Guest guest Posted April 30, 1999 Report Share Posted April 30, 1999 Use any search engine. Just type in Fibromyalgia. Also news:alt.med.fibromyalgia. Marilee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 1999 Report Share Posted April 30, 1999 Use any search engine. Just type in Fibromyalgia. Also news:alt.med.fibromyalgia. Marilee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 1999 Report Share Posted April 30, 1999 Use any search engine. Just type in Fibromyalgia. Also news:alt.med.fibromyalgia. Marilee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 1999 Report Share Posted April 30, 1999 I have Fibromyalgia, as do many others in the group. I understand that it is connected with .......guess what?........not getting proper sleep and depression. I was put on Zoloft for mine. Go figure. They will usually try to find tenderness in the checkpoints indicated for this disorder. As far as I know, this is the only " test " for Fibromyalgia. It is one of those things that some people do not believe even exist, like chronic fatigue syndrome. Actually, I was a little skeptical about mine being a bona fide disorder until I met a woman who was terribly crippled with it. She walked with a cane and said that at one point her son had to stop on his way home from work to feed her. She takes 11 medications. I thank the Lord mine is not as bad as hers. Connie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 1999 Report Share Posted April 30, 1999 I have Fibromyalgia, as do many others in the group. I understand that it is connected with .......guess what?........not getting proper sleep and depression. I was put on Zoloft for mine. Go figure. They will usually try to find tenderness in the checkpoints indicated for this disorder. As far as I know, this is the only " test " for Fibromyalgia. It is one of those things that some people do not believe even exist, like chronic fatigue syndrome. Actually, I was a little skeptical about mine being a bona fide disorder until I met a woman who was terribly crippled with it. She walked with a cane and said that at one point her son had to stop on his way home from work to feed her. She takes 11 medications. I thank the Lord mine is not as bad as hers. Connie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 1999 Report Share Posted April 30, 1999 I was diagnosed with Fibromyalgia, before I was diagnosed with RLS. The course of treatment for me was Prozac, and rest. I really think I was sleep deprived. An endocrinologist is I think the best Doc to diagnosis Fibromyalgia. I wish you good luck. Sweet dreams, Elaine, Malibu Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 1999 Report Share Posted April 30, 1999 I was diagnosed with Fibromyalgia, before I was diagnosed with RLS. The course of treatment for me was Prozac, and rest. I really think I was sleep deprived. An endocrinologist is I think the best Doc to diagnosis Fibromyalgia. I wish you good luck. Sweet dreams, Elaine, Malibu Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 1999 Report Share Posted April 30, 1999 Aren't there some folks in this group that have fibromyalgia ? I'm sure I remember some were around when I first joined. I just can't remember who it was (or who THEY were). If you're here perhaps you could speak up and share some of your knowledge. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 1999 Report Share Posted April 30, 1999 Lynne, The Fibromyalgia Network is a good site, at http://www.fmnetnews.com/, and try http://www.sover.net/~devstar/ Yahoo lists a bunch, which is where I got these 2 from. They are the only 2 I've been to. I don't know if I have fibromyalgia or not, but from what people in the group have said after I listed my symptoms, and from what I gathered from the above sites, it sounds as if I do have it. I have a doctor's appt. May 14th, so we will see what he says! Sleep tight everyone! _________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 1999 Report Share Posted April 30, 1999 Lynne, The Fibromyalgia Network is a good site, at http://www.fmnetnews.com/, and try http://www.sover.net/~devstar/ Yahoo lists a bunch, which is where I got these 2 from. They are the only 2 I've been to. I don't know if I have fibromyalgia or not, but from what people in the group have said after I listed my symptoms, and from what I gathered from the above sites, it sounds as if I do have it. I have a doctor's appt. May 14th, so we will see what he says! Sleep tight everyone! _________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 1999 Report Share Posted May 1, 1999 A great site to check out just about anything is http://askjeeves.com. It lets you access multi search engines. I looked up fybromyalgia - also chronic fatigue syndrome- I know someone who has both, as well as rls. Her doctor told her that any one of the three conditions can result in the others kicking in - oh goody, more fun in the future! ne, 59, Lawrenceville, NJ --- MetaMom123@... wrote: > From: MetaMom123@... > > I have Fibromyalgia, as do many others in the group. > > I understand that it is connected with .......guess > what?........not getting > proper sleep and depression. I was put on Zoloft > for mine. Go figure. > > They will usually try to find tenderness in the > checkpoints indicated for > this disorder. As far as I know, this is the only > " test " for Fibromyalgia. > It is one of those things that some people do not > believe even exist, like > chronic fatigue syndrome. Actually, I was a little > skeptical about mine > being a bona fide disorder until I met a woman who > was terribly crippled with > it. She walked with a cane and said that at one > point her son had to stop on > his way home from work to feed her. She takes 11 > medications. > > I thank the Lord mine is not as bad as hers. > > Connie > > ------------------------------------------------------------------------ > Looking to expand your world? > http://www.onelist.com > ONElist has over 130,000 e-mail communities from > which to chose! > ------------------------------------------------------------------------ > This forum is for support only. The information > posted to this List is for support purposes > and is not intended to replace the examination, > diagnosis and treatment of a licensed > physician and no such claims are inferred. > _________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 1999 Report Share Posted May 1, 1999 A great site to check out just about anything is http://askjeeves.com. It lets you access multi search engines. I looked up fybromyalgia - also chronic fatigue syndrome- I know someone who has both, as well as rls. Her doctor told her that any one of the three conditions can result in the others kicking in - oh goody, more fun in the future! ne, 59, Lawrenceville, NJ --- MetaMom123@... wrote: > From: MetaMom123@... > > I have Fibromyalgia, as do many others in the group. > > I understand that it is connected with .......guess > what?........not getting > proper sleep and depression. I was put on Zoloft > for mine. Go figure. > > They will usually try to find tenderness in the > checkpoints indicated for > this disorder. As far as I know, this is the only > " test " for Fibromyalgia. > It is one of those things that some people do not > believe even exist, like > chronic fatigue syndrome. Actually, I was a little > skeptical about mine > being a bona fide disorder until I met a woman who > was terribly crippled with > it. She walked with a cane and said that at one > point her son had to stop on > his way home from work to feed her. She takes 11 > medications. > > I thank the Lord mine is not as bad as hers. > > Connie > > ------------------------------------------------------------------------ > Looking to expand your world? > http://www.onelist.com > ONElist has over 130,000 e-mail communities from > which to chose! > ------------------------------------------------------------------------ > This forum is for support only. The information > posted to this List is for support purposes > and is not intended to replace the examination, > diagnosis and treatment of a licensed > physician and no such claims are inferred. > _________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 1999 Report Share Posted May 1, 1999 I also think that stress has a lot to do with Fibromyalgia too. Cheers!! Jeanne and Mr. Biggles in Poultney VT Ah, what a beeootiful morning!!!!!!!!!!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 1999 Report Share Posted May 1, 1999 I also think that stress has a lot to do with Fibromyalgia too. Cheers!! Jeanne and Mr. Biggles in Poultney VT Ah, what a beeootiful morning!!!!!!!!!!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2001 Report Share Posted April 11, 2001 A Mental Health Issue???? Does fibro make you nuts??? My regular doctor said yesterday he thinks its lupus, have a dermy appointment next wednesday. Last time I went to dermy he gave me Clobetasol, its an ointment. Worked on a lot of the lesions but not all. We'll do biopsy next wednesday. Thanks....Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2001 Report Share Posted April 11, 2001 A Mental Health Issue???? Does fibro make you nuts??? My regular doctor said yesterday he thinks its lupus, have a dermy appointment next wednesday. Last time I went to dermy he gave me Clobetasol, its an ointment. Worked on a lot of the lesions but not all. We'll do biopsy next wednesday. Thanks....Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2001 Report Share Posted April 11, 2001 Thanks Marilyn, I know how you feel, bed is where I've been for the last couple months. You take care and hope to talk to you soon....Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2001 Report Share Posted April 11, 2001 Thanks Marilyn, I know how you feel, bed is where I've been for the last couple months. You take care and hope to talk to you soon....Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2001 Report Share Posted April 11, 2001 Thanks Marilyn, I know how you feel, bed is where I've been for the last couple months. You take care and hope to talk to you soon....Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2001 Report Share Posted April 11, 2001 Actually, Sue, the fibro does make me nuts because the pain gets so bad that I can't stand it. These doctors just don't know about fibro, I have some who say it's in my head, others say it's a form of rhumatism. There sure are a lot of people who have it. Wish there was something that would help. I can't take a lot of pain relievers so I just go to bed. That's where I plan to spend most of today. Marilyn A Mental Health Issue???? Does fibro make you nuts??? My regular doctor said > yesterday he thinks its lupus, have a dermy appointment next wednesday. Last > time I went to dermy he gave me Clobetasol, its an ointment. Worked on a lot > of the lesions but not all. We'll do biopsy next wednesday. Thanks....Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2001 Report Share Posted April 11, 2001 Actually, Sue, the fibro does make me nuts because the pain gets so bad that I can't stand it. These doctors just don't know about fibro, I have some who say it's in my head, others say it's a form of rhumatism. There sure are a lot of people who have it. Wish there was something that would help. I can't take a lot of pain relievers so I just go to bed. That's where I plan to spend most of today. Marilyn A Mental Health Issue???? Does fibro make you nuts??? My regular doctor said > yesterday he thinks its lupus, have a dermy appointment next wednesday. Last > time I went to dermy he gave me Clobetasol, its an ointment. Worked on a lot > of the lesions but not all. We'll do biopsy next wednesday. Thanks....Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2001 Report Share Posted April 11, 2001 Actually, Sue, the fibro does make me nuts because the pain gets so bad that I can't stand it. These doctors just don't know about fibro, I have some who say it's in my head, others say it's a form of rhumatism. There sure are a lot of people who have it. Wish there was something that would help. I can't take a lot of pain relievers so I just go to bed. That's where I plan to spend most of today. Marilyn A Mental Health Issue???? Does fibro make you nuts??? My regular doctor said > yesterday he thinks its lupus, have a dermy appointment next wednesday. Last > time I went to dermy he gave me Clobetasol, its an ointment. Worked on a lot > of the lesions but not all. We'll do biopsy next wednesday. Thanks....Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2001 Report Share Posted April 11, 2001 Hi Sue :-) So sorry to hear that Mr. Fibro (as our dear Heidi calls it :-) is paying you a visit. Have a look at www.immed.org and specifically, http://www.immed.org/publications/fatigue_illness/pub4.html There, it expalins how fibromyalgia might be caused by a mycoplasma infection. I've known several people who have addressed their fibro in this matter (antibiotics and/or anti-virals.) In fact, in additon to my dermatomyositis, my rheumy also pushed on those pressure points or trigger points and told me that I had fibro, too. After being on Minocin for three years, I don't have any of the muscle pains or fatigue any more. Don't worry, you're not a mental case :-) I found that antidepressants helped me a lot. Pain brings on a chemical change that affects our mental outlooks....and antidepressants can help to normalize things while you are getting better. Take care, Connie H. > A Mental Health Issue???? Does fibro make you nuts??? My regular doctor said > yesterday he thinks its lupus, have a dermy appointment next wednesday. Last Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2001 Report Share Posted April 11, 2001 One more thing....if your doctor won't prescribe the Minocin because he/she says that it will agravate your 'might be Lupus'....you can use Doxycycline instead of the Minocin (minocycline). The doxy gives lots of people an upset stomach, but not if they take it with a meal. Hope this helps, Connie H. > > A Mental Health Issue???? Does fibro make you nuts??? My regular doctor said > > yesterday he thinks its lupus, have a dermy appointment next wednesday. Last Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2001 Report Share Posted April 11, 2001 One more thing....if your doctor won't prescribe the Minocin because he/she says that it will agravate your 'might be Lupus'....you can use Doxycycline instead of the Minocin (minocycline). The doxy gives lots of people an upset stomach, but not if they take it with a meal. Hope this helps, Connie H. > > A Mental Health Issue???? Does fibro make you nuts??? My regular doctor said > > yesterday he thinks its lupus, have a dermy appointment next wednesday. Last Quote Link to comment Share on other sites More sharing options...
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