Re: accuracy of vaccine adverse event reporting data base

[Guest guest]

I think that in all of the studies, they only rely on what was reported to

the government agencies. There are doctor-patient confidentiality

privileges that would prevent your doctor from reporting things to anyone.

I remember reading that in CA, when they quote the number of kids with

" autism " , it is the number of kids who have filed with our Regional Center

program (which handles benefits for such kids), but to be in this program,

you have to have a straight-on autism diagnosis. Kids with PDD-NOS or

Asperger's generally aren't eligible and so they dont get counted in CA's

numbers.

So, yes, I think this means that everyone's numbers are below the number

that are truly on the Spectrum.

Best,

Lora

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[Guest guest]

I tried to send a reply before, but it didn't work - I hope this one does.

If the reaction isn't in your son's medical record, it wasn't reported to VAERS.

This is a big problem with the whole system. PARENTS should be able to report

it, not depend on the doctor, because what happened to you happens all too

frequently, skewing the whole program. I had a client whose son had a 105

degree fever and a rash after the varicella vax - her doc told her this was a

normal reaction. I urged her to phone him and insist he report it. He told her

he wouldn't. I believe that the varicella vax is particularly underreported

from the reactions I have seen.

I wonder if it would be worth contacting a vaccine attorney anyway since your

INTENTION was to report a reaction at the time. This is just not right. It's

one thing for those of us who refused to believe that it could have been the

vaccines. I will have to live with my ignorance. You, on the other hand, did

the best that one would expect and reported it. Shame, shame, shame on the

system. Uh.

BLESSINGS ON YOUR DAY. You're a good mom.

, mom to and

[ ] accuracy of vaccine adverse event reporting data

base

I never reported my son's autism to VAERs -- or whatever the acronym

is. I assume that this is the case for many of us. I bring this up

because I read that the Geirs correlated children who had mercury

containing vaccinations with children who developed autism by looking

at the vaccine adverse event reporting database. Would my son's data

be in that database, even if I never reported it to them? I wonder

if the rate of autism is even higher than the Geirs found by looking

at the vaccine data base because I am sure we are not the only family

who has not reported. I suspected a vaccine reaction, but my phone

calls to the nurse are not even recorded in my son's medical record

and my suspicions were poo-poo'd by the nurse.

Just curious,

=======================================================

[Guest guest]

I reported Allie's reaction to VAERS myself. A parent is perfectly

able to report it, it does NOT *have* to be filed by a medical

person. In fact, I recently spoke with a woman whose son had a mild

fever whose doc poo pooed it as " minor common reaction " and I told

her to file a report because *any* reaction is supposed to be

reported. The vaccine fact sheets should really be updated to

contain information that any reaction can be reported by parents and

should be reported. Of course, that would mean a huge percentage of

vaccine recipients would need their parents to file.

Debi

> If the reaction isn't in your son's medical record, it wasn't

reported to VAERS. This is a big problem with the whole system.

PARENTS should be able to report it, not depend on the doctor,

because what happened to you happens all too frequently, skewing the

whole program.

[Guest guest]

I remember reading that in CA, when they quote the number of kids with

" autism " , it is the number of kids who have filed with our Regional Center

program (which handles benefits for such kids), but to be in this program,

you have to have a straight-on autism diagnosis. Kids with PDD-NOS or

Asperger's generally aren't eligible and so they dont get counted in CA's

numbers.

Wow! That sure puts an end to the " better reporting " myth that so many experts

point to as a cause of the increase of cases.