Guest guest Posted December 26, 1999 Report Share Posted December 26, 1999 Thanks so much for all of your comments about " food holidays " . iel has really struggled with not being able to eat lately and I've been dying to feed him. The reinforcement to stick with the diet was timely. Steph, if I didn't answer yet, yes, please forward my comments,(complaints) to the Zevex rep if you still want to. I thought the problem got worse when they changed to the heavier 1200ml bags, but that was about the same time we switched to Elecare. Also, we've found that cleaning the contacts helps, even though it doesn't look like there is anything there, another friend, with the same pump but different formula, says sometimes she just keeps changing bags until one works without giving her a " no food " alarm. Did anyone hear on the news a new treatment for asthma that is supposed to be coming out next year that they think may have significant application for food allergies? Several people have mentioned it to me, but no one knows anything more. It works either on the IGg or Ige response. I think it's through 's Hopkins, Aren't they the ones that have been working on peanut allergy? iel has his scope Tuesday to see if the elemental diet has worked. I'm really hoping we can get the OK to reintroduce foods. I know it will be one at a time, and Dr. Sicherer's list has nothing on it that iel likes, but still, it's a step towards eating. I'm having trouble finding a schedule for tube feeds. If we do too much at night he gets sick. When I decrease night feeds he's really hungry during the day. He's 42 lbs and 4 years old. I know everyone is different, but I'm getting very little direction here, does anyone have a routine they'd like to share? Sorry this is so long, thanks for listening, Vicki, Mom to iel, age 4, EE, EG, asthma, allergies Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 1999 Report Share Posted December 26, 1999 Vicki, my son has food allergies & dysmotility. He is on tube feeding 24 hours a day & is awaiting surgery for a permanent tube in his jejunum. We have the Zevex pump. The schedule we have him on right now is 2 hours on the pump & then the pump automatically stops for 1 hour & then starts back up. It seems to work well for him & keeps him from getting dehydrated or distended & gagging. Hope this might help. Rhonda, mom to 2, & Haven 5 Re: [eosinophilic gastroenteritis] Digest Number 476 > > >Thanks so much for all of your comments about " food holidays " . iel has >really struggled with not being able to eat lately and I've been dying to feed >him. The reinforcement to stick with the diet was timely. > >Steph, if I didn't answer yet, yes, please forward my comments,(complaints) to the >Zevex rep if you still want to. I thought the problem got worse when they changed >to the heavier 1200ml bags, but that was about the same time we switched to >Elecare. Also, we've found that cleaning the contacts helps, even though it >doesn't look like there is anything there, another friend, with the same pump but >different formula, says sometimes she just keeps changing bags until one works >without giving her a " no food " alarm. > >Did anyone hear on the news a new treatment for asthma that is supposed to be >coming out next year that they think may have significant application for food >allergies? Several people have mentioned it to me, but no one knows anything >more. It works either on the IGg or Ige response. I think it's through 's >Hopkins, Aren't they the ones that have been working on peanut allergy? > >iel has his scope Tuesday to see if the elemental diet has worked. I'm >really hoping we can get the OK to reintroduce foods. I know it will be one at a >time, and Dr. Sicherer's list has nothing on it that iel likes, but still, >it's a step towards eating. > >I'm having trouble finding a schedule for tube feeds. If we do too much at night >he gets sick. When I decrease night feeds he's really hungry during the day. >He's 42 lbs and 4 years old. I know everyone is different, but I'm getting very >little direction here, does anyone have a routine they'd like to share? > >Sorry this is so long, thanks for listening, > >Vicki, Mom to iel, age 4, EE, EG, asthma, allergies > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 1999 Report Share Posted December 27, 1999 Vicki, On the subject of feeding schedules, I have gone through that nightmare with 5 kids. Each one was different, each one required a different routine and it was hit-and-miss until we figured it out with each one. WHAT A NIGHTMARE. Basically it comes down to two things though. Some kids do better on slow continuous drips, some