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Re: eg

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No , I take Gastrochrom. I think it is considered safe during

pregnancy, but can understand your reluctance to take anything that might

harm the baby.

I had a letter from someone reguarding something to do during the last

trimester to help with the baby's digestive system.... I hope they will

post that here.. I will try to find that letter, but deleted a lot because

of the virus.....Didn't want to take any chances... I also keep changing

your messages to plain text because Kak is transmitted with HTML......

Judy

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In a message dated 04/11/2000 1:07:53 PM Pacific Daylight Time,

jpotter@... writes:

<< tested for Celiac's

disease, but my husband had a cousin who had it. Can it be

heriditary? >>

Very definitely! I hear that if one child has it his or her sibling or

siblings could very well have it too.

Di

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Di,

My other son is 2 ½ and has never had a bit of

trouble. My husband's cousin eventually grew out of the condition. I will

definitely ask my GI that when I talk with him today. Is Celiac's something

you have from the start or can you develop it? Karson was fine for his

first 3 months.

(mom of Karson)

Re: [eosinophilic gastroenteritis] EG

In a message dated 04/11/2000 1:07:53 PM

Pacific Daylight Time,

jpotter@... writes:

<< tested for Celiac's

disease, but my husband had a cousin who

had it. Can it be

heriditary? >>

Very definitely! I hear that if one child

has it his or her sibling or

siblings could very well have it too.

Di

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Tina,

Thanks for the info. What do EE and EC stand for?

I just talked to my GI he wants to see Karson tomorrow morning for x-rays to

see why he is so constipated. He was pretty short with me on the phone, he

makes me feel like he no longer wants to treat Karson. He did say Do you

work outside the home? I'm a teacher and we have to drive 2 hours to the

dr. With all his appointments I'm running out of leave time. I was off 7

weeks when he was in the hospital and after he got home to care for him.

How do you do it? I'm starting to get really stressed out.

(mom to Karson)

[eosinophilic gastroenteritis] EG

I also breast fed Alyssa for 18 mon.

and she has EG,EE and EC

and noone could give me a answer on how she

got this I have been told

some many things that I have gave up trying

figure to how she got

this to just focusing on how to deal with

it, as far and all the

sinus infections,URI and all that I have

asked if it is connected and

the GI said yes the ped. said he didn't know

and the ENT said no but

I have never heard of EG before, so you have

your answers I don't

know, apparently the bone spurs in the sinus

cavities is caused from

the prednisone, and the infection is caused

possible by allergies and

there is nothing that can help, so that is

what I have been told, On

the thought of leaky tubes Zevex told me to

pass this along if anyone

has this problem contact your supplier

Alyssa has had to have 2 tubes

replaced this month from leaky valves and

finally I complained a rep

came out to the house and looked at it and

said yes it is leaking

like i didn't know that, they took one back

to the maker and said

they didn't know why it was leaking but it

was she said that we were

the only family that complained and if there

were more to come

forward all buttins will be replaced free of

charge and all Thanks ,

Tina

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Hi ,

I don't know if anyone answered your question about EE and EC. EE is Eosinophilic Esophagitis. Eo's in the Esophagus. EC is Eosinophilic Colitis, Eo's in the Colon.

Doctors sure can be a pain..... I hope you just caught him in a bad moment... It is hard enough having a child who is sick without having to deal with a doctor who is not understanding.....

Does this doctor have any other patients with EG? I know I have frustrated even my favorite doctor because I have come up with information about this disease. Most of them don't like that unfortunately.... But they don't live with the child who has it or themselves live with the pain... Here on this list you have so many experiences to draw from. He would have to have a very large base of EG patients to even begin to know all that you can learn from other Moms who have children with this disease.

I hope all goes well tomorrow. Hang in there... I think the initial learning is the worst... Hopefully Karson will feel better soon... I sure hope so.

Judy

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