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n,

Thanks for the encouraging words I always love to hear about people that are

older that are doing great. Stay healthy so I can keep telling my girls how

great you are doing. Deb A

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  • 1 month later...
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n,

My posts are coming thru and so are Grandma Bev but it always seems like my

e-mail is full when I haven't been on here in a while and it really hasn't

been so I was wondering if I am getting all of my e-mail. Deb A

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n,

My posts are coming thru and so are Grandma Bev but it always seems like my

e-mail is full when I haven't been on here in a while and it really hasn't

been so I was wondering if I am getting all of my e-mail. Deb A

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n,

My posts are coming thru and so are Grandma Bev but it always seems like my

e-mail is full when I haven't been on here in a while and it really hasn't

been so I was wondering if I am getting all of my e-mail. Deb A

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Grandma Bev,

Oh, OK well it just seem like there was not much mail coming in. I am know

wiz at this machine either so if something like that happen I would know what

to do. Deb A

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I sent you a great big, technical post on all this--and it just disappeared

right as I

was finishing computerese 101. Get one of those Computers for Dummies Books,

and keep the telephone numbers of your internet provider, computer

manufacturer

and Microsoft or Macintosh or whatever on hand.

Sadly--I just loved that post!

n who just can't repeat the whole thing; I'm brain dead! Common among

us

computer geeks and geekesses!

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I sent you a great big, technical post on all this--and it just disappeared

right as I

was finishing computerese 101. Get one of those Computers for Dummies Books,

and keep the telephone numbers of your internet provider, computer

manufacturer

and Microsoft or Macintosh or whatever on hand.

Sadly--I just loved that post!

n who just can't repeat the whole thing; I'm brain dead! Common among

us

computer geeks and geekesses!

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Guest guest

I sent you a great big, technical post on all this--and it just disappeared

right as I

was finishing computerese 101. Get one of those Computers for Dummies Books,

and keep the telephone numbers of your internet provider, computer

manufacturer

and Microsoft or Macintosh or whatever on hand.

Sadly--I just loved that post!

n who just can't repeat the whole thing; I'm brain dead! Common among

us

computer geeks and geekesses!

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Dear DEB,

I wasn't getting all of mine for two (2) days. my computer web site master

found a hang-up on the internet that was causing all mine to

bounce(?).....anyway she just got back from visiting relatives in Ireland &

got right into it & fixed it. Sometimes folks get emails with virus' that

can mess us all up too----& we not even know it!!

I am really a dummy about these things.BUT I AM ADDICTED to this machine &

all of you folks.....I got n's too. I got just the test posts first,

then they came in a bit more. I am sure I lost all of Mondays mail

too............

LOVE & HUGS, grandmomBEV

Re: DEB

n,

My posts are coming thru and so are Grandma Bev but it always seems like my

e-mail is full when I haven't been on here in a while and it really hasn't

been so I was wondering if I am getting all of my e-mail. Deb A

PLEASE do not post religious emails to the list.

-------------------------------------------

The opinions and information exchanged on this list should

IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

--------------------------------------------------

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Dear DEB,

I wasn't getting all of mine for two (2) days. my computer web site master

found a hang-up on the internet that was causing all mine to

bounce(?).....anyway she just got back from visiting relatives in Ireland &

got right into it & fixed it. Sometimes folks get emails with virus' that

can mess us all up too----& we not even know it!!

I am really a dummy about these things.BUT I AM ADDICTED to this machine &

all of you folks.....I got n's too. I got just the test posts first,

then they came in a bit more. I am sure I lost all of Mondays mail

too............

LOVE & HUGS, grandmomBEV

Re: DEB

n,

My posts are coming thru and so are Grandma Bev but it always seems like my

e-mail is full when I haven't been on here in a while and it really hasn't

been so I was wondering if I am getting all of my e-mail. Deb A

PLEASE do not post religious emails to the list.

-------------------------------------------

The opinions and information exchanged on this list should

IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

--------------------------------------------------

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Dear DEB,

I wasn't getting all of mine for two (2) days. my computer web site master

found a hang-up on the internet that was causing all mine to

bounce(?).....anyway she just got back from visiting relatives in Ireland &

got right into it & fixed it. Sometimes folks get emails with virus' that

can mess us all up too----& we not even know it!!