do better with bolus feeds (varying times from 20 minutes to 2-3 hours) several times a day. We have one that gets 4 boluses over 20 minutes each. One gets pump-fed over 1-1/2 hours 3 times a day, one that gets pump fed 1 to 1-1/2 hours four times a day (at a lower rate obviously) and when Kody was on feeds, he was continuous drip. You'll figure it out, just keep trying different things. Steph. Re: [eosinophilic gastroenteritis] Digest Number 476 Thanks so much for all of your comments about " food holidays " . iel has really struggled with not being able to eat lately and I've been dying to feed him. The reinforcement to stick with the diet was timely. Steph, if I didn't answer yet, yes, please forward my comments,(complaints) to the Zevex rep if you still want to. I thought the problem got worse when they changed to the heavier 1200ml bags, but that was about the same time we switched to Elecare. Also, we've found that cleaning the contacts helps, even though it doesn't look like there is anything there, another friend, with the same pump but different formula, says sometimes she just keeps changing bags until one works without giving her a " no food " alarm. Did anyone hear on the news a new treatment for asthma that is supposed to be coming out next year that they think may have significant application for food allergies? Several people have mentioned it to me, but no one knows anything more. It works either on the IGg or Ige response. I think it's through 's Hopkins, Aren't they the ones that have been working on peanut allergy? iel has his scope Tuesday to see if the elemental diet has worked. I'm really hoping we can get the OK to reintroduce foods. I know it will be one at a time, and Dr. Sicherer's list has nothing on it that iel likes, but still, it's a step towards eating. I'm having trouble finding a schedule for tube feeds. If we do too much at night he gets sick. When I decrease night feeds he's really hungry during the day. He's 42 lbs and 4 years old. I know everyone is different, but I'm getting very little direction here, does anyone have a routine they'd like to share? Sorry this is so long, thanks for listening, Vicki, Mom to iel, age 4, EE, EG, asthma, allergies Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 1999 Report Share Posted December 27, 1999 Rhonda, What kind of dysmotility does he have? How did they prove it? Have they discussed with you that placing a J tube can actually make some dysmotility WORSE? It obviously helps a great deal if the dysmotility is gastric but if there are problems in the small intestine, this could make it worse. S. Re: [eosinophilic gastroenteritis] Digest Number 476 > > >Thanks so much for all of your comments about " food holidays " . iel has >really struggled with not being able to eat lately and I've been dying to feed >him. The reinforcement to stick with the diet was timely. > >Steph, if I didn't answer yet, yes, please forward my comments,(complaints) to the >Zevex rep if you still want to. I thought the problem got worse when they changed >to the heavier 1200ml bags, but that was about the same time we switched to >Elecare. Also, we've found that cleaning the contacts helps, even though it >doesn't look like there is anything there, another friend, with the same pump but >different formula, says sometimes she just keeps changing bags until one works >without giving her a " no food " alarm. > >Did anyone hear on the news a new treatment for asthma that is supposed to be >coming out next year that they think may have significant application for food >allergies? Several people have mentioned it to me, but no one knows anything >more. It works either on the IGg or Ige response. I think it's through 's >Hopkins, Aren't they the ones that have been working on peanut allergy? > >iel has his scope Tuesday to see if the elemental diet has worked. I'm >really hoping we can get the OK to reintroduce foods. I know it will be one at a >time, and Dr. Sicherer's list has nothing on it that iel likes, but still, >it's a step towards eating. > >I'm having trouble finding a schedule for tube feeds. If we do too much at night >he gets sick. When I decrease night feeds he's really hungry during the day. >He's 42 lbs and 4 years old. I know everyone is different, but I'm getting very >little direction here, does anyone have a routine they'd like to share? > >Sorry this is so long, thanks for listening, > >Vicki, Mom to iel, age 4, EE, EG, asthma, allergies > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 1999 Report Share Posted December 28, 1999 Steph, has gastric duodenal dysmotility. The biopsy reports said that there was a reduced