Guest guest Posted May 4, 2002 Report Share Posted May 4, 2002 Mamie, This is wonderful that Jim is doing so well! I believe you have to do what is best for you. It is always wonderful to hear good news! God bless, Belinda > Dear Friends, > > While I am learning what MSA/SDS has in store for my husband Jim, at least at > the present time we have an encouraging situation. At his neuro appt. > yesterday, the doc was very pleased at how well Jim is doing now and said > come back in six months rather than three as the last two times. Sinemet > seems to have helped greatly--undergirded with lots of prayer! The neuro > also agreed with the gastroenterologist's assessment that Jim's PEG tube > should come out--he has been eating for a long while now. That appointment > is set for next Tuesday. > > The upturn began in Jan., and in mid-Feb. Jim started going back to work for > half a day, driving himself again for the first time in six months. His > stamina is low, and half a day at work really tires him out, but we're taking > everything positive we can get! Earlier, I had posed the question here about > whether the tube might be taken out and Bill suggested not to do it. We know > we may have to face inserting the tube at some time down the road, but for now > this seems the right thing to do. Is this sneaky or what-- telling all of > you about this while Bill is away at the conference!?! Yeah, I know, he will > still probably read this, and any comments will still be welcome. > > Anyway, that's our story for now. > > Blessings, > Mamie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2002 Report Share Posted May 4, 2002 Mamie, This is wonderful that Jim is doing so well! I believe you have to do what is best for you. It is always wonderful to hear good news! God bless, Belinda > Dear Friends, > > While I am learning what MSA/SDS has in store for my husband Jim, at least at > the present time we have an encouraging situation. At his neuro appt. > yesterday, the doc was very pleased at how well Jim is doing now and said > come back in six months rather than three as the last two times. Sinemet > seems to have helped greatly--undergirded with lots of prayer! The neuro > also agreed with the gastroenterologist's assessment that Jim's PEG tube > should come out--he has been eating for a long while now. That appointment > is set for next Tuesday. > > The upturn began in Jan., and in mid-Feb. Jim started going back to work for > half a day, driving himself again for the first time in six months. His > stamina is low, and half a day at work really tires him out, but we're taking > everything positive we can get! Earlier, I had posed the question here about > whether the tube might be taken out and Bill suggested not to do it. We know > we may have to face inserting the tube at some time down the road, but for now > this seems the right thing to do. Is this sneaky or what-- telling all of > you about this while Bill is away at the conference!?! Yeah, I know, he will > still probably read this, and any comments will still be welcome. > > Anyway, that's our story for now. > > Blessings, > Mamie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2002 Report Share Posted May 4, 2002 Mamie, This is wonderful that Jim is doing so well! I believe you have to do what is best for you. It is always wonderful to hear good news! God bless, Belinda > Dear Friends, > > While I am learning what MSA/SDS has in store for my husband Jim, at least at > the present time we have an encouraging situation. At his neuro appt. > yesterday, the doc was very pleased at how well Jim is doing now and said > come back in six months rather than three as the last two times. Sinemet > seems to have helped greatly--undergirded with lots of prayer! The neuro > also agreed with the gastroenterologist's assessment that Jim's PEG tube > should come out--he has been eating for a long while now. That appointment > is set for next Tuesday. > > The upturn began in Jan., and in mid-Feb. Jim started going back to work for > half a day, driving himself again for the first time in six months. His > stamina is low, and half a day at work really tires him out, but we're taking > everything positive we can get! Earlier, I had posed the question here about > whether the tube might be taken out and Bill suggested not to do it. We know > we may have to face inserting the tube at some time down the road, but for now > this seems the right thing to do. Is this sneaky or what-- telling all of > you about this while Bill is away at the conference!?! Yeah, I know, he will > still probably read this, and any comments will still be welcome. > > Anyway, that's our story for now. > > Blessings, > Mamie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2002 Report Share Posted May 24, 2002 Elliot did not culture anything except H. Influenza......no PA. This is his second culture of H. influenza but the Doctor says even though it is common in CF kids they have never linked it to anything serious. Any thoughts?? We woke up to snow on the ground this morning in Colorado too. Mom to Elliot 15mths wcf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2002 Report Share Posted May 24, 2002 , I'm sorry you are having pain, but am glad the doc is listening to you. And that things are going well with your ss and stuff. I hope and pray you feel better soon and that everything goes your way with the military situation too. Best wishes and many, many {{{HUGZ}}} --- gumbo_yaya_69 gumbo_yaya_69@...