Do you share?

[Guest guest]

In a message dated 7/28/2004 3:46:03 PM Pacific Standard Time,

Windwarrior@... writes:

Do you ever NOT share...

The lows you had today (With yourself, your partner, the kids, the cat,

others in your family....) ?

Your " secret " belief that this ain't gonna get better... no matter WHAT you

do? No matter how many times that you do it?

That you are a diabetic.... cause for today, you're not gonna be!?!?! (ie I

refuse to tell)

These kinds of things.... thoughts anybody >: > ?

I have seen diabetics that refuse to even tell those they work with that they

are diabetic. Myself, I feel this is a foolish thing to hide. If you have a

problem, you need assistance! Not ignorance! How will your friends or

coworkers feel if because they did not know and react appropriately, you slipped

into a coma, or passed away? No, you don't have to flaunt it, but wear a

medical

alert bracelet, let those who work/live in close proximity know. Then if

there is a problem, they will understand and point the right direction for help,

not mistake you for a falling down/slurring drunk. JMPO Hugs, marilyn

[Guest guest]

Not sharing reminds me of an incident many years ago. A boy in my first

grade class fell down during our morning pledge to the flag. It was still the

fall of the year and I had no way of knowing that he was epileptic. Although I

think I handled it about the best I could without frightening the other

children, it would have been much better for all involved to have the knowledge

that

a seizure was a possibility and that there were certain things I could and

should do. His parents were concerned that if his teachers knew, he would be

treated differently. Their decision could have cost him his young life.

Gail

[Guest guest]

> Hello ,

>

> Do you ever NOT share...

>

> The lows you had today  (With yourself, your partner, the kids, the cat,

> others in your family....) ?

>

> Your " secret " belief that this ain't gonna get better... no matter WHAT you

> do? No matter how many times that you do it?

>

> That you are a diabetic.... cause for today, you're not gonna be!?!?! (ie I

> refuse to tell)

>

> These kinds of things.... thoughts anybody >:  > ?

>

> Jeff

>

Im so lost, what ??????

[Guest guest]

> sharing reminds me of an incident many years ago.  A boy in my first

> grade class fell down during our morning pledge to the flag.  It was still

> the

> fall of the year and I had no way of knowing that he was epileptic. 

> Although I

> think I handled it about the best I could without frightening the other

> children, it would have been much better for all involved to have the

> knowledge that

> a seizure was a possibility and that there were certain things I could and

> should do.  His parents were concerned that if his teachers knew, he would

> be

> treated differently.  Their decision could have cost him his young life.

>

Ok which brings me to a question. When I am in college this fall should I

tell professors or not? Im afraid to tell them as I dont want to be thought of

as

different or as nuts as some college profs are, want to be thought of as

wanting special treatment etc... But what if I fell over in class? Im getting a

medic alert bracelet soon, and Im good about watching my sugars.

[Guest guest]

> But what if I fell over in class? Im getting a

> medic alert bracelet soon, and Im good about watching my sugars.

>

>

Hit send to fast, but I get hypo easy and am worried what will happen with

all the walking.

[Guest guest]

Excellent idea Marilyn, My boss and coworker's all know that I am a

diabetic, and that I carry my meter with me along with glucose tabs... so

that they know what to do should they find me sprawled out in the floor.

Carmen

[Guest guest]

Jeff,

You answered your own question. Writhing on the floor surrounded by chairs

and desks can certainly cause injuries. Many times in the lower grades we

had field trips to diverse places such as turkey farms, ponds, zoos, etc. It is

imperative for an adult, or all the adults in charge of the children to be

informed about medical conditions. Not to limit the child's experiences but to

be watchful in a situation such as falling of a rope bride into a swamp! Can

every thing be prevented? No, of course not, but I would at least position

myself for the posibility that something might happen.

Gail

[Guest guest]

Hello Gail,

<

[Guest guest]

Jeff,

I answer yes to all those questions.

I am broke, have no money for meds, am stressed out to the max, have no money

period. Even when I get paid this weekend, I will not have money to pay for

meds.

It is a sad shame that there is no longer a " middle class " but instead we are

called the " working poor. "

I owe my parents so much money it is not even funny, so I don't even mention to

them that I have no money for my medication.

I am trying to eat properly but half the time that does not work either because

I have to eat by necessity not healthfully.

Hopefully things will get better soon.

gloria

Windwarrior Windwarrior@...> wrote:

Hello ,

You misunderstood my words... I was asking the question in the

generic, not specifically to you...

But yes, sounds like you understood basically what I was getting at... do

you (generic) literally run and hide, pretend, whatever the situation/case

might be.... that you literally are not diabetic for that brief time

Do you ever not tell people close to you for example you had a low, and to

avoid the smothering concern, or the over zealous " sugar police " you simple

keep the event(s) to yourself, and keep them in the dark about it. All kinds

of situations I can imagine where you don't want to share some of this stuff

to avoid turning THEM into loony nut cases paranoid, over protective but

very well intentioned.

Do you ever build the proverbial wall and keep things to yourself about the

disease, shared with none but you?