number of ganglion cells, but that they had found the same # in people w/ no symptoms. Whatever that means....LOL Whenever we try to use his stomach he can't handle enough volume to keep him from eventually getting malnutrition or if we try to up the volume he gags & retches. Any help would be greatly appreciated. Please pray that the hospital will approve his surgery soon. Keep us in your prayers. Rhonda Re: [eosinophilic gastroenteritis] Digest Number 476 > > >Thanks so much for all of your comments about " food holidays " . iel has >really struggled with not being able to eat lately and I've been dying to feed >him. The reinforcement to stick with the diet was timely. > >Steph, if I didn't answer yet, yes, please forward my comments,(complaints) to the >Zevex rep if you still want to. I thought the problem got worse when they changed >to the heavier 1200ml bags, but that was about the same time we switched to >Elecare. Also, we've found that cleaning the contacts helps, even though it >doesn't look like there is anything there, another friend, with the same pump but >different formula, says sometimes she just keeps changing bags until one works >without giving her a " no food " alarm. > >Did anyone hear on the news a new treatment for asthma that is supposed to be >coming out next year that they think may have significant application for food >allergies? Several people have mentioned it to me, but no one knows anything >more. It works either on the IGg or Ige response. I think it's through 's >Hopkins, Aren't they the ones that have been working on peanut allergy? > >iel has his scope Tuesday to see if the elemental diet has worked. I'm >really hoping we can get the OK to reintroduce foods. I know it will be one at a >time, and Dr. Sicherer's list has nothing on it that iel likes, but still, >it's a step towards eating. > >I'm having trouble finding a schedule for tube feeds. If we do too much at night >he gets sick. When I decrease night feeds he's really hungry during the day. >He's 42 lbs and 4 years old. I know everyone is different, but I'm getting very >little direction here, does anyone have a routine they'd like to share? > >Sorry this is so long, thanks for listening, > >Vicki, Mom to iel, age 4, EE, EG, asthma, allergies > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 1999 Report Share Posted December 28, 1999 Steph, he was scheduled to have motility testing with Hyman last year, but I talked to several moms who did not recommend him for anything so we cancelled the appt. has had 4 g-j tubes since he was 5 months old. 3 of them were placed surgically & the other one was placed endoscopically. The one that was placed endoscopically only stayed in place 3 weeks & then it coiled back up into his stomach. With all of his j tubes he has really done well & gained weight. Can you tell me the side effects or cons of this surgery? Rhonda Re: [eosinophilic gastroenteritis] Digest Number 476 > > >Thanks so much for all of your comments about " food holidays " . iel has >really struggled with not being able to eat lately and I've been dying to feed >him. The reinforcement to stick with the diet was timely. > >Steph, if I didn't answer yet, yes, please forward my comments,(complaints) to the >Zevex rep if you still want to. I thought the problem got worse when they changed >to the heavier 1200ml bags, but that was about the same time we switched to >Elecare. Also, we've found that cleaning the contacts helps, even though it >doesn't look like there is anything there, another friend, with the same pump but >different formula, says sometimes she just keeps changing bags until one works >without giving her a " no food " alarm. > >Did anyone hear on the news a new treatment for asthma that is supposed to be >coming out next year that they think may have significant application for food >allergies? Several people have mentioned it to me, but no one knows anything >more. It works either on the IGg or Ige response. I think it's through 's >Hopkins, Aren't they the ones that have been working on peanut allergy? > >iel has his scope Tuesday to see if the elemental diet has worked. I'm >really hoping we can get the OK to reintroduce foods. I know it will be one at a >time, and Dr. Sicherer's list has nothing on it that iel likes, but still, >it's a step towards eating. > >I'm having trouble finding a schedule for tube feeds. If we do too much at night >he gets sick. When I decrease night feeds he's really hungry during the day. >He's 42 lbs and 4 years old. I know everyone is different, but I'm getting very >little direction here, does anyone have a routine they'd like to share? > >Sorry