> wrote: > Hi Everyone, > I hope this finds you in a painless day. > Unfortunately I have been > suffering for a week now but the good news is my > doctor has finally > let me be the judge of my pain management. He was > extremely upset > with the ER Dr. that saw me last Friday (although he > was upset with > me also for drinking). I went back to the ER Monday > @ 4am & the CT > scan showed my pseudocyst has grown larger. When I > saw him Tuesday he > marked in my chart that if I request pain meds after > office hours, > the Dr. on call is to prescribe enough for 2 days. > He said he'd > rather see me in the office or he will make a > housecall as he lives > only 6 blocks from me than for me to be in the > hospital. He said he > thinks I'm a good enough judge to tell if I need > fluids or not. > The other good news, my worker from SS has sent in > a 'favorable' > recommendation. I should hear something within the > next two weeks. > Along the same lines, the military may be owing me a > pension also. > Seems that on my last 2 physicals, my amalase & > lypase levels were > elevated and the abdominal xray that was taken when > I had female > problems showed my pancreas to be iin the beginning > stages of > disease. > I feel like a weight has been lifted off my > shoulders. Maybe I > won't have as many flare-ups since my stress level > has been lowered a > considerable amount. Thanks to everyone who has > given me advice & > help. I'm keeping everyone in my prayers. > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2002 Report Share Posted May 24, 2002 Dear , Congratulations Ma'am, way to go!! I'm so pleased for you that you got that " Nod " we all shamefully have to hunger so desperately for - but we do, and you got it, and that makes me SO happy! I also wanted to make a note that I have one of the same hopes that you do - that it might actually translate into less attacks. I know that for me, stress and CP go hand-in-hand, and money (or lack thereof) and stress go hand-in-hand. It's an obvious trigger for me, that's for sure. So while a few hundred bucks a month won't ever make me rich, hopefully the assistance can help me buy a little bit of heath for a little while. I surely do hope so -in fact, I plan on it. I've worried and fussed over money too darn much of my life, and it hasn't once been of any benefit that I can see. But I'll be grateful to help me survive in the world and pay for most necessities. Peace & Good Fortune, ! Terry in KC << Hi Everyone, I hope this finds you in a painless day. Unfortunately I have been suffering for a week now but the good news is my doctor has finally let me be the judge of my pain management. He was extremely upset with the ER Dr. that saw me last Friday (although he was upset with me also for drinking). I went back to the ER Monday @ 4am & the CT scan showed my pseudocyst has grown larger. When I saw him Tuesday he marked in my chart that if I request pain meds after office hours, the Dr. on call is to prescribe enough for 2 days. He said he'd rather see me in the office or he will make a housecall as he lives only 6 blocks from me than for me to be in the hospital. He said he thinks I'm a good enough judge to tell if I need fluids or not. The other good news, my worker from SS has sent in a 'favorable' recommendation. I should hear something within the next two weeks. Along the same lines, the military may be owing me a pension also. Seems that on my last 2 physicals, my amalase & lypase levels were elevated and the abdominal xray that was taken when I had female problems showed my pancreas to be iin the beginning stages of disease. I feel like a weight has been lifted off my shoulders. Maybe I won't have as many flare-ups since my stress level has been lowered a considerable amount. Thanks to everyone who has given me advice & help. I'm keeping everyone in my prayers. >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2003 Report Share Posted August 21, 2003 Hi Group!!! I just heard from the doctors office that my surgery was approved for September 17th!!!!! Yeah!!!!! Lord, I am soooooo happy!!!...not to mention nervous, scared, excited...........sherri Hello, I am back Well I have been offline for almost a month now, due to computer problems but am back. My surgery is not until Oct. 13th, but it is coming... so I am glad to be able to get info from you all. Dawn B. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2003 Report Share Posted August 21, 2003 Hi Group!!! I just heard from the doctors office that my surgery was approved for September 17th!!!!! Yeah!!!!! Lord, I am soooooo happy!!!...not to mention nervous, scared, excited...........sherri Hello, I am back Well I have been offline for almost a month now, due to computer problems but am back. My surgery is not until Oct. 13th, but it is coming... so I am glad to be able to get info from you all. Dawn B. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2003 Report Share Posted August 21, 2003 Hi Group!!! I just heard from the doctors office that my surgery was approved for September 17th!!!!! Yeah!!!!! Lord, I am soooooo happy!!!...not to mention nervous, scared, excited...........sherri Hello, I am back Well I have been offline for almost a month now, due to computer problems but am back. My surgery is not until Oct. 13th, but it is coming... so I am glad to be able to get info from you all. Dawn B. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2003 Report Share Posted August 21, 2003 wooohooo!!!! congrats, any ?s for us, your captive audience? lori h. > Hi Group!!! I just heard from the doctors office that my surgery was approved for September 17th!!!!! Yeah!!!!! Lord, I am soooooo happy!!!...not to mention nervous, scared, excited...........sherri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2003 Report Share Posted August 21, 2003 wooohooo!!!! congrats, any ?s for us, your captive audience? lori h. > Hi Group!!! I just heard from the doctors office that my surgery was approved for September 17th!!!!! Yeah!!!!! Lord, I am soooooo happy!!!...not to mention nervous, scared, excited...........sherri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2003 Report Share Posted August 21, 2003 wooohooo!!!! congrats, any ?s for us, your captive audience? lori h. > Hi Group!!! I just heard from the doctors office that my surgery was approved for September 17th!!!!! Yeah!!!!! Lord, I am soooooo happy!!!...not to mention nervous, scared, excited...........sherri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2003 Report Share Posted August 21, 2003 Thanks Lori!!!!! What sorts of clear liquids did you guys drink? I want to get some popsicles, but I am not big on broth and DETEST jello...any hints? sherri Re: GOOD NEWS wooohooo!!!! congrats, any ?s for us, your captive audience? lori h. > Hi Group!!! I just heard from the doctors office that my surgery was approved for September 17th!!!!! Yeah!!!!! Lord, I am soooooo happy!!!...not to mention nervous, scared, excited...........sherri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2003 Report Share Posted August 21, 2003 Thanks Lori!!!!! What sorts of clear liquids did you guys drink? I want to get some popsicles, but I am not big on broth and DETEST jello...any hints? sherri Re: GOOD NEWS wooohooo!!!! congrats, any ?s for us, your captive audience? lori h. > Hi Group!!! I just heard from the doctors office that my surgery was approved for September 17th!!!!! Yeah!!!!! Lord, I am soooooo happy!!!...not to mention nervous, scared, excited...........sherri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2003 Report Share Posted August 21, 2003 Thanks Lori!!!!! What sorts of clear liquids did you guys drink? I want to get some popsicles, but I am not big on broth and DETEST jello...any hints? sherri Re: GOOD NEWS wooohooo!!!! congrats, any ?s for us, your captive audience? lori h. > Hi Group!!! I just heard from the doctors office that my surgery was approved for September 17th!!!!! Yeah!!!!! Lord, I am soooooo happy!!!...not to mention nervous, scared, excited...........sherri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2003 Report Share Posted August 24, 2003 Wow wee Shari, that will come quickly. Good luck to you and I will keep you in my thoughts. Take Care, Open RYN 4-7-03 351/281/??? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2003 Report Share Posted August 24, 2003 Wow wee Shari, that will come quickly. Good luck to you and I will keep you in my thoughts. Take Care, Open RYN 4-7-03 351/281/??? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2003 Report Share Posted September 26, 2003 That is great !!! By the way did you get my email at your yahoo address? A. B. LAP RNY 3/22/03 Dr. Steve Weinstein, MD. Mobile, Alabama BMI 65/54 386/303-83 LBS. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2003 Report Share Posted September 26, 2003 Congratulations , your on your way now. I wish you lots of luck. h Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2003 Report Share Posted September 26, 2003 Congratulations , your on your way now. I wish you lots of luck. h Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2003 Report Share Posted September 28, 2003 hope you get a swift date, hun! lori h. > Hi all.... > I went to the dr. today and my next step is to have pre-op blood > work and a psych. eval. I have to do this before he will perform > the surgury. > WOW!! I cant beleive it...all Im waiting on now is a DATE!!!! > > Just thought I would share......... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2003 Report Share Posted September 28, 2003 hope you get a swift date, hun! lori h. > Hi all.... > I went to the dr. today and my next step is to have pre-op blood > work and a psych. eval. I have to do this before he will perform > the surgury. > WOW!! I cant beleive it...all Im waiting on now is a DATE!!!! > > Just thought I would share......... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2003 Report Share Posted September 28, 2003 hope you get a swift date, hun! lori h. > Hi all.... > I went to the dr. today and my next step is to have pre-op blood > work and a psych. eval. I have to do this before he will perform > the surgury. > WOW!! I cant beleive it...all Im waiting on now is a DATE!!!! > > Just thought I would share......... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2004 Report Share Posted August 1, 2004 Saw the Doctor on Friday. He told me that he'd be happy if all his diabetics had bg numbers like I do. (I have gained 10 pounds though.) But he said he had nothing bad to say. (I've never been complimented by a doctor on my health befoe!!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2006 Report Share Posted June 8, 2006 YEAAAAAAAAAA!!!!!!!!! Seriously Ruth I am so glad it's working, and your doing great. Keep smiling and your in my prayers that things will continue to go well. Take Care,,,ConnieRuth wrote: Hi Everyone...I have been having a heck of a time reading and posting messages...so I have missed the Chats.....I'll reset my computer tomorrow and see if that helps. GOOD NEWS! My Eye doc today said there is not longer ANY-AS IN NO- INFLAMMITORY CELLS IN MY EYES! I've been down to a trace before after the injections...buy never ~0~ So the Remicade is doing it job....I AM SO BLESSED!! I just so much want this drug to be available to all those that can need it. I have spoken with both my Rheumitologist and now with the Eye doc about documenting these results not only for the insurance benifets but so that when they encounter the next patient - Remicade will be available. ( It took my Rheumatologist months to come on board and prescribe Remicade!) I am afraid to get my hopes up too much as I know there are hurdles and side effect to cross!! Has anyone heard any more from Kim? I have been sending her notes and prayers but was wondering. TTFN Ruth __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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