Guest guest Posted October 22, 1998 Report Share Posted October 22, 1998 Nancie, I missed you and am glad to hear from you though I am not happy you are feeling so badly. I will keep you in my prayers. If you would like to talk please let me know. Debbie << Dear Friends, For those of you that have been in the group for awhile I have particapated alot on the voice. I have been silent for several weeks now,and I thought I'd explain now so You won't think I just lost intrest. As you know I have genetic cjd in my family that runs a rather lenthy course. For the last year I have felt I am at the start of something bad. Well for the last month things have gotten worse. I feel I am losing a battle to save myself. I run into brick walls every day now over such simple things as looking words up in the dictionary doing my beloved crocheting and many other things. Also my anxiety and depression have increased to the point of almost not allowing me to leave the house. But I still get up exercise and help my daughter care for my grandchildren. [i've never been a quiter] But normal live is getting harder and harder to maintain. My Dr. has adjusted my medications but so far without success, she would like to run more tests but I just don't think right now I can do it. I am hopeing that at some point I will level off as I have in the past,but this time I have lost more ground faster then ever before. So please know I think of you all very often and know that you all continue to work so hard for something you yourselves don't have. If you could all say a little prayer for me I could really use it now as I'm scared half to death. I still try to check my mail every few days,and hopefully it won't be to long before I can really participate again. I miss you all and can't wait to feel conected again. Nancie >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 1998 Report Share Posted October 22, 1998 Nancie: It was so good to hear from you...I have been wondering how you are doing. I am so sorry you are having trouble doing things that you enjoy. I sincerely hope that it is not familial CJD, but if it turns out to be CJD, please know that we will help you all we can. It is people like you that keep me fighting to find out everything I can about this horrible disease. Please know that we have not forgotten you and I want to thank you for reminding me what and who I am fighting for. Please keep in touch with us and let us know how you are doing. Beverly G. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 1998 Report Share Posted October 22, 1998 Dear Nancie, I will be praying for you that your symptoms level off again. Please know that you are not alone. We are all here for you. Thinking of you, Yvette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 1998 Report Share Posted October 22, 1998 Dear Friends, For those of you that have been in the group for awhile I have particapated alot on the voice. I have been silent for several weeks now,and I thought I'd explain now so You won't think I just lost intrest. As you know I have genetic cjd in my family that runs a rather lenthy course. For the last year I have felt I am at the start of something bad. Well for the last month things have gotten worse. I feel I am losing a battle to save myself. I run into brick walls every day now over such simple things as looking words up in the dictionary doing my beloved crocheting and many other things. Also my anxiety and depression have increased to the point of almost not allowing me to leave the house. But I still get up exercise and help my daughter care for my grandchildren. [i've never been a quiter] But normal live is getting harder and harder to maintain. My Dr. has adjusted my medications but so far without success, she would like to run more tests but I just don't think right now I can do it. I am hopeing that at some point I will level off as I have in the past,but this time I have lost more ground faster then ever before. So please know I think of you all very often and know that you all continue to work so hard for something you yourselves don't have. If you could all say a little prayer for me I could really use it now as I'm scared half to death. I still try to check my mail every few days,and hopefully it won't be to long before I can really participate again. I miss you all and can't wait to feel conected again. Nancie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 1998 Report Share Posted October 22, 1998 Nancie, God Bless you and please know that I am keeping you in my prayers and that all of us are with you. dolores colunga-mortman Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 1998 Report Share Posted October 22, 1998 Dear Nancie, Please know that I join the others in thinking, praying and sending you and yours strength and love. Gloria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 1998 Report Share Posted October 22, 1998 Nancie, I am so sorry you are not feeling well and am very glad to hear from you again. You are in my thoughts and prayers. -------- >From: jana30@... >To: linda.lesher@... >Subject: RE: Re: Wheres Nancie? >Date: October 22, 1998 > > > >Dear Friends, For those of you that have been in the group for awhile I >have particapated alot on the voice. I have been silent for several weeks >now,and I thought I'd explain now so You won't think I just lost intrest. >As you know I have genetic cjd in my family that runs a rather lenthy >course. For the last year I have felt I am at the start of something bad. >Well for the last month things have gotten worse. I feel I am losing a >battle to save myself. I run into brick walls every day now over such >simple things as looking words up in the dictionary doing my beloved >crocheting and many other things. Also my anxiety and depression have >increased to the point of almost not allowing me to leave the house. But >I still get up exercise and help my daughter care for my grandchildren. >[i've never been a quiter] But normal live is getting harder and harder to >maintain. My Dr. has adjusted my medications but so far without success, >she would like to run more tests but I just don't think right now I can do >it. I am hopeing that at some point I will level