this is so long, thanks for listening, > >Vicki, Mom to iel, age 4, EE, EG, asthma, allergies > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 1999 Report Share Posted December 28, 1999 Steph, he has been on 3232A, then Neocate, & now he is on Pediatric Vivonex & seems to be doing well with it. Rhonda Re: [eosinophilic gastroenteritis] Digest Number 476 > > >Thanks so much for all of your comments about " food holidays " . iel has >really struggled with not being able to eat lately and I've been dying to feed >him. The reinforcement to stick with the diet was timely. > >Steph, if I didn't answer yet, yes, please forward my comments,(complaints) to the >Zevex rep if you still want to. I thought the problem got worse when they changed >to the heavier 1200ml bags, but that was about the same time we switched to >Elecare. Also, we've found that cleaning the contacts helps, even though it >doesn't look like there is anything there, another friend, with the same pump but >different formula, says sometimes she just keeps changing bags until one works >without giving her a " no food " alarm. > >Did anyone hear on the news a new treatment for asthma that is supposed to be >coming out next year that they think may have significant application for food >allergies? Several people have mentioned it to me, but no one knows anything >more. It works either on the IGg or Ige response. I think it's through 's >Hopkins, Aren't they the ones that have been working on peanut allergy? > >iel has his scope Tuesday to see if the elemental diet has worked. I'm >really hoping we can get the OK to reintroduce foods. I know it will be one at a >time, and Dr. Sicherer's list has nothing on it that iel likes, but still, >it's a step towards eating. > >I'm having trouble finding a schedule for tube feeds. If we do too much at night >he gets sick. When I decrease night feeds he's really hungry during the day. >He's 42 lbs and 4 years old. I know everyone is different, but I'm getting very >little direction here, does anyone have a routine they'd like to share? > >Sorry this is so long, thanks for listening, > >Vicki, Mom to iel, age 4, EE, EG, asthma, allergies > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 1999 Report Share Posted December 28, 1999 Rhonda, Has he had actual motility testing? There is a big difference in motility testing and biopsying. If he has not had the testing, he needs to get to Pittsburgh and see {{{carlo}}}} for the testing BEFORE they place a Jtube. There is an organization that can help you get there... Steph. Re: [eosinophilic gastroenteritis] Digest Number 476 > > >Thanks so much for all of your comments about " food holidays " . iel has >really struggled with not being able to eat lately and I've been dying to feed >him. The reinforcement to stick with the diet was timely. > >Steph, if I didn't answer yet, yes, please forward my comments,(complaints) to the >Zevex rep if you still want to. I thought the problem got worse when they changed >to the heavier 1200ml bags, but that was about the same time we switched to >Elecare. Also, we've found that cleaning the contacts helps, even though it >doesn't look like there is anything there, another friend, with the same pump but >different formula, says sometimes she just keeps changing bags until one works >without giving her a " no food " alarm. > >Did anyone hear on the news a new treatment for asthma that is supposed to be >coming out next year that they think may have significant application for food >allergies? Several people have mentioned it to me, but no one knows anything >more. It works either on the IGg or Ige response. I think it's through 's >Hopkins, Aren't they the ones that have been working on peanut allergy? > >iel has his scope Tuesday to see if the elemental diet has worked. I'm >really hoping we can get the OK to reintroduce foods. I know it will be one at a >time, and Dr. Sicherer's list has nothing on it that iel likes, but still, >it's a step towards eating. > >I'm having trouble finding a schedule for tube feeds. If we do too much at night >he gets sick. When I decrease night feeds he's really hungry during the day. >He's 42 lbs and 4 years old. I know everyone is different, but I'm getting very >little direction here, does anyone have a routine they'd like to share? > >Sorry this is so long, thanks for listening, > >Vicki, Mom to iel, age 4, EE, EG, asthma, allergies > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 1999 Report Share Posted December 28, 1999 also, rhonda, what formula is he on? this sounds like what Kody was doing a year or so ago -- Steph To: eosinophilic gastroenteritis (AT) onelist (DOT) com eosinophilic gastroenteritis (AT) onelist (DOT) com> Date: Sunday, December 26, 1999 9:13 PM Subject: Re: [eosinophilic gastroenteritis] Digest Number 476 Vicki, my son has food allergies & dysmotility. He is on tube feeding 24 hours a day & is awaiting surgery for a permanent tube in his jejunum. We have the Zevex pump. The schedule we have him on right now is 2 hours on the pump & then the pump automatically stops for 1 hour & then starts back up. It seems to work well for him & keeps him from getting dehydrated or distended & gagging. Hope this might help. Rhonda, mom to 2, & Haven 5 Re: [eosinophilic gastroenteritis] Digest Number 476 > > >Thanks so much for all of your comments about " food holidays " . iel has >really struggled with not being able to eat lately and I've been dying to feed >him. The reinforcement to stick with the diet was timely. > >Steph, if I didn't answer yet, yes, please forward my comments,(complaints) to the >Zevex rep if you still want to. I thought the problem got worse when they changed >to the heavier 1200ml bags, but that was about the same time we switched to >Elecare. Also, we've found that cleaning the contacts helps, even though it >doesn't look like there is anything there, another friend, with the same pump but >different formula, says sometimes she just keeps changing bags until one works >without giving her a " no food " alarm. > >Did anyone hear on the news a new treatment for asthma that is supposed to be >coming out next year that they think may have significant application for food >allergies? Several people have mentioned it to me, but no one knows anything >more. It works either on the IGg or Ige response. I think it's through 's >Hopkins, Aren't they the ones that have been working on peanut allergy? > >iel has his scope Tuesday to see if the elemental diet has worked. I'm >really hoping we can get the OK to reintroduce foods. I know it will be one at a >time, and Dr. Sicherer's list has nothing on it that iel likes, but still, >it's a step towards eating. > >I'm having trouble finding a schedule for tube feeds. If we do too much at night >he gets sick. When I decrease night feeds he's really hungry during the day. >He's 42 lbs and 4 years old. I know everyone is different, but I'm getting very >little direction here, does anyone have a routine they'd like to share? > >Sorry this is so long, thanks for listening, > >Vicki, Mom to iel, age 4, EE, EG, asthma, allergies > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 1999 Report Share Posted December 28, 1999 Rhonda, I really, really, really recomend you go to Pitts and see Carlo. I have heard the nightmares about Hyman too. {{{{carlo}} however, is a wonderful, intelligent, compassionate, brilliant physician with a voice as smooth as silk.. (*sigh*)... Really, he is an excellent doctor with a very active motility center. A surgically placed jejunostomy requires the use of a standard J-tube which is long and a pain in the neck if it comes out; has to be replaced flouroscopically... with an active kid this is a MESS. . A roux en Y can be done which can be placed a standard button like you would use for a G-tube; however, this requires actually dissecting and re-anastamosing the bowel... you can never re-attach those nerves there, and this part of the bowel will never work again once this is done. Poking holes in the jejunum really messes up the motility forever. It may be what he needs, but I would certainly NOT recommend this procedure until you have seen a motility specialist and carlo is the man. I think there is another one who is supposed to be good in Utah or somewhere like that? Most of us have been to Carlo, though, and that place/hospital does these things EVERY DAY and sees sick kids from all over the world. He used to work with Hyman and then disassociated himself from the man, to his credit. steph. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 1999 Report Share Posted December 28, 1999 Steph, he is supposed to have the roux-en-y thing. They are calling it a surgical jejunostomy. I'm so lost & confused right now. is medcaid & trying to get him approved for any out of state procedure is a nightmare. Actually giving birth to him was easier.... LOL What part of the bowel will never work again? This hasn't been explained to me like this... Rhonda Re: [eosinophilic gastroenteritis] Digest Number 476 Rhonda, I really, really, really recomend you go to Pitts and see Carlo. I have heard the nightmares about Hyman too. {{{{carlo}} however, is a wonderful, intelligent, compassionate, brilliant physician with a voice as smooth as silk.. (*sigh*)... Really, he is an