I need advice - problem with

[Guest guest]

Apples and juice even diluted to 1:4 parts water will give me terrible tummy

pains. The last time i ate an apple it hurt so bad I didn't eat for 8 days.

I wish I could help but all I know is from my own experience it could be

the apple juice giving her fits. How old is ? Would she understand

what being dehydrated means and being in the hospital stuck to more tubes

and needles is like? I'm keeping you in my thoughts.

Kelsey

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[Guest guest]

How long has it been since she has had no liquid? The apple

juice can give stomach cramps and it can last a long time. I tried

it on Spencer once. Even if they aren't allergic to it you can still

get cramps, belly pain.

[eosinophilic gastroenteritis] I need advice - problem with

> Hi All,

>

> I really need some advice from you all. is sick. She has a bad

> cold, but she also is having a great deal of stomach pain. We tried,

> unsuccessfully, to give her some apple juice and some corn last week.

> Since then she has been having major belly pain. She hasn't had any food

> for about 4 days now. My question concerns her Vivonex. She is totally

> refusing it (she's also refusing Pedialyte). She has a g-tube, so I could

> force it issue and feed her anyway. is VERY strong willed and it

> would be a major fight. I hate to do that because there is obviously a

> reason why she doesn't want to eat. On the other hand, I don't want her

to

> become dehydrated. Any advice?

>

> Sherri

>

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[Guest guest]

Hi All,

I really need some advice from you all. is sick. She has a bad

cold, but she also is having a great deal of stomach pain. We tried,

unsuccessfully, to give her some apple juice and some corn last week.

Since then she has been having major belly pain. She hasn't had any food

for about 4 days now. My question concerns her Vivonex. She is totally

refusing it (she's also refusing Pedialyte). She has a g-tube, so I could

force it issue and feed her anyway. is VERY strong willed and it

would be a major fight. I hate to do that because there is obviously a

reason why she doesn't want to eat. On the other hand, I don't want her to

become dehydrated. Any advice?

Sherri

[Guest guest]

Do you normally give her apple juice and corn. Just wondering because most

dieticians have told us those 2 foods are really good natural laxatives even

for people without tummy problems..

Dawn, Loving mommy to 2 girls and a super strong little boy

Ebay seller ID - mommyto3greatkids

[eosinophilic gastroenteritis] I need advice - problem with

> Hi All,

>

> I really need some advice from you all. is sick. She has a bad

> cold, but she also is having a great deal of stomach pain. We tried,

> unsuccessfully, to give her some apple juice and some corn last week.

> Since then she has been having major belly pain. She hasn't had any food

> for about 4 days now. My question concerns her Vivonex. She is totally

> refusing it (she's also refusing Pedialyte). She has a g-tube, so I could

> force it issue and feed her anyway. is VERY strong willed and it

> would be a major fight. I hate to do that because there is obviously a

> reason why she doesn't want to eat. On the other hand, I don't want her

to

> become dehydrated. Any advice?

>

> Sherri

>

> ------------------------------------------------------------------------

> Get a NextCard Visa, in 30 seconds!

> 1. Fill in the brief application

> 2. Receive approval decision within 30 seconds

> 3. Get rates as low as 2.9% Intro or 9.9% Fixed APR

> Apply NOW!

> http://click.egroups.com/1/975/5/_/474479/_/955311521/

> ------------------------------------------------------------------------

>

>

>

[Guest guest]

Hi Sherry,

Miriam was constantly complaining about stomach pains and fighting feedings.

I tried one can of elecare from Phyllis that she sent me and she for those 2

days felt much better without pain and didn't fight the feeds. I am now

trying to find people coming to Israel to carry elecare for me because they

don't have it here and the insurance doesn't cover it. It was a very hard

decision to make about switching her b/c I have an 8 month supply of vivanex

that was brought in and donated to her and now she is not using it at all.

Miriam has now been on the elecare for a week and she doesn't complain

anymore about her stomach hurting and fight her feeds. I also notice that

she stopped bloating up alot which she was doing with the vivanex. If there

is anyway to get a hold of a couple of cans and try it out it might be worth

it to get an idea if it is the vivanex or not. Our doctors didn't believe me

that it could be the vivanex but we all see now.

Good Luck

Shana (mom to Miriam 4 1/2 (3 days older than AJ)Severe Multiple food

allergies possible EG NG tube waiting for the doctors to finally decide to

do the g-tube , Yisroel 2 1/2 severe multiple food allergies ,allergic to

all antibiotics, possible reflux waiting for doctors to take an interest in

figuring him out.Tehilla 8 ADHD)

[eosinophilic gastroenteritis] I need advice - problem with

> Hi All,

>

> I really need some advice from you all. is sick. She has a bad

> cold, but she also is having a great deal of stomach pain. We tried,

> unsuccessfully, to give her some apple juice and some corn last week.

