Guest guest Posted July 15, 2004 Report Share Posted July 15, 2004 my little boy is 11. He has had seizures all of his life (stated when he was 3 weeks old). He has had to take many many pills all of his life too. On top of having epilepsy he had a birth defect of his kidneys and bladder that required surgery to " rebuild " his insides. He had his first MRI as a baby and has had many since that time. He even got a copy of his MRI pictures that he got to take to school for show and tell. As well as having twice yearly EEG's which he thinks are fun too. He thinks they are cool and said to tell you that the MRI is kind of fun and nothing to be afraid of. And to top it off everyone at the hospital is always VERY friendly and makes it more fun! The good news for you, is that is now going through puberty...becoming a little man...and his last EEG in December showed NO MORE SEIZURE activity!!! He weaned off of his depakote (he was taking 4 pills, 3 times a day) in February and he has been seizure and headache free ever since. The doctors told us that many many little kids get to " outgrow " seizures as the hormones from growing up tend to change the make up of the brain, making the seizures go away.... Good luck with your MRI, you will do fine!!! hugs Keri and Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2004 Report Share Posted July 15, 2004 my little boy is 11. He has had seizures all of his life (stated when he was 3 weeks old). He has had to take many many pills all of his life too. On top of having epilepsy he had a birth defect of his kidneys and bladder that required surgery to " rebuild " his insides. He had his first MRI as a baby and has had many since that time. He even got a copy of his MRI pictures that he got to take to school for show and tell. As well as having twice yearly EEG's which he thinks are fun too. He thinks they are cool and said to tell you that the MRI is kind of fun and nothing to be afraid of. And to top it off everyone at the hospital is always VERY friendly and makes it more fun! The good news for you, is that is now going through puberty...becoming a little man...and his last EEG in December showed NO MORE SEIZURE activity!!! He weaned off of his depakote (he was taking 4 pills, 3 times a day) in February and he has been seizure and headache free ever since. The doctors told us that many many little kids get to " outgrow " seizures as the hormones from growing up tend to change the make up of the brain, making the seizures go away.... Good luck with your MRI, you will do fine!!! hugs Keri and Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2004 Report Share Posted July 15, 2004 my little boy is 11. He has had seizures all of his life (stated when he was 3 weeks old). He has had to take many many pills all of his life too. On top of having epilepsy he had a birth defect of his kidneys and bladder that required surgery to " rebuild " his insides. He had his first MRI as a baby and has had many since that time. He even got a copy of his MRI pictures that he got to take to school for show and tell. As well as having twice yearly EEG's which he thinks are fun too. He thinks they are cool and said to tell you that the MRI is kind of fun and nothing to be afraid of. And to top it off everyone at the hospital is always VERY friendly and makes it more fun! The good news for you, is that is now going through puberty...becoming a little man...and his last EEG in December showed NO MORE SEIZURE activity!!! He weaned off of his depakote (he was taking 4 pills, 3 times a day) in February and he has been seizure and headache free ever since. The doctors told us that many many little kids get to " outgrow " seizures as the hormones from growing up tend to change the make up of the brain, making the seizures go away.... Good luck with your MRI, you will do fine!!! hugs Keri and Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2004 Report Share Posted July 15, 2004 Hi ! Is that really you? Very cool. You write very well. That is very cool that you got to read your story in the senate building. I used to take lots of pills too. That is yucky. Do you know about insulin? You may have seizures because your body does not make the right amount of insulin. If that is true, then the pills you take now may not be best. There may be something better than the pills to stop the seizures. I think that is why they want to test your blood for 5 hours and go in the MRI. It is good they are testing your thyroid. I had mine tested too. Then I had to do something like MRI. That was creepy, but it was ok. Write again. Your gram is cool! Rach > My name is my gram talks to you. > Iam 7 she is in the bath tub. > She said that you would tell me what they > are going to do to me. > I do not want to go to sleep and go in the mri . > They are testing my blood for 5 hours. > They are testing amy thiroid. > My speeling is not great yet Iam in a 2 grade > and 3 grade split class. > I do not care if they take my blood. > I can poke myself and take my blood. > I have seizures to. > I have to take pills that are not fun. > I take 7 pills a day. > I used to take 18 a day. > The othr doctor the head one said > I might be able to stop taking them. > Dont know if I want to. > Seizures hurt.But my gram is always > right there for me. > she helped me write a story about seizures > and we got to read it in the senate building > to a bunch of people. They cried. How silly. > goodbye > william Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2004 Report Share Posted July 15, 2004 -Hi , My name is Vicki...I read your letter and was so touched...you sound like such a grown up.I have also followed your story through your grandma's letters. I understand how you feel about MRI's, I have had to have quite a few of them myself, not for the same reasons as you...I had a bad accident 6 years ago and messed up my neck and shoulders...but like you I do not like them. So I have found that if I go in ...close my eyes...and think of places I'd rather be(like the park,beach,or somewhere like that)It's not quite so bad!! You are a strong boy and can get through anything you put your mind to. So good Luck and God Bless. I will keep you in my prayers.Lots of hugs Vicki N.-- In alldiabeticinternational , " laura reynolds " wrote: > My name is my gram talks to you. > Iam 7 she is in the bath tub. > She said that you would tell me what they > are going to do to me. > I do not want to go to sleep and go in the mri . > They are testing my blood for 5 hours. > They are testing amy thiroid. > My speeling is not great yet Iam in a 2 grade > and 3 grade split class. > I do not care if they take my blood. > I can poke myself and take my blood. > I have seizures to. > I have to take pills that are not fun. > I take 7 pills a day. > I used to take 18 a day. > The othr doctor the head one said > I might be able to stop taking them. > Dont know if I want to. > Seizures hurt.But my gram is always > right there for me. > she helped me write a story about seizures > and we got to read it in the senate building > to a bunch of people. They cried. How silly. > goodbye > william Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2004 Report Share Posted July 17, 2004 you are such a brave little man. I just wanted to tell you I cried over the way you have been treated at that hospital. I admire you and your grandmother, you both make me very proud. Your grandmother will make sure that you are treated right I know with my heart. If you need to talk we are all here for you. Hugs Debi~~*~~ > My name is my gram talks to you. > Iam 7 she is in the bath tub. > She said that you would tell me what they > are going to do to me. > I do not want to go to sleep and go in the mri . > They are testing my blood for 5 hours. > They are testing amy thiroid. > My speeling is not great yet Iam in a 2 grade > and 3 grade split class. > I do not care if they take my blood. > I can poke myself and take my blood. > I have seizures to. > I have to take pills that are not fun. > I take 7 pills a day. > I used to take 18 a day. > The othr doctor the head one said > I might be able to stop taking them. > Dont know if I want to. > Seizures hurt.But my gram is always > right there for me. > she helped me write a story about seizures > and we got to read it in the senate building > to a bunch of people. They cried. How silly. > goodbye > william Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.