excellent doctor with a very active motility center. A surgically placed jejunostomy requires the use of a standard J-tube which is long and a pain in the neck if it comes out; has to be replaced flouroscopically... with an active kid this is a MESS. . A roux en Y can be done which can be placed a standard button like you would use for a G-tube; however, this requires actually dissecting and re-anastamosing the bowel... you can never re-attach those nerves there, and this part of the bowel will never work again once this is done. Poking holes in the jejunum really messes up the motility forever. It may be what he needs, but I would certainly NOT recommend this procedure until you have seen a motility specialist and carlo is the man. I think there is another one who is supposed to be good in Utah or somewhere like that? Most of us have been to Carlo, though, and that place/hospital does these things EVERY DAY and sees sick kids from all over the world. He used to work with Hyman and then disassociated himself from the man, to his credit. steph. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2003 Report Share Posted February 22, 2003 A while back someone on this list sent a link to purchase protein, etc. with free shipping - please re-send ! Digest Number 476 > Check out our website at: http://www.geocities.com/proteinpervs/ > For recipe information go to our database: > http://groups.yahoo.com/group/OSSG-Protein/database > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2004 Report Share Posted January 20, 2004 Hey, all! I hope everyone is doing awesome. I just wanted to check in and say hi, and to send a HUGE hug and congrats over to Tricia. You are the best, Tricia - I can't believe what a selfless and sweet woman you are. And who knows? Maybe there is another little one in the future for you. ;-) Alyssa, I am so glad you are back up and running. I've missed hearing from you! Ziva, congrats on the house! I am in MA, too - gotta love the price of real estate (ugh!), but hey, it's worth it for New England summers and Boston convenience. Everyone else, I love reading your posts every day - I just seem to never have time to type LOL! We are busy, but really really good over here. I can't say I won't be a bit relieved when this ridiculously cold weather ends, but all in all we can't complain. I'm making clam chowder today with Silk soy milk. It ought to be interesting - I'll let you know how it turns out! And, for those of you who can't do gluten and who don't mind the horrible fake colors in cereals LOL, MaltoMeal DynoBites are gluten free, and are a knockoff of Fruity Pebbles. The kids love them. I bought them as a treat since they usually get stuck with all organic stuff that I buy. You'd think they'd won the lottery! LOL Oh! And I got a bread machine! I use the Bob's Red Mill Gluten Free Wonderful Bread Mix and it comes out awesome - I love it! Love, Heidi, mom to Cal, 7 (he turned 7 Dec. 29!) and Jake, 4-1/2, celiac, allergic to dairy, pollen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2004 Report Share Posted January 20, 2004 Hey, all! I hope everyone is doing awesome. I just wanted to check in and say hi, and to send a HUGE hug and congrats over to Tricia. You are the best, Tricia - I can't believe what a selfless and sweet woman you are. And who knows? Maybe there is another little one in the future for you. ;-) Alyssa, I am so glad you are back up and running. I've missed hearing from you! Ziva, congrats on the house! I am in MA, too - gotta love the price of real estate (ugh!), but hey, it's worth it for New England summers and Boston convenience. Everyone else, I love reading your posts every day - I just seem to never have time to type LOL! We are busy, but really really good over here. I can't say I won't be a bit relieved when this ridiculously cold weather ends, but all in all we can't complain. I'm making clam chowder today with Silk soy milk. It ought to be interesting - I'll let you know how it turns out! And, for those of you who can't do gluten and who don't mind the horrible fake colors in cereals LOL, MaltoMeal DynoBites are gluten free, and are a knockoff of Fruity Pebbles. The kids love them. I bought them as a treat since they usually get stuck with all organic stuff that I buy. You'd think they'd won the lottery! LOL Oh! And I got a bread machine! I use the Bob's Red Mill Gluten Free Wonderful Bread Mix and it comes out awesome - I love it! Love, Heidi, mom to Cal, 7 (he turned 7 Dec. 29!) and Jake, 4-1/2, celiac, allergic to dairy, pollen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2004 Report Share Posted January 20, 2004 Hey, all! I hope