> Since then she has been having major belly pain. She hasn't had any food

> for about 4 days now. My question concerns her Vivonex. She is totally

> refusing it (she's also refusing Pedialyte). She has a g-tube, so I could

> force it issue and feed her anyway. is VERY strong willed and it

> would be a major fight. I hate to do that because there is obviously a

> reason why she doesn't want to eat. On the other hand, I don't want her

to

> become dehydrated. Any advice?

>

> Sherri

>

> ------------------------------------------------------------------------

> Get a NextCard Visa, in 30 seconds!

> 1. Fill in the brief application

> 2. Receive approval decision within 30 seconds

> 3. Get rates as low as 2.9% Intro or 9.9% Fixed APR

> Apply NOW!

> http://click.egroups.com/1/975/5/_/474479/_/955311521/

> ------------------------------------------------------------------------

>

>

>

[Guest guest]

In a message dated 4/16/00 3:37:35 PM Eastern Daylight Time,

selias@... writes:

<< It was a very hard

decision to make about switching her b/c I have an 8 month supply of vivanex

that was brought in and donated to her and now she is not using it at all.

Miriam has now been on the elecare for a week and she doesn't complain

anymore about her stomach hurting and fight her feeds. >>

Shana:

We also noticede less stom ach pain and bloating after we switched Clayton

to Elecare from Vivonex a little less than a year ago. He has now been on

the Elecare for almost a year. No as much tummy pain - although he is eating

some by mouth - but still a major struggle here to gain weight.

Love,

Sharon

[Guest guest]

<

>

Hi everyone --

Just had to join in on this and let you know what has been happening with

. I've been meaning to write this for a couple of weeks but things

have been just SO incredibly busy and with needing all the endoscopy work we

have had to have and life has just been too hectic. However, here's a brief

summary of what has been happening for her that is working and I just wanted

to share our newest interesting approach.

The drs. still won't come out and diagnosis with EG. HOWEVER, I have

convinced them to try the same medication routine as what has helped with the

son of a friend I have made here in town. His mother and I have met through

a mutual friend who thought that both her son Nick and sounded so

similar in their eating problems. Come to find out that Nick was finally

diagnosed with EG about a year and a half ago. He's dealt with the symptoms

all of his life and he is now 13.

Anyway, the new med (Bromfed) is helping . Nick is now able to eat

almost anything that he wants. I have been able to add wheat, corn and some

dairy back into 's diet. We've also let her have tomato and so far so

good.

The other thing that we have been doing to help wean off of Neocate

(which has been her primary source of nutrition for over a year) is using a

new product that just came on the market. The product is called Quintessence

T and it is an essential amino acid supplement. It is unflavored and there

are a variety of flavor granules that you can pick from to flavor the

substance with. Or you can just mix it straight into juice and it will not

change the flavor (at least with the juices we have tried)

We have been VERY exicited about this product because of 's limited

intake of proteins and the food choices that she will eat. The powder can be

mixed to be very thin or thicker for a pudding like consistency. It can be

mixed into juice or sprinkled on top of fruits. It is COMPLETELY flavorless

and that's the most wonderful thing about it. It does not change the flavor

of foods you put it on. It basically just replaces the amino acides she gets

in the Neocate formula (minus the vitamins) and yet supplies her with the

essential amino acids that she needs.

If any of you want more information on the product I'd be happy to send it to

you. I am not a distributor or a rep for the product at all. In fact

was chosen to participate in the clinical trials of the product before it was

released for general sales. The product was developed for kidney patients

who are on dialysis under the direction and leadership of several researchers

and physicians.

From just my own personal observations it looks like something that could

replace some of these HORRIBLE tasting elemental formulas that we all try to

get our kids to drink. But that is just my opinion only. Each and every

situation is different and we definitely need to consult with our own drs.

before changing or adding anything.

I just thought I'd let you guys know what's working for us and I'll keep you

posted on her progress. We're still a long ways away from having her

completely weaned off of tube feedings but if I can get more confident that

she'll continue using this new product and I can get her daily required needs

met I think we'll be well on our way to weaning her off of the tube ).

Here's hoping everyone is having a great day! Take care.

Cindy -- (mommy to 7, 6 and 2 (former FTT, SID, orally

averisve, g-tube fed, undiagnosed food allergies, hypotonia, but getting

cuter all the time)