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My six year old son who is mildly affected starts " hooting " and flapping

his hands when he gets excited. What have you parents out there had

success with in the line of supplements to stop it? We just did mega

doses of vitamin a (400,000 iu) 2 days in a row with little or no

response.

Sincerely,

in Arkansas

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My son hand flaps occasionally when excited. He used to do it all the time with

rhythmic sounds. Occuptational therapy helped tremendously with hand flapping.

In a message dated 8/19/2004 10:26:16 AM Eastern Daylight Time, " danasview "

<danasview@...> writes:

>

>

>> My six year old son who is mildly affected starts " hooting " and flapping

>> his hands when he gets excited.

>

>

>This was viral for my son.

>

>

>>>We just did mega

>> doses of vitamin a (400,000 iu) 2 days in a row with little or no

>> response.

>

>

>My son needed this protocol twice.  You can read about that here, if

>you want

>

>http://www.danasview.net/vitamina.htm

>

>This was not what eliminated the hand flapping tho.  He needed

>Lauricidin and olive leaf extract for that.

>

>Dana

>

>

>

>

>

>=======================================================

>

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So does it just suppress the virus or eventually kill it?

Barb

[ ] Re: hand flapping

> Barb,

> It is not a RX. You can buy it online called Lauricidin or

> Monolaurin. My 110 lb child has been on it for two years at 2 scoups

> a day. I can still see if we miss a day. It comes in pellets and

> originally I mixed them in applesauce, strained peaches, etc. Now I

> just fill the scoup and give with a glass of water to wash it down.

> Start slow though and build up to the two scoups a day.

>

>

>

>

> > > > My six year old son who is mildly affected starts " hooting " and

> flapping

> > > > his hands when he gets excited.

> > >

> > >

> > > This was viral for my son.

> > >

> > >

> > > >>We just did mega

> > > > doses of vitamin a (400,000 iu) 2 days in a row with little or

> no

> > > > response.

> > >

> > >

> > > My son needed this protocol twice. You can read about that here,

> if

> > > you want

> > >

> > > http://www.danasview.net/vitamina.htm

> > >

> > > This was not what eliminated the hand flapping tho. He needed

> > > Lauricidin and olive leaf extract for that.

> > >

> > > Dana

> > >

> > >

> > >

> > >

> > >

> > > =======================================================

> > >

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> So does it just suppress the virus or eventually kill it?

Viruses are not alive, so technically you can't kill them.

I use the term " eliminate " , most medical practitioners use the term

" suppress " .

I found that adding Peptizyde to the Lauricidin/OLE I was giving,

caused my son's virus/es to " break " , resulting in a very messy bm.

But after the bm, I have not had to give anti-virals again.

Dana

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  • 5 months later...

Could someone please describe what exactly hand flapping looks like??

My DS does some strange things with his hands but I am unsure if that is what I would call it.

Thanks (feeling pretty dumb right now lol)

-Charlotte

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When ds does it, it's like he's tapping his fingers together -- sometimes all at once, sort of like he's mimicking a duck with his hand, other times, it's his pointy-finger tapping his thumb, quietly.

It's not a dumb question though -- I didn't realize at first that what he was doing could be considered a stim or flapping. I actually saw a boy in a tv movie about autism, and I saw his fingers and realized that was what they meant by flapping. Ds doesn't do it that often, or to the extreme of the boy in the movie, but when he's more upset, he'll do it sometimes with just one hand, and other times it appears just something he does for no reason at all. He also likes to rub his face against his shoulder, rub things on his cheeks, or on ears..but he has to be the one doing it, or he'll grab my hand to make me do it.

[Norton AntiSpam] Re: Hand flapping

Could someone please describe what exactly hand flapping looks like??

My DS does some strange things with his hands but I am unsure if that is what I would call it.

Thanks (feeling pretty dumb right now lol)

-Charlotte

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I think it varies. When we had DS assessed they said something about hand

flapping and I said, what do you mean?

I thought hand flapping was like flapping the hands like a birds wings,

but with the elbow in, or something like that.

But I guess DS does some other things, like when he is excited he

gestures, moving his hands out from his body center, and moves them back

& forth at the same time. It is hard to explain, but it is like if

you where to try to show someone what a river looked like and you used

your hands to represent the banks of the river...does that make sense? or

to make you hands look like 2 fishes swimming side by side.

anyway, I dont know if it is truly " hand-flapping " but they

seemed to notice it and thought it was something along those

lines.