everyone is doing awesome. I just wanted to check in and say hi, and to send a HUGE hug and congrats over to Tricia. You are the best, Tricia - I can't believe what a selfless and sweet woman you are. And who knows? Maybe there is another little one in the future for you. ;-) Alyssa, I am so glad you are back up and running. I've missed hearing from you! Ziva, congrats on the house! I am in MA, too - gotta love the price of real estate (ugh!), but hey, it's worth it for New England summers and Boston convenience. Everyone else, I love reading your posts every day - I just seem to never have time to type LOL! We are busy, but really really good over here. I can't say I won't be a bit relieved when this ridiculously cold weather ends, but all in all we can't complain. I'm making clam chowder today with Silk soy milk. It ought to be interesting - I'll let you know how it turns out! And, for those of you who can't do gluten and who don't mind the horrible fake colors in cereals LOL, MaltoMeal DynoBites are gluten free, and are a knockoff of Fruity Pebbles. The kids love them. I bought them as a treat since they usually get stuck with all organic stuff that I buy. You'd think they'd won the lottery! LOL Oh! And I got a bread machine! I use the Bob's Red Mill Gluten Free Wonderful Bread Mix and it comes out awesome - I love it! Love, Heidi, mom to Cal, 7 (he turned 7 Dec. 29!) and Jake, 4-1/2, celiac, allergic to dairy, pollen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2004 Report Share Posted January 20, 2004 Thanks to you all for the kind words! I'm thinking of writing a book about my experience. Nothing fancy- I'm not a very good writer, but I thought at the very least it will help me to remember everything that has happened over the last year or so! Trish > Hey, all! I hope everyone is doing awesome. I just wanted to check in > and say hi, and to send a HUGE hug and congrats over to Tricia. You are > the best, Tricia - I can't believe what a selfless and sweet woman you > are. And who knows? Maybe there is another little one in the future for > you. ;-) > > Alyssa, I am so glad you are back up and running. I've missed hearing > from you! Ziva, congrats on the house! I am in MA, too - gotta love > the price of real estate (ugh!), but hey, it's worth it for New England > summers and Boston convenience. > > Everyone else, I love reading your posts every day - I just seem to > never have time to type LOL! We are busy, but really really good over > here. I can't say I won't be a bit relieved when this ridiculously cold > weather ends, but all in all we can't complain. > > I'm making clam chowder today with Silk soy milk. It ought to be > interesting - I'll let you know how it turns out! > > And, for those of you who can't do gluten and who don't mind the > horrible fake colors in cereals LOL, MaltoMeal DynoBites are gluten > free, and are a knockoff of Fruity Pebbles. The kids love them. I > bought them as a treat since they usually get stuck with all organic > stuff that I buy. You'd think they'd won the lottery! LOL > > Oh! And I got a bread machine! I use the Bob's Red Mill Gluten Free > Wonderful Bread Mix and it comes out awesome - I love it! > > Love, > Heidi, mom to Cal, 7 (he turned 7 Dec. 29!) and Jake, 4-1/2, celiac, > allergic to dairy, pollen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2004 Report Share Posted January 20, 2004 Thanks to you all for the kind words! I'm thinking of writing a book about my experience. Nothing fancy- I'm not a very good writer, but I thought at the very least it will help me to remember everything that has happened over the last year or so! Trish > Hey, all! I hope everyone is doing awesome. I just wanted to check in > and say hi, and to send a HUGE hug and congrats over to Tricia. You are > the best, Tricia - I can't believe what a selfless and sweet woman you > are. And who knows? Maybe there is another little one in the future for > you. ;-) > > Alyssa, I am so glad you are back up and running. I've missed hearing > from you! Ziva, congrats on the house! I am in MA, too - gotta love > the price of real estate (ugh!), but hey, it's worth it for New England > summers and Boston convenience. > > Everyone else, I love reading your posts every day - I just seem to > never have time to type LOL! We are busy, but really really good over > here. I can't say I won't be a bit relieved when this ridiculously cold > weather ends, but all in all we can't complain. > > I'm making clam chowder today with Silk soy milk. It ought to be > interesting - I'll let you know how it turns out! > > And, for those of you who can't do gluten and who don't mind the > horrible fake colors in cereals LOL, MaltoMeal DynoBites are gluten > free, and are a knockoff of Fruity Pebbles. The kids love them. I > bought them as a treat since they usually get stuck with all organic > stuff that I buy. You'd think they'd won the lottery! LOL > > Oh! And I got a bread machine! I use the Bob's Red Mill Gluten Free > Wonderful Bread Mix and it comes out awesome - I love it! > > Love, > Heidi, mom to Cal, 7 (he turned 7 Dec. 29!) and Jake, 4-1/2, celiac, > allergic to dairy, pollen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2004 Report Share Posted January 20, 2004 Thanks to you all for the kind words! I'm thinking of writing a book about my experience. Nothing fancy- I'm not a very good writer, but I thought at the very least it will help me to remember everything that has happened over the last year or so! Trish > Hey, all! I hope everyone is doing awesome. I just wanted to check in > and say hi, and to send a HUGE hug and congrats over to Tricia. You are > the best, Tricia - I can't believe what a selfless and sweet woman you > are. And who knows? Maybe there is another little one in the future for > you. ;-) > > Alyssa, I am so glad you are back up and running. I've missed hearing > from you! Ziva, congrats on the house! I am in MA, too - gotta love > the price of real estate (ugh!), but hey, it's worth it for New England > summers and Boston convenience. > > Everyone else, I love reading your posts every day - I just seem to > never have time to type LOL! We are busy, but really really good over > here. I can't say I won't be a bit relieved when this ridiculously cold > weather ends, but all in all we can't complain. > > I'm making clam chowder today with Silk soy milk. It ought to be > interesting - I'll let you know how it turns out! > > And, for those of you who can't do gluten and who don't mind the > horrible fake colors in cereals LOL, MaltoMeal DynoBites are gluten > free, and are a knockoff of Fruity Pebbles. The kids love them. I > bought them as a treat since they usually get stuck with all organic > stuff that I buy. You'd think they'd won the lottery! LOL > > Oh! And I got a bread machine! I use the Bob's Red Mill Gluten Free > Wonderful Bread Mix and it comes out awesome - I love it! > > Love, > Heidi, mom to Cal, 7 (he turned 7 Dec. 29!) and Jake, 4-1/2, celiac, > allergic to dairy, pollen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2004 Report Share Posted January 21, 2004 Writing a book would be awesome! What a great memory to have! :-) *Alyssa*Mom of,: (5) Anaphylactic to peanuts, cashews, brazil nuts, macadamia nuts, and pistachios. Allergic to all nuts. Sensitive to dairy and soy. Eczema.: (3) No allergies Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2004 Report Share Posted January 21, 2004 Writing a book would be awesome! What a great memory to have! :-) *Alyssa*Mom of,: (5) Anaphylactic to peanuts, cashews, brazil nuts, macadamia nuts, and pistachios. Allergic to all nuts. Sensitive to dairy and soy. Eczema.: (3) No allergies Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2004 Report Share Posted January 21, 2004 Writing a book would be awesome! What a great memory to have! :-) *Alyssa*Mom of,: (5) Anaphylactic to peanuts, cashews, brazil nuts, macadamia nuts, and pistachios. Allergic to all nuts. Sensitive to dairy and soy. Eczema.: (3) No allergies Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2004 Report Share Posted January 21, 2004 I'm thinking of writing a book about my experience. Trish, That's a cool idea! DonnaShane - allergic to dairy, and pickles. Minnesota Re: Digest Number 476 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2004 Report Share Posted January 21, 2004 I'm thinking of writing a book about my experience. Trish, That's a cool idea! DonnaShane - allergic to dairy, and pickles. Minnesota Re: Digest Number 476 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2004 Report Share Posted January 21, 2004 I'm thinking of writing a book about my experience. Trish, That's a cool idea! DonnaShane - allergic to dairy, and pickles. Minnesota Re: Digest Number 476 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2004 Report Share Posted January 25, 2004 Oh! And I got a bread machine! Hi Heidi!!! I want a bread machine sooooo bad!!! I would love to make bread! How is the bread making going? *Alyssa*Mom of,: (5) Anaphylactic to peanuts, cashews, brazil nuts, macadamia nuts, and pistachios. Allergic to all nuts. Sensitive to dairy and soy. Eczema.: (3) No allergies Quote Link to comment Share on other sites More sharing options...
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