Guest guest Posted March 14, 2000 Report Share Posted March 14, 2000 Kelsey: Welcome back - glad to have you and as for the rice noodles Clayton loves them. Sharon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2000 Report Share Posted March 14, 2000 Lynn, I find rice noodles at the health food store and also www.missrobens.com has a bunch of flours and noodles made from non-gluten grains or seeds/other plants. Personally, I find it hard to cook them just right, so the noodles don't " mushify " , but the Food Allergy Survivors Together website has tips on cooking them. I'll find the link if you'd like. So far I " ve only tried 3 brands, I didn't like the Lundberg Family Farms rotini at all (too mushy), I love Tinkyada spaghetti style noodles, and EnerG's macaroni rice pasta is good too. I have yet to try the DeBoles penne or Good Life rice elbows, but I'll let you know how they go when I do! Kelsey ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2000 Report Share Posted March 14, 2000 Hi Lynn - I'm Beth - an adult with EG, but i also have the problem with vomiting, more than stomach pain with EG - so i understand what your son is going through...I'm down to only eating potatoes right now, though i just started prednisone again yesterday, so expect things to be a bit more " normal " in a few days... When i used to be able to eat rice, i loved rice noodles - they're great and taste like regular noodles...you can usually find them in any health food/natural food store...they also usually have rice crackers and rice chips that are OK too... I hope you can find some stuff for your son to eat... Beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2000 Report Share Posted March 14, 2000 > Thanks for replying, Beth. Shane has tried the rice crackers and one type > of rice bread. He doesn't like either and won't eat them. But I didn't > know there was rice noodles, rice chips, or rice pudding. I'll look for it > the next time I'm at the health food store. Maybe Shane can learn to > acquire a taste for some of these things. Lynn - I noticed that you are in Gaithersburg, I am in Reston. I have seen rice noodles at Giant - I think they are in the Asian food section. I don't know about Safeway, I rarely go there. I'm sure you could also find them in Fresh Fields. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2000 Report Share Posted March 14, 2000 Greetings! I am new to this support group. I have a 12 year old son, Shane, who was diagnosed with EG a little over 1.5 years ago. He has been sick for over 2 years -- it took almost 6 months to diagnose him and he wasted away to almost nothing in the interim -- like a walking skeleton. He was anorexic by the time he was finally diagnosed and would never eat. Just getting fluids down him and to eat a piece of toast was a major effort. I really believe he has always had this problem since his stomach has always hurt him and he has alway vomited easily, his entire life. But he became extremely ill a little over two years ago. Since he was diagnosed, he has been placed on steriods three times -- he is currently on them -- for a total of over 10 months in 26 months. I didn't know there was a support group on the Web until I read the article in the Washington Post on the Harlow family and contacted . Thank you, , for pointing me to this Web site. Shane is currently being treated by two doctors at Hopkins Hospital, Dr. Wood, a pediatric allergist, and Dr. Oliva-Hempker, a pediatric gastro. I take Shane back to Hopkins Hospital the end of this month to see both doctors. I will be taking the article on the Harlow family to discuss it with the doctors. They have already talked about feeding Shane the formula through a tube, but we haven't resorted to it yet. But I am very uncomfortable with him being on steriods for so long. Nothing else has worked, though, to stop his vomiting. When the symptoms flare up, ice chips won't even stay down, and this lasts for weeks and weeks and weeks without the steroids. The doctors tell me that Shane vomits with this disease more than most kids. They say most kids have more pain than vomiting. Anybody, has this been your experience? Anyway, where does one find rice noodles? In health food stores? Shane currently has five proteins eliminated from his diet -- milk, wheat, soy, eggs, and nuts. It's hard to find things he can eat that he likes, and he misses noodles. Thanks for any help you can give me. I've felt very alone in all this for the past two years and am delighted to find a support group. Lynn Global Methods & Tools IBM Global Services 800 North Frederick Avenue Gaithersburg, MD 20879 T/L 372-3307 Fax T/L 372-8963 sdidinsky@... on 03/14/2000 10:09:10 AM Please respond to eosinophilic gastroenteritis (AT) onelist (DOT) com To: eosinophilic gastroenteritis (AT) onelist (DOT) com cc: Subject: Re: [eosinophilic gastroenteritis] new/back to the list From: sdidinsky@... Kelsey: Welcome back - glad to have you and as for the rice noodles Clayton loves them. Sharon ------------------------------------------------------------------------ DON'T HATE YOUR RATE! Get a NextCard Visa, in 30 seconds! Get rates as low as 0.0% Intro or 9.9% Fixed APR and no hidden fees. Apply NOW! http://click.egroups.com/1/2120/4/_/474479/_/953046553/ ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2000 Report Share Posted March 14, 2000 Thanks, Kelsey. I'd like the url for the Food Allergy Survivors Together website, when you get a chance. Thanks again, Lynn " Kelsey McNitt " mcnutt22@...