off as I have in the >past,but this time I have lost more ground faster then ever before. So >please know I think of you all very often and know that you all continue to >work so hard for something you yourselves don't have. If you could all say >a little prayer for me I could really use it now as I'm scared half to >death. I still try to check my mail every few days,and hopefully it won't >be to long before I can really participate again. I miss you all and can't >wait to feel conected again. Nancie > > >------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 1998 Report Share Posted October 22, 1998 Nancie: I read in your message that your heart is heavy burdened at this time. Please know that you are never alone because you have God, His angels, the members and families of CJD Voice, CJD Faces and CJD Watch walking with you each second of every day. I cannot imagine what you are enduring right now but please feel our love, concern and support now and throughout the days ahead. We appreciate your staying in touch with us and letting us know what is happening in your life. I am sure that all will join me in praying for you on a daily basis. I know that God will give you His strength if you lay your burdens at His feet. Nancie, you are an important part of CJD Voice and we love you and will walk with you to help you always. Thoughtfully, Dolly ============ Dear Friends, For those of you that have been in the group for awhile I have particapated alot on the voice. I have been silent for several weeks now,and I thought I'd explain now so You won't think I just lost intrest. As you know I have genetic cjd in my family that runs a rather lenthy course. For the last year I have felt I am at the start of something bad. Well for the last month things have gotten worse. I feel I am losing a battle to save myself. I run into brick walls every day now over such simple things as looking words up in the dictionary doing my beloved crocheting and many other things. Also my anxiety and depression have increased to the point of almost not allowing me to leave the house. But I still get up exercise and help my daughter care for my grandchildren. [i've never been a quiter] But normal live is getting harder and harder to maintain. My Dr. has adjusted my medications but so far without success, she would like to run more tests but I just don't think right now I can do it. I am hopeing that at some point I will level off as I have in the past,but this time I have lost more ground faster then ever before. So please know I think of you all very often and know that you all continue to work so hard for something you yourselves don't have. If you could all say a little prayer for me I could really use it now as I'm scared half to death. I still try to check my mail every few days,and hopefully it won't be to long before I can really participate again. I miss you all and can't wait to feel conected again. Nancie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 1998 Report Share Posted October 22, 1998 Nancie; You have all my love and support, I will say extra prayers for you.......thinking of you! a G. ---------- > > To: cjdvoice (AT) onelist (DOT) com > Subject: Re: Wheres Nancie? > Date: Thursday, October 22, 1998 1:28 PM > > > > Dear Friends, For those of you that have been in the group for awhile I > have particapated alot on the voice. I have been silent for several weeks > now,and I thought I'd explain now so You won't think I just lost intrest. > As you know I have genetic cjd in my family that runs a rather lenthy > course. For the last year I have felt I am at the start of something bad. > Well for the last month things have gotten worse. I feel I am losing a > battle to save myself. I run into brick walls every day now over such > simple things as looking words up in the dictionary doing my beloved > crocheting and many other things. Also my anxiety and depression have > increased to the point of almost not allowing me to leave the house. But > I still get up exercise and help my daughter care for my grandchildren. > [i've never been a quiter] But normal live is getting harder and harder to > maintain. My Dr. has adjusted my medications but so far without success, > she would like to run more tests but I just don't think right now I can do > it. I am hopeing that at some point I will level off as I have in the > past,but this time I have lost more ground faster then ever before. So > please know I think of you all very often and know that you all continue to > work so hard for something you yourselves don't have. If you could all say > a little prayer for me I could really use it now as I'm scared half to > death. I still try to check my mail every few days,and hopefully it won't > be to long before I can really participate again. I miss you all and can't > wait to feel conected again. Nancie > > > ------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 1998 Report Share Posted October 24, 1998 Dear Dolly, Thankyou for your lovely note to me. Having read your e-mails over the months, I feel that if there was ever anyone that God would sit up and listen to it is you. Your strength and grace is an inspiration to us all. Wether we are loving someone walking down the cjd path or our doing it ourselves, knowing there is someone like you who cares and understands is a great comfort. This entire group has been such a source of support for me, you will never know how much you all mean to me. I am fighting as hard as I can right now, and refuse to give up anything without a fight. All I can hope now is that I will hit another plateau as I have in the past so I can recharge my batteries for the next round. Thanks again for your love and support. Nancie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 1998 Report Share Posted October 24, 1998 Dear Gloria, Thanks for yours and everyones prayers for me. You are all a great source of strength for me. I'll let you know how things are going again soon, I don't plan on just giving up. CJD is going to have a real fight on its hands trying to take me. Thanks again, Nancie Quote Link to comment Share on other sites More sharing options...
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