Update on

[Guest guest]

Hello everyone -

Since it's been such a busy day, I figured you all needed one more email! LOL!

We saw the GI and the surgeon yesterday. Our little man who couldn't climb

above 5th percentile as an infant now (drumroll!) is 35 inches tall and weighs

31 pounds! Holy Moly! I guess the constant eating is working well!

The GI was great, and spent a lot of time answering my questions. The big

question I asked was: is the delayed emptying caused by eos? And he said that

they only found the high count of eos 5 cm above the LES. The biopsies higher

up the esophagus showed no eos. He said that if has EE, then the eos

would be present higher up. I think they did 9 biopsies in the esophagus, and

three of those were near the LES. So he feels confident that the eos were the

result of chronic inflammation of the esophagus due to all the reflux.

He said that he and Dr. Jolley have discussed 's case, and they feel that

is not likely to outgrow this in the foreseeable future. So we are going

to do an endoscopy on Feb 9 to see if he has esophagitis. If he does, they are

going to talk about performing another pyloromyotomy to speed up the emptying.

I talked to him about performing the gastric emptying study with solids as

opposed to liquids ('s was with apple juice only) He said that since

liquids empty so much faster that solids, the results may be technically more

accurate, wouldn't change his treatment in any way.

The whole feel is that they want to make sure that the current medications are

doing the best. Since 's had this problem since birth, and will most

likely continue to have it for many moons, they want to take good care of his

esophagus now. We don't want Barrett's and strictures by the time he's 20 from

all this stuff.

But that's about all from here. 's doing really great, and is really

starting to talk! My quiet little guy who never cooed or babbled until he was

over a year old is learning new words every day! He said " play ball " to me on

the phone today! I was so ecstatic I could've floated home!