I am really a dummy about these things.BUT I AM ADDICTED to this machine &

all of you folks.....I got n's too. I got just the test posts first,

then they came in a bit more. I am sure I lost all of Mondays mail

too............

LOVE & HUGS, grandmomBEV

Re: DEB

n,

My posts are coming thru and so are Grandma Bev but it always seems like my

e-mail is full when I haven't been on here in a while and it really hasn't

been so I was wondering if I am getting all of my e-mail. Deb A

PLEASE do not post religious emails to the list.

-------------------------------------------

The opinions and information exchanged on this list should

IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

--------------------------------------------------

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  • 1 year later...
Guest guest

background slowing which are indicative of a metabolic disorder.

Deb, Where did you get this info from? This is interesting, I haven't heard that slow brainwaves are an indication of a metabolic disorder. Chelsea's EEG showed diffuse slowing in the back right region of her brain. This is where her spikes originate from. I do know that slowed brain waves can produce a difficult to control epilepsy, which has been our experience with Chelsea. Although, she is doing very well at this time!

How are you doing?

e, Chelsea's mom(nonspecific mito)

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background slowing which are indicative of a metabolic disorder.

Deb, Where did you get this info from? This is interesting, I haven't heard that slow brainwaves are an indication of a metabolic disorder. Chelsea's EEG showed diffuse slowing in the back right region of her brain. This is where her spikes originate from. I do know that slowed brain waves can produce a difficult to control epilepsy, which has been our experience with Chelsea. Although, she is doing very well at this time!

How are you doing?

e, Chelsea's mom(nonspecific mito)

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Guest guest

background slowing which are indicative of a metabolic disorder.

Deb, Where did you get this info from? This is interesting, I haven't heard that slow brainwaves are an indication of a metabolic disorder. Chelsea's EEG showed diffuse slowing in the back right region of her brain. This is where her spikes originate from. I do know that slowed brain waves can produce a difficult to control epilepsy, which has been our experience with Chelsea. Although, she is doing very well at this time!

How are you doing?

e, Chelsea's mom(nonspecific mito)

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Deb, Where did you get this info from? This is interesting, I haven't heard that slow brainwaves are an indication of a metabolic disorder.

I have read it here and there but it also stated this on one of our EEG reports...sorry I can't be much mor ehelp,

deb...mom to three great adopted kids... (07.04.96-05.26.03) with Mitochondrial Disease, Gaige age 5 with High Functioning Autism & dysfluency and Bliss age 2 with very very mild Cerebral Palsy.www.HeartLiftersGallery.com

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Deb, Where did you get this info from? This is interesting, I haven't heard that slow brainwaves are an indication of a metabolic disorder.

I have read it here and there but it also stated this on one of our EEG reports...sorry I can't be much mor ehelp,

deb...mom to three great adopted kids... (07.04.96-05.26.03) with Mitochondrial Disease, Gaige age 5 with High Functioning Autism & dysfluency and Bliss age 2 with very very mild Cerebral Palsy.www.HeartLiftersGallery.com

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Deb, Where did you get this info from? This is interesting, I haven't heard that slow brainwaves are an indication of a metabolic disorder.

I have read it here and there but it also stated this on one of our EEG reports...sorry I can't be much mor ehelp,

deb...mom to three great adopted kids... (07.04.96-05.26.03) with Mitochondrial Disease, Gaige age 5 with High Functioning Autism & dysfluency and Bliss age 2 with very very mild Cerebral Palsy.www.HeartLiftersGallery.com

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  • 1 month later...
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In a message dated 6/3/2004 7:04:21 PM Pacific Standard Time, mgal@...

writes:

> 33. Most annoying thing people ask me? Are You Her Mother or GrandMother!!