At 12:16 PM 2/4/2005, you wrote:

Could

someone please describe what exactly hand flapping looks like??

My DS does some strange things with his hands but I am unsure if that is

what I would call it.

Thanks (feeling pretty dumb right now lol)

-Charlotte

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Hi Charlotte,

>>Could someone please describe what exactly hand flapping looks like??

My DS does some strange things with his hands but I am unsure if that is

what I would call it.<<

What I have seen (not in my son) was literally hand flapping - the hands

were moved from the wrists in a flapping motion. But the same boy also moved

his fingers in complex twisting ways which I have seen in my son as well -

and this I would describe as a 'stim'.

in England

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Ok, ya he does both of those. Not a ton, but he does flap them from the wrist, just not against the other hand or anything. Sometimes he'll be doing it with both but they don't touch each other. He's always twisting his fingers around though...lol...I always though he just had stiff wrists and fingers though because he's got small pudgy hands and fingers.. lol I guess I just thought was just "shaking it off"....maybe not, lol

-Charlotte

Re: Hand flapping

Hi Charlotte,>>Could someone please describe what exactly hand flapping looks like??My DS does some strange things with his hands but I am unsure if that is what I would call it.<<What I have seen (not in my son) was literally hand flapping - the hands were moved from the wrists in a flapping motion. But the same boy also moved his fingers in complex twisting ways which I have seen in my son as well - and this I would describe as a 'stim'. in England

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Charlotte,

Tyler has

done some pretty weird things with his hands. Pretty much, for him, it is

movements of the hands that he doesn’t seem aware of or when made aware is hard

to impossible for him to stop without replacing it with another movement!

~hugs~

Rabecca

-----Original

Message-----

From: designs

[mailto:scottdesigns@...]

Sent: Friday, February 04, 2005

12:16 PM

To:

Autism and Aspergers Treatment

Subject: Re:

Hand flapping

Could someone please describe what exactly hand flapping looks

like??

My DS does some strange things with his hands but I am unsure if

that is what I would call it.

Thanks (feeling pretty dumb right now lol)

-Charlotte

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seems totally unaware that he's doing it too. If he has something in his hand that is moving too or it's in his mouth....and he's 11 so that is starting to look a little odd!

-Charlotte

RE: Hand flapping

Charlotte,

Tyler has done some pretty weird things with his hands. Pretty much, for him, it is movements of the hands that he doesn’t seem aware of or when made aware is hard to impossible for him to stop without replacing it with another movement!

~hugs~

Rabecca

-----Original Message-----From: designs [mailto:scottdesigns@...]Sent: Friday, February 04, 2005 12:16 PMAutism and Aspergers Treatment Subject: Re: Hand flapping

Could someone please describe what exactly hand flapping looks like??

My DS does some strange things with his hands but I am unsure if that is what I would call it.

Thanks (feeling pretty dumb right now lol)

-Charlotte

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One of my sons hand flaps, but last year he started something new - a jerking motion with his hands and this was not a stim. It was a side effect of the anti psychotic meds - tardive dyskinesia.

People not educated on these meds, etc will fight you on this - the teacher and aide at school did not believe me and thought he was mimicking another child. This is a typical reaction to those unfamiliar with TD. I printed out information and gave it to nurse, teacher, aide and school office so they were all aware of the differences between a stim and a side effect that needs to be documented and told to prescribing Dr.

The same with foot movements and lip smacking. I say this since the member mentioned some kind of movement with fingers, just want to make sure you are aware of TD, especially if child is on meds.

http://www.autism.org/tardiv.html

For my son hand flapping is like waving side ways. The hand movements that were TD were like shaking to dry hands without a towel.

Bonnie

================= Rowell <nancy@...> wrote:

Hi Charlotte,>>Could someone please describe what exactly hand flapping looks like??My DS does some strange things with his hands but I am unsure if that is what I would call it.<<What I have seen (not in my son) was literally hand flapping - the hands were moved from the wrists in a flapping motion. But the same boy also moved his fingers in complex twisting ways which I have seen in my son as well - and this I would describe as a 'stim'.