Jeff

[Guest guest]

Actually, epilepsy can be life threatening. I used to live with

someone who has it. If the seizure contiues over a certain amount of

time, there could be trouble.

Jo

> > Did the school nurse not know? Seizures, while very spooky in

that situation

> .. I don't see the " life threat " , as yet?

>

> > Genuinely,

> Jeff

>

>

[Guest guest]

Jo,

You are correct!!! My son has seizures and his doctor is always concerned about

length/amount of seizures he has due to the dangers of affecting his brain

overall.

My son has passed out, and coded due one seizure, so there is a " life threat "

with persons who has seizures.

gloria

joeelliottjr Joeslep@...> wrote:

Actually, epilepsy can be life threatening. I used to live with

someone who has it. If the seizure contiues over a certain amount of

time, there could be trouble.

Jo

> > Did the school nurse not know? Seizures, while very spooky in

that situation

> .. I don't see the " life threat " , as yet?

>

> > Genuinely,

> Jeff

>

>

[Guest guest]

I'm just glad to here that your son is still here with you.

Jo

> > > Did the school nurse not know? Seizures, while very spooky in

> that situation

> > .. I don't see the " life threat " , as yet?

> >

> > > Genuinely,

> > Jeff

> >

> >

[Guest guest]

> NO he is not a diabetic but he does have other medical problems and NO I am

> not ashamed of his medical problems and YES I will share his story too with

> anyone that would like to hear it. 

>

>

>

I think that is part of it, is Im still " ashamed " of being diabetic, like

having juvenile-ish issues of " im different " and wanting to fit in. Im way old

enough to know better but its stil how I feel. Yes I would like to hear his

story if you want to share.

[Guest guest]

> How well controlled are you?  If you are prone to extreme highs and lows,

> then your professors should know.

>

> Are you going to be living on campus?  Your room-mate and RA should also

> know.

>

I keep having problems with lows, and Im " hypoglycemic unaware " as in I dont

feel them coming on. Im not getting highs, but part of that is Im terrifeid to

eat anything I think..

Nope I live at home with my husband and son (2yrs old), but good idea if I

was still in the dorms.

[Guest guest]

> OOOOOOOOOOOOOOOAH ! Time out, are you telling me you have NO ID of any kind

> on your body saying you have diabetes (8 O   ? This is a bad joke...

> right?!????

>

It on the way but not here yet. I only got this in May 2004. I got type one

at 25 years old, go figure :-/

<

>

Well that is what I was thinking.. share with professors, some are wonderful

but some could literally care less if a person kealed over, just dont interupt

the lecture. It is a serious concern about me falling over in class. I have

hypoglycemia unawarness and just drop like a rock sometimes, so far I have

caught myself before I pass out. But the doctor has adjusted my insulin so I

hope

that helps and Im watching myself better as in eating small snacks more

frequently. I live at home with my husband and child though, so no roomate to

freak

out (although the one I had years ago would have been fun to freak out, ooohh

she was a nightmare)

[Guest guest]

> o you ever build the proverbial wall and keep things to yourself about the

> disease, shared with none but you?

>

I certainly do. I worried my husband and mom enough that I dont want them

worried.

[Guest guest]

> I am broke, have no money for meds, am stressed out to the max, have no

> money period.  Even when I get paid this weekend, I will not have money to pay

> for meds.

>

> It is a sad shame that there is no longer a " middle class " but instead we

> are called the " working poor. "

>

It is a sad state the country is in. Many of my college educated (we are

talking private colleges and honors roll here) friends are " lucky " to find a job

at 8/hr. The economy and health care system in this country are deplorable!

[Guest guest]

> .  IF my sharing bothers you then you have the right to delete any email

> that is sent from me to the board and you do not have to read it THAT IS YOUR

> RIGHT.

>

I think that is the number one truth of ANY email loop. If people dont like

the emails, delete them!

[Guest guest]

Hello ,

Sorry I am just getting around to this. The past few days have been

kinda bad around here. has been sleeping alot and I have been

getting things ready for 'Back to School'.

I DO want to applogize for these post. I just sat down at the

ocmputer and just saw RED when I saw some of them.

I am glad that you and some of the other members share with us.

That is what this board is for. If you just have a bad day, come on

here and talk with someone that knows what you are going thru. As far

as sharing---I tell Everybody about 's illness. He has brittle

diabetes so it can take a nose dive anytime. I even let my daughters

school know of his condition so when we are at a school function, and

if something happened, then somebody would know what to do. e.g. We

went on vacation one time and we got seperated for a few and I

started hunting for and found him with the police who were

trying to take him in for being drunk. He does not even drink

beer!!!! They said he was walking around the front of the store and

the store owners called them cause he was wobbling around drunk.

