Re: RLS group, what has happened?

[Guest guest]

Debbie, et. al

Sorry to hear ya'll are leaving the group. I, too, came aboard when was

around. It also

was a time when the group was small and very cohesive. With any group,

organization, etc., as it

grows, so do opinions, politics, etc. Yes, there have been some posts I haven't

cared for, but

I still just hit the " Delete " key if I'm not interested. I'm not going to cut

off my only true

form of RLS support because someone didn't answer my questions or I didn't like

the way someone

answered one. I have had many questions. Some have been answered, some have

not. Hey, just

ask the question again. I guess that's just the school teacher in me--if you

don't get the

answer you want the first time, ask it again. In my business, you still may not

get it!!!

Lindy B. in Southeast Texas

Debbie A Rupp wrote:

>

>

> I have given this a lot of thought over the past couple of weeks. I have

> belonged to this group since was the moderator and passed the baton

> to Jodi. I have gotten a lot of information from this group in the past,

> and have come to think of some of the members as family.

> But this group has changed, not that change is a bad thing, but I have

> noticed a negativity in this group that hasn't been there before. I know

> we are all tired and that makes us grouchy, but there have been some mean

> spirited things said over the last month or two. I have come really

> close to unsubscribing myself on numerous occasions, perhaps I will yet.

> I too asked a question of the group a week ago, and got one response.

> The group was too involved with the Arthur deal to notice anyone else. I

> hope the newbies to this group will stay a bit longer and see if this

> currant trend will correct itself. There are some wonderful people on

> this group who are caring and knowledgeable. ( a Dr.? We could

> learn a lot from a martian!)

> Most of my support now comes from letters written off group to individual

> members. This list has gotten off (in my opinion only) the support issue.

> We seem to have lost our open mind and reject anything new. I missed

> the " Arthur " deal, I guess that started in a chat room, but I sure read

> all the posts about him. I deleted all of them because there is no room

> for negativity in my life, I am fighting this disease just like all the

> rest of you, and I don't want to get brought down, when I have to fight

> so hard just to smile at my kids and get through the day without the

> black cloud of doom hanging over my head. I'm sure I will get blasted

> for this, but that's okay, I feel I had to say something. I will truly

> miss the friends that I have made on this group, but it has become

> something I don't want to be involved with, I spend my morning scanning

> each email and deleting most of them. I hope the friends I have made on

> this group will continue to email me, I will miss you. To the newbies

> again, hang in there, this too shall pass...

> Peaceful days and nights to all.

>

> Debbie

> , Ca

> 42

>

> ___________________________________________________________________

> You don't need to buy Internet access to use free Internet e-mail.

> Get completely free e-mail from Juno at http://www.juno.com/getjuno.html

> or call Juno at (800) 654-JUNO [654-5866]

>

> ------------------------------------------------------------------------

> Ideas on how we can improve ONElist?

> http://www.onelist.com

> Check out the Suggestion Box feature on our new web site

> ------------------------------------------------------------------------

> This forum is for support only. The information posted to this List is for

support purposes

> and is not intended to replace the examination, diagnosis and treatment of a

licensed

> physician and no such claims are inferred.

[Guest guest]

Lindy, I too am a school teacher and I hear childish bickering all

day. I really don't want to hear it all evening, however, I have

learned so much from this group in a few days that I think I'll hang in

there. Tomy in Ohio State Buckeye country!!!

Lindy Bingham wrote:

>

>

>

> Debbie, et. al

> Sorry to hear ya'll are leaving the group. I, too, came aboard when was

around. It also

> was a time when the group was small and very cohesive. With any group,

organization, etc., as it

> grows, so do opinions, politics, etc. Yes, there have been some posts I

haven't cared for, but

> I still just hit the " Delete " key if I'm not interested. I'm not going to cut

off my only true

> form of RLS support because someone didn't answer my questions or I didn't

like the way someone

> answered one. I have had many questions. Some have been answered, some have

not. Hey, just

> ask the question again. I guess that's just the school teacher in me--if you

don't get the

> answer you want the first time, ask it again. In my business, you still may

not get it!!!

again>

>

> Lindy B. in Southeast Texas

>

> Debbie A Rupp wrote:

>

> >

> >

> > I have given this a lot of thought over the past couple of weeks. I have

> > belonged to this group since was the moderator and passed the baton

> > to Jodi. I have gotten a lot of information from this group in the past,

> > and have come to think of some of the members as family.

> > But this group has changed, not that change is a bad thing, but I have

> > noticed a negativity in this group that hasn't been there before. I know

> > we are all tired and that makes us grouchy, but there have been some mean

> > spirited things said over the last month or two. I have come really

> > close to unsubscribing myself on numerous occasions, perhaps I will yet.

> > I too asked a question of the group a week ago, and got one response.

> > The group was too involved with the Arthur deal to notice anyone else. I

> > hope the newbies to this group will stay a bit longer and see if this

> > currant trend will correct itself. There are some wonderful people on

> > this group who are caring and knowledgeable. ( a Dr.? We could

> > learn a lot from a martian!)

> > Most of my support now comes from letters written off group to individual

> > members. This list has gotten off (in my opinion only) the support issue.