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Thanks for the heads up Bonnie but he's been off meds for almost a year. This is something he's always done, what you described about the sideways wave is pretty much what it looks like but he also wiggles his fingers allot almost like he's typing really fast on an "air keyboard".

-Charlotte

Re: Hand flapping

One of my sons hand flaps, but last year he started something new - a jerking motion with his hands and this was not a stim. It was a side effect of the anti psychotic meds - tardive dyskinesia.

People not educated on these meds, etc will fight you on this - the teacher and aide at school did not believe me and thought he was mimicking another child. This is a typical reaction to those unfamiliar with TD. I printed out information and gave it to nurse, teacher, aide and school office so they were all aware of the differences between a stim and a side effect that needs to be documented and told to prescribing Dr.

The same with foot movements and lip smacking. I say this since the member mentioned some kind of movement with fingers, just want to make sure you are aware of TD, especially if child is on meds.

http://www.autism.org/tardiv.html

For my son hand flapping is like waving side ways. The hand movements that were TD were like shaking to dry hands without a towel.

Bonnie

================= Rowell <nancy@...> wrote:

Hi Charlotte,>>Could someone please describe what exactly hand flapping looks like??My DS does some strange things with his hands but I am unsure if that is what I would call it.<<What I have seen (not in my son) was literally hand flapping - the hands were moved from the wrists in a flapping motion. But the same boy also moved his fingers in complex twisting ways which I have seen in my son as well - and this I would describe as a 'stim'.

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My son also does a strange gesture with his

fingers more so than his hands. It seems when he is excited he will flicker his

fingers together. He brings his hands up to his face and flickers his fingers together.

It kind of reminds me of hand ringing thinking “hmmmm….I can’t

wait to get my hands on that”! Is that a good description?? Is this also

a stim? No meds at the moment…he has ALWAYS has done this, since he was

little. It usually happens when he is excited, happy about something.

Re:

Hand flapping

One of my sons hand flaps, but last year he started

something new - a jerking motion with his hands and this was not a stim.

It was a side effect of the anti psychotic meds - tardive dyskinesia.

People not educated on these meds, etc will fight you

on this - the teacher and aide at school did not believe me and thought he was

mimicking another child. This is a typical reaction to those unfamiliar with

TD. I printed out information and gave it to nurse, teacher, aide and

school office so they were all aware of the differences between a stim and a

side effect that needs to be documented and told to prescribing Dr.

The same with foot movements and lip smacking. I

say this since the member mentioned some kind of movement with fingers, just

want to make sure you are aware of TD, especially if child is on meds.

http://www.autism.org/tardiv.html

For my son hand flapping is like waving side

ways. The hand movements that were TD were like shaking to dry hands

without a towel.

Bonnie

=================

Rowell

<nancy@...> wrote:

Hi

Charlotte,

>>Could someone please describe what exactly

hand flapping looks like??

My DS does some strange things with his hands but

I am unsure if that is

what I would call it.<<

What I have seen (not in my son) was literally

hand flapping - the hands

were moved from the wrists in a flapping motion.

But the same boy also moved

his fingers in complex twisting ways which I have

seen in my son as well -

and this I would describe as a 'stim'.

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Hi Bonnie,

>>One of my sons hand flaps, but last year he started something new - a

>>jerking motion with his hands and this was not a stim. It was a side

>>effect of the anti psychotic meds - tardive dyskinesia. <<

Just to reassure you, neither my son or the other boy I was describing are

on any drugs. In his whole life (17 years) my son has had one course of

anti-biotics for an ear infection and that is all.

in England

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Hi Debs,

>>My son also does a strange gesture with his fingers more so than his

>>hands. It seems when he is excited he will flicker his fingers together.

>>He brings his hands up to his face and flickers his fingers together. It

>>kind of reminds me of hand ringing thinking " hmmmm..I can't wait to get my

>>hands on that " ! Is that a good description?? Is this also a stim? No meds

>>at the moment.he has ALWAYS has done this, since he was little. It usually

>>happens when he is excited, happy about something. <<

That sounds exactly like a stim to me, and one that I have heard of others

doing too. I have heard someone (Annie maybe) suggest that it is a way of

breaking up the visual field, if it is done in front of the eyes.

in England

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My son’s

doctor said that it was a stim… He has always done that as well!!!

