrist who specializes in sleep disorders. Unfortunately, I saw him

last of all because of the obvious reluctance in seeing a psychiatrist.

But, I think what is most important of all is to just start somewhere and most

of all, educate yourself as much as possible about RLS and your symptoms and

potential treatments (meds, herbs, stress, vitamins, diet, lifestyle,

etc.)........then you can help educate your doc too!

OBTW, a " vein " doctor was not and will not be on my personal list of those to

see!

IMHO

RAINBOWPED@...

[Guest guest]

Hi Juli,

You asked:

" What's the best type of Dr. to see? " I personally feel a neurologist

is your best bet. I've been going to the same one ever since I

developed RLS. Many doctors don't even know what RLS is or how to treat

it.

Good luck

Meg, N.Y.