's sugar was way high and he didn't even know he was in the

world at that time. I was so glad that I had found him in time. I

told them what I thought was wrong with him and they called an

amubalance for him, where he went into a diabetic coma at the

hospital and stayed in one for the next week. Where we messed up that

day was when we were in a hurry and left his medic allert necklace on

the shower door...Never again...The police were going to take him to

jail and put him in the drunk tank for the night--so he could 'sober

up '--so they said!!! So---YES I will share with anybody I want to

share with and hope that there are enough compassionate people in

this world. Please , do not feel bad about anything you have

shared with us. I enjoy reading your post and again I appoligize for

certain people (which won't happen again). I would have not let it go

thru had I been at the computer at the time. This group is here for

all of us who is dealing with the problems that we deal with and not

for someone who wants to put little frowny faces on their post and

put people down. We are here for each other. Sorry this is so long--

It just got to me when I read it and wanted to let you know ,

just how much we appreciate you and all the other nice people here at

ADI.

~*~~*~

deniseatdiabetes@...

Co-Founder-All Diabetic International

sdhammett@...

http://www.thepancreatitisplace.org/

alldiabeticinternational-owner

http://health.groups.yahoo.com/group/ThePancreatitisPlace/

http://health.groups.yahoo.com/group/alldiabeticinternational/

Opinions expressed are solely my opinion and should not be mistaken

for professional medical advice.

> No I do not keep things to myself...

[Guest guest]

> The walking will definitely have an effect (certainly does for me) and that

> effect may be somewhat delayed . . . i.e., if I walk a lot in

> morning/afternoon, I will be hypo in the early evening if I don't

> compensate with some extra carbs, etc. because of the higher activity

> level. I choose to let BG run a little high (vs. too tight) in such

> situations until I learn how my body/eating/insulin will react to new

> habits and circumstances. For instance, I learned that, if I was trying for

> " tight " control, even an unexpected extra flight of stairs could be a

> problem . . . I learned to loosen the control, depending on the

> circumstances, and compensate. After 25 years as a T1 I still run into " new

> circumstances " (since rarely is anything absolutely " the same " ) but have

> learned to deal with them.

>

>

Thanks for the advise. My doctor told me a similar thing today about not

trying to keep such tight control on my sugars, and Im sure you all are right.

Im

just terrified of high sugars cause of the coma I was in and the possible

complications :-( So he adjusted my insulin because of my lows and Im supposed

to

allow my sugars to run a little higher. (like instead of 80 like now, 90/100

etc) So I hope that helps the hypos some and Im keeping a closer eye on what I

eat and when.

<

[Guest guest]

In a message dated 7/29/04 12:42:27 PM, sdhammett@...

writes:

> He has brittle

> diabetes so it can take a nose dive anytime.

>

Ive heard that term before, if you dont mind, what does it mean? I know

poorly controlled, or hard to control or something, but is it t1 or t2 or both,

does it come with years of having the disease or at the beginign? why does it

happen? thanks for any questions you answer!

[Guest guest]

> I have a friend, tho, who is still uncomfortable about her recent

> diagnosis, and she hasn't told anyone at work yet.  This could be a

> problem (and almost was!) tho as she tends to go really low in the

> mid mornings.  She doesn't want to carry mints or anything 'cuz

> she's sure she'd eat them.  She's more concerned about maintaining

> her weight loss than regulating her sugar (which I interpret as a

> form of denial at this stage).  I expect she'll adjust eventually.

>

I certainly understand where she is at asa taht is how Im feelign still. i

would say she is still deep in denial. Maybe suggest to her carrying glucose

tabs, they arent that tasty and not really something someone would want to snack

on, unless a person craves the flavor of orange vitamins lol. Seriously though

that might be better than mints for her. She'll adjust with time, has she

gone to classes yet or maybe joined a support group?

[Guest guest]

Thank you Joe!!!

My son is a blessing from God. He is the only child I have and I cannot have

any more.

Besides having seizures, he also has mild cp, limited speech and MR as well. He

is a fighter!!! : )

Gloria

joeelliottjr Joeslep@...> wrote:

I'm just glad to here that your son is still here with you.

Jo

> > > Did the school nurse not know? Seizures, while very spooky in

> that situation

> > .. I don't see the " life threat " , as yet?

> >

> > > Genuinely,

> > Jeff

> >

> >

[Guest guest]

In a message dated 7/29/2004 10:09:21 AM Pacific Standard Time,

marinewife112003@... writes:

IF my sharing bothers you then you have the right to delete any email that is

sent from me to the board and you do not have to read it THAT IS YOUR RIGHT.

And yes the email that you sent earlier with the mad faces and the two faces

fighting was uncalled for in my opinion. Just my thoughts on this.

Hi , you know we are all interested in anything you wish to say. We

love our little brandon and you can add me right onto the list of people to call

in need! Hugs, Marilyn

[Guest guest]

In a message dated 7/29/2004 9:55:23 AM Pacific Standard Time,

Joeslep@... writes:

> You are correct!!! My son has seizures and his doctor is always

concerned about length/amount of seizures he has due to the dangers

of affecting his brain overall.

>

> My son has passed out, and coded due one seizure, so there is

a " life threat " with persons who has seizures.

>

> gloria

Hi Gloria, you bet there is! My husband has the other kind, lights are on,

nobody is home kind. He lost 4 days one time, I called our son in the military

to come home. Thought he was gone forever.... Yes, seizures are very, very

serious. Glad you are on top of it! Hugs, Marilyn