Rabecca

-----Original

Message-----

From: Barry Hitchcock

[mailto:bazndeb@...]

Sent: Friday, February 04, 2005

9:14 PM

To:

Autism and Aspergers Treatment

Subject: RE:

Hand flapping

My son also does a

strange gesture with his fingers more so than his hands. It seems when he is

excited he will flicker his fingers together. He brings his hands up to his

face and flickers his fingers together. It kind of reminds me of hand ringing

thinking “hmmmm….I can’t wait to get my hands on that”! Is that a good

description?? Is this also a stim? No meds at the moment…he has ALWAYS has done

this, since he was little. It usually happens when he is excited, happy about

something.

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Hi,

My nephew, Harper, had this behavior. He was also autistic like my son Marty is. He would hold one of his hands up in front of his face a lot, with his thumb sort of pointed towards his mouth, and would move his fingers as he stared at them. He did not give eye contact, and would panic if taken outside or put in any strange environment. His family chose to put him into a group home many years ago, and I read in the paper where he passed away just recently. He was younger than Marty, in his thirties.

Marty has never done that with his hands, but tends to like to handle small objects a lot, can play with a shoe lace all day long! And I am so happy to report he is doing it some once again, after his terrible time with pneumonia and his lung surgery not more than a couple of weeks ago. He is feeling good enough to play with his shoelace.

Small blessings, but GOOD none the less!

Love,

Carolyn

RE: Hand flapping

My son’s doctor said that it was a stim… He has always done that as well!!!

Rabecca

-----Original Message-----From: Barry Hitchcock [mailto:bazndeb@...]Sent: Friday, February 04, 2005 9:14 PMAutism and Aspergers Treatment Subject: RE: Hand flapping

My son also does a strange gesture with his fingers more so than his hands. It seems when he is excited he will flicker his fingers together. He brings his hands up to his face and flickers his fingers together. It kind of reminds me of hand ringing thinking “hmmmm….I can’t wait to get my hands on that”! Is that a good description?? Is this also a stim? No meds at the moment…he has ALWAYS has done this, since he was little. It usually happens when he is excited, happy about something.

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Ds, even when not upset or visibly aware, quite often taps his forefinger to his thumb, or other fingers to his thumb and/or palm. He'll be playing and will pull his hand from whatever he's doing periodically to do it, as though he doesn't even realize he's doing it. I know that's not traditionally hand flapping; he flaps his fingers, I'd have to call it when he gets upset or wants to calm himself. Just another odd movement.

Donna

[Norton AntiSpam] RE: Hand flapping

Charlotte,

Tyler has done some pretty weird things with his hands. Pretty much, for him, it is movements of the hands that he doesn’t seem aware of or when made aware is hard to impossible for him to stop without replacing it with another movement!

~hugs~

Rabecca

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I watched it, but must have missed that..I'm not the world's biggest football fan, I watch to hang out with Dh, have a good excuse to eat junk food, and laugh at the commercials, as disappointing as they were this year.

Re: RE: Hand flapping

Did anyone see the SuperBowl? After one of the touchdowns the player did his little td dance. My dh commented that it looked like he was flapping. It really did. We actually laughed. My dd flaps when she gets excited.Donna B <Donna@...> wrote:

Ds, even when not upset or visibly aware, quite often taps his forefinger to his thumb, or other fingers to his thumb and/or palm. He'll be playing and will pull his hand from whatever he's doing periodically to do it, as though he doesn't even realize he's doing it. I know that's not traditionally hand flapping; he flaps his fingers, I'd have to call it when he gets upset or wants to calm himself. Just another odd movement.

Donna

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I liked the halftime show -- it was nice to see a show that all my kids could watch without inappropriate grabbing of body parts and the teeny-boppers -- last year's show (Janet aside, lol, I won't go there) was a disappointment for anyone past 21, imho, so I was glad to see someone that was just entertaining while being clean. The special-effects were cool, and I was just happy to see it be a simple thing, though I admit to liking some of the commercials that censors felt were inappropriate last year, lol. I was bummed to see they took out most of the humor, but I did like this year's monkey ones. I ended up laying by the fireplace with a good book through much of it, with dh on the couch nearby so at least we were in the same room, so I was technically 'watching' the game LOL (And I made some great food!)