> (For Our Only Child Is 11

>

Hi Deb. I so relate here. I am raising my granddaughter. Because her

natural parents are unable to, they gave her up shortly after birth. Because

EVERY

child deserves a Mom and Dad, we are Mom and Dad to . She knows who

gave birth to her (the lady who never calls or comes and every few years asks

for a picture) and who her birth father is (he rarely shows his face and is

living under a tree in Oregon, according to him, much happier there.) He and

ia both are bipolar and she is also schizophrenic. did not escape

the

bipolar disorder, and is also ADHD. We work very hard for her to have a very

normal childhood, I am sure you do too. So, my poor baby deserves some

parents who love her to pieces and stand up and say here I am, not going to run

away. We are those parents, and like you, are often mistaken ;-) for

grandparents. says, NO, with a big grin, they are my Mom and Dad. God

Bless her,

and God Bless your child, too! Hugs, Marilyn

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  • 1 year later...

Hi , Joe is doing pretty good , his abdominal mets were removed with his colon

resection.

His last chemo was june 6 , 2005 , he goes for his first post chemo check up

with the oncologist on the 29th of this month.

His main issues he is having is with the neuropathy from chemo which he is going

to the neurologist on Wednesday for.

He has been mentioning some twinges in left side the last few days , now then it

could be because he is working to hard, that he has a stomach ache or thousands

of other reasons, but anytime any part of his stomach hurts we wonder is it the

cancer come back??

How are you doing ? Are you still on chemo or done yet?/

Take care

Deb

asorr55555@... wrote:

How is Joe doing. I am interested in knowing how the abdominal met issue

went as I may have a problem in that area.

Thanks

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  • 4 weeks later...

In a message dated 9/9/2005 10:08:55 PM Eastern Standard Time,

debbied31@... writes:

awwwww txs Ingrid, mostly I Feel elated that she is home, yet at other

times I am scared that she is home , tonight she was hallucinating again

telling

my 6yrold son to throw away the bags on the couch ( they are

pillows)

First off let me say that Ben is old beyond years , teachers have said he is

SUCHH a serious little boy , he knows how to have fun dont get me wrong , he

is just way mature for his age , so when for instance we went to Chuckie

Cheese , and Chuckie was getting the kids to come up and do a little dance with

him for free tokens, Ben looked at him and rolled his eyes and walked away ,

like to say " Please thats for babies " lol.

Anyhow Ben came upstairs with one of his more serious facial expressions and

said mom grandma just called the pillow bags , and said to throw them away.

I told him that grandma is sick right now and very tired and so is her

brain , so she may say things that dont make sense, and as long as she isnt

hurting anyone just to say ok , or I dont know , or tell her the truth that

its

not bags their pillows, which ever he was more comfortable with.

I hope and pray that the hallucinations can be fixed, seems the longer the

day goes on the worse they get , if they are like I think from lack of sleep ,

that would make sense , but who knows.

I do know I am tired its been a LOOOOOOOOOOOOOOOOOONG day ,

God Bless

Deb

Hey, Deb... take some " Deb-time " ....NOW!!! Glad Mom is home!!!

Lots of hugs and prayers, Donelle

Caregiver to Glenn

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In a message dated 9/9/2005 10:08:55 PM Eastern Standard Time,

debbied31@... writes:

awwwww txs Ingrid, mostly I Feel elated that she is home, yet at other

times I am scared that she is home , tonight she was hallucinating again

telling

my 6yrold son to throw away the bags on the couch ( they are

pillows)

First off let me say that Ben is old beyond years , teachers have said he is

SUCHH a serious little boy , he knows how to have fun dont get me wrong , he

is just way mature for his age , so when for instance we went to Chuckie

Cheese , and Chuckie was getting the kids to come up and do a little dance with

him for free tokens, Ben looked at him and rolled his eyes and walked away ,

like to say " Please thats for babies " lol.

Anyhow Ben came upstairs with one of his more serious facial expressions and

said mom grandma just called the pillow bags , and said to throw them away.

I told him that grandma is sick right now and very tired and so is her

brain , so she may say things that dont make sense, and as long as she isnt

hurting anyone just to say ok , or I dont know , or tell her the truth that

its

not bags their pillows, which ever he was more comfortable with.

I hope and pray that the hallucinations can be fixed, seems the longer the

day goes on the worse they get , if they are like I think from lack of sleep ,

that would make sense , but who knows.

I do know I am tired its been a LOOOOOOOOOOOOOOOOOONG day ,

God Bless

Deb

Hey, Deb... take some " Deb-time " ....NOW!!! Glad Mom is home!!!

Lots of hugs and prayers, Donelle

Caregiver to Glenn

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