Guest guest Posted May 4, 2004 Report Share Posted May 4, 2004 You can make a difference! ASD-CARC (Autism Spectrum Disorders - Canadian/American Research Consortium) is a multidisciplinary team of over 60 researchers, clinicians and parents, located throughout North America, which is currently undertaking one of the largest Canadian ASD research projects ever. If you have a family member with ASD, please consider joining our research program. You do not need to live in Canada to participate. Participating is easy: · You can contribute to many of our projects simply filling out our on-line questionnaires. · If you are expecting a new baby or have an infant under one year of age, you may participate in our prospective study which will closely track your infant's development · If you have two or more individuals with ASD in your family (siblings, cousins, aunt/uncle, etc.), you could be a candidate for our genetics of ASD study, which is trying to determine the genetic risk factors for ASDs. To register, or for more information visit our website at www.autismresearch.ca, email autism@... or call 1-866- ASD-CARC (voice mail only). www.autismresearch.ca Below is a quote from Jeanette Holden, Program Director of the ASD- CARC. Please consider visiting the website and registering your family for this important research. " Our hope is to recruit 10,000 families to participate in our research – most of these families will participate by completing questionnaires and by providing us with a small sample (blood, saliva or cheek swab) for genetic studies. Other families will be invited to participate in more detailed assessments – various interviews, diagnostic assessments and other studies relating to processing information, brain imaging, dysmorphology, etc.. Why do we need 10,000 families for our study? The reason is that we believe autism spectrum disorders are actually a group of disorders – there may be 10 or more different types of ASDs – all sharing some behaviors and other family characteristics. In order to identify both genetic and environmental factors that contribute to these conditions, we need to divide families into " subgroups " that are more " homogeneous " – i.e. very similar or identical to one another. Some subgroups may be more common than others and, for this reason, all families are important. " www.autismresearch.ca Quote Link to comment Share on other sites More sharing options...
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