Re: Steph

[Guest guest]

Our GI doc has been telling us for years that he has seen kids outgrow it

many times. He told us first that BJ would be ok by 3, now that he is

4-1/2, it is 5.

Dawn

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>

> To: eosinophilic gastroenteritis (AT) onelist (DOT) com

> Subject: Re: [eosinophilic gastroenteritis] Steph

> Date: Thursday, January 20, 2000 4:02 PM

>

>

>

> Steph

> Who told you that some kids outgrow EG,EC,EE? Thats the first I have

heard of

> this.

> Is there any documention on this?

> Just curious

> Thanks Dan's Mom 18yrs old EE

>

> Steph wrote:

>

> >

> >

> > kATHY,

> >

> > yes, many kids do " outgrow " EG, EC, EE.

> >

> > Some do not. They don't know why. In our cases, none are expected to

> > outgrow it, but I still hold out hope.

> >

> > As for me, I have had many problems with formulas (I was skin test

positive

> > to vivonex a copule of months ago, thus the switch to Elecare). I did

have

> > some warnings over the past couple of weeks, which I self-treated with

> > Benadryl and foolishly ignored. I am G-tube fed and completely

dependent on

> > formula. I also have been TPN-dependent twice (IV-fed through a

catheter

> > placed near the heart) like my son Kody and Spencer here on the list.

I

> > have had many anaphylactic reactions, about 7 that I can think of off

hand.

> > The one last night had to be in the top 3 of severity. The other two I

was

> > in-patient Thank God when it happened, or I would not have survived

them. I

> > now have Epi-Pens and Anakits at home (which I used). We also had a

nurse

> > here last night when it happened.

> >

> > My kids also used to do the mucous-puke thing to foods. It was never a

good

> > sign. I'd stay away from potatoes with him.

> >

> > Certainly, I will keep the list updated on how our plans progress and

what

> > we learn.

> >

> > Steph.

> >

> > __________________________________________________

> >

> >