Re: RE: Hand flapping

I watch for the same reasons. Thebest part is usually the commercials and the half-time show. It really was disappointing.Donna B <Donna@...> wrote:

I watched it, but must have missed that..I'm not the world's biggest football fan, I watch to hang out with Dh, have a good excuse to eat junk food, and laugh at the commercials, as disappointing as they were this year.

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Carol,

~laughing~ My son asked me if I thought there were “Angel’s in the Outfield”

like the movie, where they all flapped…

~hugs~

Rabecca

-----Original

Message-----

From: carol sobczak

[mailto:cpsobczak@...]

Sent: Tuesday, February 08, 2005

9:10 AM

To:

Autism and Aspergers Treatment

Subject: Re: RE:

Hand flapping

Did anyone

see the SuperBowl? After one of the touchdowns the player did his little

td dance. My dh commented that it looked like he was flapping. It

really did. We actually laughed. My dd flaps when she gets excited.

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  • 3 weeks later...

My dd does it when she has extreme emotions, like when she is sooooo excited or very anxious. I think it has to do with her inability to handle the intensity.

When they do this is it a tension release or something? I don't know. > ---------------------------------> Do you ?> Search presents - Jib Jab's 'Second Term'

Carol, mom to

, 3/14/94

, 2/18/97

Lily, 9/7/04__________________________________________________

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I'm not exactly sure why they do it -- I've heard everything from it being a

stimulant to them (hence the 'stimming' title, I guess, but so few people

outside of those who deal with autistic kids know what that is so when he

does it in public, it's not always understood) to it being a useless thing

they just do without really realizing it.

My little guy will do the finger flapping (not a full-out hand flap)

regularly throughout the day, but when he is upset, it is much worse...and

only when he's really upset will he really involve the wrists. When he was

little, he often did his hands but we didn't even remember it until one of

these NBC Today Show series reminded us. I've asked him why he does it and

he says his fingers hurt unless he moves them..other times, he has no

reason, but trying to get him to stop is pretty impossible.

He had a skin test done last week, and they had to tape his arm to a board

to prevent him from moving the wrist/scratch test area, and poor thing,

after a few minutes, we had to hold his hand just so he felt some

stimulation to his fingers, as he couldn't flap or tap them.

Re: Hand flapping

>> Your message caught my eye. My 13 year old son has been hand

> flapping since he was about 2 or 3 years old. He usually does it

> when he's watching Tv or when he's excited. His teachers tell me he

> even does it in school. The kids can be cruel, some of them have

> told him to do it and he does then they all laugh at him. My son

> has ASPERGERS. When they do this is it a tension release or

> something? I don't know.

>> ---------------------------------

>>

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> I'm not exactly sure why they do it -- I've heard everything from

it being a

> stimulant to them (hence the 'stimming' title, I guess, but so few

people

> outside of those who deal with autistic kids know what that is so

when he

> does it in public, it's not always understood) to it being a

useless thing

> they just do without really realizing it.

>

> My little guy will do the finger flapping (not a full-out hand

flap)

> regularly throughout the day, but when he is upset, it is much

worse...and

> only when he's really upset will he really involve the wrists.

When he was

> little, he often did his hands but we didn't even remember it

until one of

> these NBC Today Show series reminded us. I've asked him why he

does it and

> he says his fingers hurt unless he moves them..other times, he has

no

> reason, but trying to get him to stop is pretty impossible.

>

> He had a skin test done last week, and they had to tape his arm to

a board

> to prevent him from moving the wrist/scratch test area, and poor

thing,

> after a few minutes, we had to hold his hand just so he felt some

> stimulation to his fingers, as he couldn't flap or tap them.

>

> Re: Hand flapping

>

> >> Your message caught my eye. My 13 year old son has been hand

> > flapping since he was about 2 or 3 years old. He usually does it

> > when he's watching Tv or when he's excited. His teachers tell

me he

> > even does it in school. The kids can be cruel, some of them have

> > told him to do it and he does then they all laugh at him. My son

> > has ASPERGERS. When they do this is it a tension release or

> > something? I don't know.

> >> ---------------------------------

> >> He usually makes a face when he does it also. like a facial

tic. I noticed it to have improved as he's getting older. He used

to do it constantly. I do think though that it must be a stimulant

or stress thing. He also claps his hands together when he's

watching tv or playing videos.

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