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Dura Mater

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,

Please let us know when it is ok to mention knowing another person who had

dura mater and died of CJD. A way of getting a stop to the use of dura mater

is the public's awareness of it, its use and the possible horrendous

consequences. I read it is used in 10% of neurosurgeries though I can't

remember where I read it. Mentioning dura mater's widespread use may be a

way of getting Oprah and Rosie and others interested in it and a show on CJD

especially since a lot of brain surgery is on children.

Debbie

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Debbie,

I think you have touched on an important point. If people see that this

horrid disease can affect not only adults and elderly, but children, we

might be able to get somewhere with the talk shows.

Shar

----------

> From: DebbieOney@...

> To: CJDVOICE (AT) ONELIST (DOT) COM

> Subject: Dura Mater

> Date: Saturday, October 24, 1998 6:56 AM

>

> From: DebbieOney@...

>

> ,

>

> Please let us know when it is ok to mention knowing another person who

had

> dura mater and died of CJD. A way of getting a stop to the use of dura

mater

> is the public's awareness of it, its use and the possible horrendous

> consequences. I read it is used in 10% of neurosurgeries though I can't

> remember where I read it. Mentioning dura mater's widespread use may be

a

> way of getting Oprah and Rosie and others interested in it and a show on

CJD

> especially since a lot of brain surgery is on children.

>

> Debbie

>

> ------------------------------------------------------------------------

>

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Debbie,

I think you have touched on an important point. If people see that this

horrid disease can affect not only adults and elderly, but children, we

might be able to get somewhere with the talk shows.

Shar

----------

> From: DebbieOney@...

> To: CJDVOICE (AT) ONELIST (DOT) COM

> Subject: Dura Mater

> Date: Saturday, October 24, 1998 6:56 AM

>

> From: DebbieOney@...

>

> ,

>

> Please let us know when it is ok to mention knowing another person who

had

> dura mater and died of CJD. A way of getting a stop to the use of dura

mater

> is the public's awareness of it, its use and the possible horrendous

> consequences. I read it is used in 10% of neurosurgeries though I can't

> remember where I read it. Mentioning dura mater's widespread use may be

a

> way of getting Oprah and Rosie and others interested in it and a show on

CJD

> especially since a lot of brain surgery is on children.

>

> Debbie

>

> ------------------------------------------------------------------------

>

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