> > We seem to have lost our open mind and reject anything new. I missed

> > the " Arthur " deal, I guess that started in a chat room, but I sure read

> > all the posts about him. I deleted all of them because there is no room

> > for negativity in my life, I am fighting this disease just like all the

> > rest of you, and I don't want to get brought down, when I have to fight

> > so hard just to smile at my kids and get through the day without the

> > black cloud of doom hanging over my head. I'm sure I will get blasted

> > for this, but that's okay, I feel I had to say something. I will truly

> > miss the friends that I have made on this group, but it has become

> > something I don't want to be involved with, I spend my morning scanning

> > each email and deleting most of them. I hope the friends I have made on

> > this group will continue to email me, I will miss you. To the newbies

> > again, hang in there, this too shall pass...

> > Peaceful days and nights to all.

> >

> > Debbie

> > , Ca

> > 42

> >

> > ___________________________________________________________________

> > You don't need to buy Internet access to use free Internet e-mail.

> > Get completely free e-mail from Juno at http://www.juno.com/getjuno.html

> > or call Juno at (800) 654-JUNO [654-5866]

> >

> > ------------------------------------------------------------------------

> > Ideas on how we can improve ONElist?

> > http://www.onelist.com

> > Check out the Suggestion Box feature on our new web site

> > ------------------------------------------------------------------------

> > This forum is for support only. The information posted to this List is for

support purposes

> > and is not intended to replace the examination, diagnosis and treatment of a

licensed

> > physician and no such claims are inferred.

>

> ------------------------------------------------------------------------

> Ta Da! Come see our new web site!

> http://www.onelist.com

> Onelist: A free email community service

> ------------------------------------------------------------------------

> This forum is for support only. The information posted to this List is for

support purposes

> and is not intended to replace the examination, diagnosis and treatment of a

licensed

> physician and no such claims are inferred.

[Guest guest]

In a message dated 4/1/99 12:24:28 AM !!!First Boot!!!, lindyb@...

writes:

<< I, too, came aboard when was around. It also

was a time when the group was small and very cohesive. >>

Yea, but remember the guy who was trying to " give " (read as sell) us all a

bunch of medicine that contained benedryl or something and then it was

reported that the guy committed suicide after the " group " slammed him. It was

all a hoax! It almost tore the group apart! Was that not the incidence that

did in as our leader?

Now, just perhaps, Dr. and other newbies can understand our skepticism.

Don't come on this list with the sole purpose of selling us something! It is

not right! It is not fair! It is unethical! It is just plain wrong!

IMHO

RAINBOWPED@...

[Guest guest]

Yup I remember that bloke and you're right. It upset us all letting

us think that because we didn't buy the stuff he was trying to sell " to help

out some people " he killed himself only for us to later find out it was a

nasty trick!! What a sick mind some people have.

I thought we'd received a message once in a while from or maybe I just

thought it was him. I wonder if he's through with school yet. I believe

he's up in Canada.

The group may have been small and cohesive but I vividly remember not only

the above charade but another one who peppered his messages with nasty

words. He too, was drummed out of the corps.

And life goes on...................with a bump here and a sag there.

CHEERS

Jeanne and Mr. Biggles in Poultney VT

[Guest guest]

, I forgot about the guy who supposedly committed suicide. Gosh, can I

blame my loss of

memory to the Klonipin or just plain old age? Probably both. I have to get off

the Klonipin.

Today, I was trying to collate some papers that came off the printer and I

became confused about

which papers went in what order. I scared myself. I have read that the Klon

does this but it

didn't dawn on me until today it might be it. I'm starting tonight to wean

myself off that

stuff tonight

Later on maybe I'll remember more about when was with us!!!!

Lindy B. in Southeast Texas

RAINBOWPED@... wrote:

> From: RAINBOWPED@...

>

> In a message dated 4/1/99 12:24:28 AM !!!First Boot!!!, lindyb@...

> writes:

>

> << I, too, came aboard when was around. It also

> was a time when the group was small and very cohesive. >>

>

> Yea, but remember the guy who was trying to " give " (read as sell) us all a

> bunch of medicine that contained benedryl or something and then it was

> reported that the guy committed suicide after the " group " slammed him. It was

> all a hoax! It almost tore the group apart! Was that not the incidence that

> did in as our leader?

> Now, just perhaps, Dr. and other newbies can understand our skepticism.

> Don't come on this list with the sole purpose of selling us something! It is

> not right! It is not fair! It is unethical! It is just plain wrong!

> IMHO

>

> RAINBOWPED@...

>

> ------------------------------------------------------------------------

> Is ONElist important to you? Has it changed your life?

> http://www.onelist.com

> Come visit our new web site and share with us your stories

> ------------------------------------------------------------------------

> This forum is for support only. The information posted to this List is for

support purposes

> and is not intended to replace the examination, diagnosis and treatment of a

licensed

> physician and no such claims are inferred.

[Guest guest]

<< Gosh, can I blame my loss of

memory to the Klonipin or just plain old age? Probably both. I have to get

off the Klonipin. >>

One must realize that Klonopin does NOTHING for the RLS itself.........it is

only a sleep-promoter. Hence, it helps you sleep IN SPITE of your RLS, if

you know what I mean.

RAINBOWPED@...

[Guest guest]

Group,

I share 's opinion about this group!! We have a great bunch of people

here, I am sorry I didn't know , I came aboard when Jodi took over, who

in my opinion has managed to keep us on an even keel through some pretty

rocky times.

Lets all forget our differences and concentrate on our the things that bind

us together...the problem of rls!!!!!

Lee