Guest guest Posted March 6, 1999 Report Share Posted March 6, 1999 Terry, Marie K. from CJD Voice is going to Geneva to attend the WHO conference and will cover CJD care and funerals.............Pat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 1999 Report Share Posted March 6, 1999 -- I had been asked about a week ago, by a near-by funeral home, for info. on embalming of CJD victims. In speaking with one of the Director's, I ask what the Texas Dept. of Healths Criteria for these procedures where. He said they had none. Told me NOBODY, had every mintioned it to him.... I asked if they normally suited up for all victims, as if they all had H.I.V. He said they probably should, but NEVER DO???????? After Reading 4.61, of the Diagnostic Laboratories, (Where the diagnosis of CJD is known or suspected, it is ADVISABLE TO AVOID EMBALMING PROCEDURES), I find it TOTALLY UNREAL, that the DEPT. OF HEALTH has not started some sort of Nation Wide education program, NOT ONLY FOR THE MEDICAL SOCIETY, BUT ALSO, FOR THE FUNERAL HOME INDUSTRY, and Family and in-home care, to help educate them on CJD???????? I guess they are still going by the assumption, " IT'S NOT HERE " !!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 1999 Report Share Posted March 6, 1999 Terry, am happy to say that we have done some training in Utah. With the help of Mr. Kurt Soffe, President of the Utah Funeral Directors Assoc. in Utah, they have put together a training package and have presented it to the funeral directors here. Am sure that Mr. Soffe would be willing to share some of the technical input with his peers in other states Mel in SLC Terry S. Singeltary Sr. wrote: > > > -- I had been asked about a week > ago, by a near-by funeral home, for info. on embalming of CJD victims. > In speaking with one of the Director's, I ask what the Texas Dept. of > Healths Criteria for these procedures where. He said they had none. Told > me NOBODY, had every mintioned it to him.... > I asked if they normally suited up for all victims, as if they all had > H.I.V. > He said they probably should, but NEVER DO???????? > > After Reading 4.61, of the Diagnostic Laboratories, (Where the diagnosis > of CJD is known or suspected, it is ADVISABLE TO AVOID EMBALMING > PROCEDURES), I find it TOTALLY UNREAL, that the DEPT. OF HEALTH has not > started some sort of Nation Wide education program, NOT ONLY FOR THE > MEDICAL SOCIETY, BUT ALSO, FOR THE FUNERAL HOME INDUSTRY, and Family and > in-home care, to help educate them on CJD???????? > > I guess they are still going by the assumption, " IT'S NOT HERE " !!! > > ------------------------------------------------------------------------ > Ideas on how we can improve ONElist? > http://www.onelist.com > Check out the Suggestion Box feature on our new web site > ------------------------------------------------------------------------ > If you have any questions, problems, concerns, etc... please contact Liz at LArmstr853@..., Pat at Ape826@..., Dolly at DBC006@... or Beverly G at Bevalso@.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 1999 Report Share Posted March 6, 1999 Terry, I have guidelines for funeral directors that were developed and published in NJ. Please let me know and I will send your a copy. Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 1999 Report Share Posted March 6, 1999 Tery, Will share with you and the group when I return. In the interim, I can send you the guidelines. Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 1999 Report Share Posted March 6, 1999 Thanks Mel, will relay this message to them, along with your e-mail, if that is O.K.? Terry melsteiger wrote: > > > Terry, am happy to say that we have done some training in Utah. With the help of Mr. Kurt Soffe, President of the Utah Funeral Directors Assoc. in Utah, they have put together a > training package and have presented it to the funeral directors here. Am sure that Mr. Soffe would be willing to share some of the technical input with his peers in other > states Mel in SLC > > Terry S. Singeltary Sr. wrote: > > > > > > > -- I had been asked about a week > > ago, by a near-by funeral home, for info. on embalming of CJD victims. > > In speaking with one of the Director's, I ask what the Texas Dept. of > > Healths Criteria for these procedures where. He said they had none. Told > > me NOBODY, had every mintioned it to him.... > > I asked if they normally suited up for all victims, as if they all had > > H.I.V. > > He said they probably should, but NEVER DO???????? > > > > After Reading 4.61, of the Diagnostic Laboratories, (Where the diagnosis > > of CJD is known or suspected, it is ADVISABLE TO AVOID EMBALMING > > PROCEDURES), I find it TOTALLY UNREAL, that the DEPT. OF HEALTH has not > > started some sort of Nation Wide education program, NOT ONLY FOR THE > > MEDICAL SOCIETY, BUT ALSO, FOR THE FUNERAL HOME INDUSTRY, and Family and > > in-home care, to help educate them on CJD???????? > > > > I guess they are still going by the assumption, " IT'S NOT HERE " !!! > > > > ------------------------------------------------------------------------ > > Ideas on how we can improve ONElist? > > http://www.onelist.com > > Check out the Suggestion Box feature on our new web site > > ------------------------------------------------------------------------ > > If you have any questions, problems, concerns, etc... please contact Liz at LArmstr853@..., Pat at Ape826@..., Dolly at DBC006@... or Beverly G at Bevalso@.... > > ------------------------------------------------------------------------ > If you like orange and blue, then you will love our new web site! > http://www.onelist.com > Onelist: ing connections and information exchange > ------------------------------------------------------------------------ > If you have any questions, problems, concerns, etc... please contact Liz at LArmstr853@..., Pat at Ape826@..., Dolly at DBC006@... or Beverly G at Bevalso@.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 1999 Report Share Posted March 7, 1999 Yes, Thanks Marie, I would like very much, to look at them... Mariek43@... wrote: > From: Mariek43@... > > Tery, > > Will share with you and the group when I return. In the interim, I can send > you the guidelines. > > Marie > > ------------------------------------------------------------------------ > Ta Da! Come see our new web site! > http://www.onelist.com > Onelist: A free email community service > ------------------------------------------------------------------------ > If you have any questions, problems, concerns, etc... please contact Liz at LArmstr853@..., Pat at Ape826@..., Dolly at DBC006@... or Beverly G at Bevalso@.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 1999 Report Share Posted March 7, 1999 Marie - Would it be possible to forward a copy of the guidelines for undertakers and embalmers to me? I am going to contact the funeral homes association here in Colorado. I am sure that they are NOT addressing the problem. Sharlene Weiser 3119 County Road R Wiggins, Colorado 80654 If you need funds to cover copying and mailing, please be sure to let me know. We had my Dad cremated as was his wish, but I know that other families will not want to do as we did. Thanks, Shar Quote Link to comment Share on other sites More sharing options...
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