Guest guest Posted March 4, 2000 Report Share Posted March 4, 2000 Steph, In your recent post, you mentioned that the anti-IgE drugs are now in clinical trials - or did I read that wrong? If they are indeed in clinical trials, where can the rest of us on this list find out more information on these trials? Thanks, -Joy ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2000 Report Share Posted March 4, 2000 Joy - I am still waiting to hear from Dr. Metcalfe on that VERY question. There is a big allergy conference in San Diego this weekend and my allergist was going to corner Metcalfe and Sampson on that question too. Kenny contacted the trials, I think they are based in Colorado and not at the NIH, however. Again, cautious optimism is appropriate here. This drug should it pan out to be all that it is supposed to be WILL eliminate all of our food allergy problems. HOWEVER, there is NO evidence that will solve the eos picture as THAT link cannot be proven. It will be so very interesting to see what the adjunctive effects are in addition to wiping out the actual IgE mediated reactions. Remember, there are many kids with eos disease (two of mine as a matter of fact) that have no food allergies. I actually only RAST tested positive to dairy. I'm trying to keep my excitement in check, realizing that too high of hopes that get dashed are sometimes hard to pick myself up from. We are very optimistic that the drug will at least help me tolerate the formula without requiring so much @#4@#$@#$ prednisone which I absolutely DESPISE being on. S. [eosinophilic gastroenteritis] Anti-IgE drug trials > > >Steph, > >In your recent post, you mentioned that the anti-IgE drugs are now in >clinical trials - or did I read that wrong? If they are indeed in clinical >trials, where can the rest of us on this list find out more information on >these trials? > >Thanks, > >-Joy >______________________________________________________ >Get Your Private, Free Email at http://www.hotmail.com > > >------------------------------------------------------------------------ >GET A NEXTCARD VISA, in 30 seconds! Get rates as low as 2.9% >Intro or 9.9% Fixed APR and no hidden fees. Apply NOW! >http://click.egroups.com/1/936/4/_/474479/_/952209156/ >------------------------------------------------------------------------ > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2000 Report Share Posted March 5, 2000 Steph, Thanks for your reply. I understand and appreciate your cautious optimism - I realize there is no promise of cure or even symptomatic improvement for eos. disease. I am very curious about the drug, though, because of what it might do for those of us with obvious signs of food allergies (i.e., skin test positive for foods that cause symptoms), and what other allergic conditions may be improved by anti-IgE drugs. Thanks again, -Joy ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2000 Report Share Posted March 6, 2000 >Kenny contacted >the trials, I think they are based in Colorado and not at the NIH, however. From what I understand, there are a few (I think 3) drug companies that are working on this kind of anti-IgE drug. I assume that each company will have to do its own trials, and I am sure that time-to-market is imperative for each company. The trial that I looked into was based out of National Jewish in Denver, and while they were testing the anti-IgE drug, this trial was specifically examining the reaction to peanut-allergic people. (is the trials list still on Medscape? I cant find it) I was rejected in the above study since my IgE serum level was over 5000 at the time, and the upper limit defined for the study was 700. This does not imply that it wont help people with high IgE levels, but each study needs to set boundaries, and the IgE level was set at 700. I was ready to move to Denver (if required) to partake in this study! I'm keeping my fingers crossed on the early release of this drug too! Kenny Quote Link to comment Share on other sites More sharing options...
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