Guest guest Posted September 30, 1999 Report Share Posted September 30, 1999 Okay here goes Hi my name is Judy. I am new to the group and wanted to say hi to everyone. I am a 53 year old caucasian female with Eosinophilic Gastroenteritis. I have been diagnosed with the sub mucosal form of EG. I was diagnosed three years age and take Gastrocrom and Allegra. Until a few days ago I felt very alone in the world having this disease. Now I know there are others fighting the battle of Doctors who think they know but don't. I would really like to know what other adults with this disease are going through. Have you found it to be progressive or is there a status quo? I also have Diabetes so am desperate to stay off the steroids. I had a Heart attack a year ago and wonder about Hyper eosinophilia. Anyone know if this disease progresses? I have a wonderful allergist but really no good support on a general level ( Not enough knowledge.) I have had doctors tell me oh yes they knew all about it only to discover their ignorance. I knew more than they did. They hear the words and think they know the definition. I am the mother of four adult children who all suffer GERD to some degree. My first child died at three months of age. She had Hirsprungs and was allergic to most formulas. After reading the postings for several days I wonder what we would have gone through 30 years ago if she had lived. My husband is retired from the Marine Corps so I have empathy for the problems the military families are going through. Quote Link to comment Share on other sites More sharing options...
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