I wanted to say thank you.

[Guest guest]

I wanted to say Thank You for wecomeing me into the group.

I have been struggleing with trying to get good help for this child

basically on my own.

I did join a dieffernt group earlier but they kept getting in a

huff because and my speeling and grammer is not great. I wasnt there

for spelling and grammer lessons .

I live in a small town we dont have a bus or taxi and the nearest

hospitals ar 11/2 to 2 hours in each dierection.

We do have a blood meter it is an accuchek with comfort curve

strips. He is great about getting checked as he dosnt want to have

anothere seizure. He has a great sense of humor for all he has gone

through. He says if he lets seizures and sugar problems get him down

he wont accomplish anything in the future. He had great teachers

last year that listened to him and let him fly. He is going into 2

grade and according to nerologists that if a child has seizures they

should be delayed. Well he is in a advanced 2/3 grade split class.

He didnt qualify for special ed he was to advanced.

When ever he had a sub he walked up and told her his name is william

nad he has sugar problems and seizure problems. You would be

suprised of the stunned looks on thier face as he explained how to

tell the difference between a blood sugar seizure and a regular

seizure and what to do and how to take his blood sugar. Where his

juice is and how to get the nurse fast. Sometimes he is a little to

advanced. Unlike me he has no fear of the seizures.

I did take him to uva a teaching hospital in charlottesville va

they were the ones who gave me so many problems for a year.

I now have him with a teaching hospital in Richmond Va. The nero

there has been a big help.

He has to go 1 year without a seizure before I can get him on my

husbands insurance. His seizure med is quite expensive but it is

going down as the new nero thinks its more of a sugar problem then a

epilepsy problem. He is down to 6 1/2 pills a day wich comes to

481.32 month. The nero has gotten me the strips and lancets through

her office. I will call her on Monday and tell her I want to speak

to a dietician and nutrishonist.

I cant get state aid for him as his bio sperm doner ( thats what I

call this sub human) I refuse to let him see william give visitation

or tell him of his whereabouts. has our last name and

paterinity has never been proved.

This persom assulted williams sister when she was 2 and exposed

himself to her and other things but it came down to his word over

hers even with a broken hymen. He had a lot of ties with the local

police and his mother worked with social services.

So i moved us a long way away.

So for the next 4 months my fingers are crossed. I do have a

seizure trained dog and if william breaths funny he comes and gets

me and if he seizes he lays over william so he wont roll off his

bed or roll around on the floor and hurt himself and the dog holws

loud untill someone comes.

Since watchig his bloodsugar levels we havent had any awakenings.

Is there a way to bring high blood sugar down? What is to high for

a 7 year old? And how high should a meal get after eating? The last

time we say an endo he said he souldnt go above 120 if thats the

case after meals he sometimes is in the 250. It stays there and goes

down after 4 hours to 190.

Not to sure about the numbers yet I have been documenting everything

he eats. Well please keep the advise coming and thank you all for

being so nice.