> on 03/14/2000 01:30:10 PM Please respond to eosinophilic gastroenteritis (AT) onelist (DOT) com To: eosinophilic gastroenteritis (AT) onelist (DOT) com cc: Subject: Re: [eosinophilic gastroenteritis] new/back to the list Lynn, I find rice noodles at the health food store and also www.missrobens.com has a bunch of flours and noodles made from non-gluten grains or seeds/other plants. Personally, I find it hard to cook them just right, so the noodles don't " mushify " , but the Food Allergy Survivors Together website has tips on cooking them. I'll find the link if you'd like. So far I " ve only tried 3 brands, I didn't like the Lundberg Family Farms rotini at all (too mushy), I love Tinkyada spaghetti style noodles, and EnerG's macaroni rice pasta is good too. I have yet to try the DeBoles penne or Good Life rice elbows, but I'll let you know how they go when I do! Kelsey ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com ------------------------------------------------------------------------ PERFORM CPR ON YOUR APR! Get a NextCard Visa, in 30 seconds! Get rates as low as 0.0% Intro or 9.9% Fixed APR and no hidden fees. Apply NOW! http://click.egroups.com/1/2121/4/_/474479/_/953058611/ ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2000 Report Share Posted March 14, 2000 Thanks for replying, Beth. Shane has tried the rice crackers and one type of rice bread. He doesn't like either and won't eat them. But I didn't know there was rice noodles, rice chips, or rice pudding. I'll look for it the next time I'm at the health food store. Maybe Shane can learn to acquire a taste for some of these things. I hope you feel better soon. Thanks again, Lynn Global Methods & Tools IBM Global Services 800 North Frederick Avenue Gaithersburg, MD 20879 T/L 372-3307 Fax T/L 372-8963 Rosie0613@... on 03/14/2000 01:16:50 PM Please respond to eosinophilic gastroenteritis (AT) onelist (DOT) com To: eosinophilic gastroenteritis (AT) onelist (DOT) com cc: Subject: Re: [eosinophilic gastroenteritis] new/back to the list From: Rosie0613@... Hi Lynn - I'm Beth - an adult with EG, but i also have the problem with vomiting, more than stomach pain with EG - so i understand what your son is going through...I'm down to only eating potatoes right now, though i just started prednisone again yesterday, so expect things to be a bit more " normal " in a few days... When i used to be able to eat rice, i loved rice noodles - they're great and taste like regular noodles...you can usually find them in any health food/natural food store...they also usually have rice crackers and rice chips that are OK too... I hope you can find some stuff for your son to eat... Beth ------------------------------------------------------------------------ MAXIMIZE YOUR CARD, MINIMIZE YOUR RATE! Get a NextCard Visa, in 30 seconds! Get rates as low as 0.0% Intro or 9.9% Fixed APR and no hidden fees. Apply NOW! http://click.egroups.com/1/2122/4/_/474479/_/953057814/ ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2000 Report Share Posted March 14, 2000 I'll check out the Asian section. Thanks for the info. Lynn Fuller susan.fuller@...> on 03/14/2000 10:15:35 AM Please respond to eosinophilic gastroenteritis (AT) onelist (DOT) com To: eosinophilic gastroenteritis (AT) onelist (DOT) com cc: Subject: Re: [eosinophilic gastroenteritis] new/back to the list > Thanks for replying, Beth. Shane has tried the rice crackers and one type > of rice bread. He doesn't like either and won't eat them. But I didn't > know there was rice noodles, rice chips, or rice pudding. I'll look for it > the next time I'm at the health food store. Maybe Shane can learn to > acquire a taste for some of these things. Lynn - I noticed that you are in Gaithersburg, I am in Reston. I have seen rice noodles at Giant - I think they are in the Asian food section. I don't know about Safeway, I rarely go there. I'm sure you could also find them in Fresh Fields. ------------------------------------------------------------------------ DON'T HATE YOUR RATE! Get a NextCard Visa, in 30 seconds! Get rates as low as 0.0% Intro or 9.9% Fixed APR and no hidden fees. Apply NOW! http://click.egroups.com/1/2120/4/_/474479/_/953064646/ ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
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