Re: Home from the hospital

[Guest guest]

,

I have had a sphincteroplasty if you ever want to talk about

it. I had it done in 1993, but it wasn't for the sphincter

of Oddi, but to reconstruct both ducts(I have two parallel

ducts, not a Y shaped duct like it should be) because I have

pancreas divisum and they need to open one duct and then

widen both. It is very major surgery.

Kimber

--

Kimber

Vallejo, CA

hominid2@...

Southwest Representative

Pancreatitis Association, International

[Guest guest]

,

I have had a sphincteroplasty if you ever want to talk about

it. I had it done in 1993, but it wasn't for the sphincter

of Oddi, but to reconstruct both ducts(I have two parallel

ducts, not a Y shaped duct like it should be) because I have

pancreas divisum and they need to open one duct and then

widen both. It is very major surgery.

Kimber

--

Kimber

Vallejo, CA

hominid2@...

Southwest Representative

Pancreatitis Association, International

[Guest guest]

Hi ,

Welcome home! This is new member Cyndie from Indiana.

I wanted to say something in regard to elevated liver enzymes. More

often than not, my Amylase is only slightly elevated or sometimes

even normal, but my liver enzymes are always sky-high! My GI said

that was because of the close proximity of the liver & pancreas and

the adjoining bile ducts and that it was " normal " for the liver

enzymes to be effected also. Last month my PCP did some routine

blood work on me and noted that the liver enz. were high and just

asked if I had just gotten over an acute attack w/ Mr. P and I told

him yes that I had 2 weeks before.

Then at other times when I've not had a recent attack my liver enz.

will be normal.

So, I don't know what to think now. Maybe I SHOULD be concerned about

my liver, huh?

Anybody???

Take care and best of luck & God's Blessings with the

procedure/surgery next month.

Cyndie :-)

In pancreatitis@y..., " Weston " wrote:

> Well, I am home once again. I thought when I went to the hospital

that the surgeon was going to go ahead and do a laporotomy to look at

the pancreas and also do a liver biopsy. After he admitted me, he

decided he wasn't sure if that's what they should do. When I got to

the hospital on Wed. evening, my amylase and lipase were normal.

However, my liver enzymes were higher than they had been the day

before. The liver enzymes more than doubled from Wednesday night to

Thursday morning, but then this morning they were starting to go back

down.

>

> My surgeon talked at length with my GI and a couple of GIs at his

hospital. The GIs at my surgeons hospital said I was much too

complex a case for them to feel comfortable with, They both said

they send their difficult cases to Dr. Sigman, who is my GI. So, my

surgeon said I am probably with the best GI (for panc stuff) in the

area. Anyway, they have now decided that the sphincter of oddi has

to be causing my problems. The surgeon said there is no way that

adhesions would cause the liver and pancreas enzymes to be elevated.

The surgeon explained that the sphincter of oddi is not functioning

properly at times. He said this is the cause of the pain and

nausea. He said at times it's functioning so poorly that it is

irritating the pancreas and causing the enzymes to rise. He said at

other times it is only malfunctioning enough to irritate the liver

and keep the liver enzymes elevated. He said sometimes it might only

be malfunctioning enough to cause me severe pain and nausea but not

mess up the blood levels.

>

> On Wednesday, the GI is going to go in and open the duct more so

the sphincter of oddi can work properly. If that does not work, the

next step will be a sphincteroplasty. However, the surgeon said that

is a very major and difficult surgery. The surgeon gave me the

choice of staying in the hospital or going home and coming back on

Wednesday. I elected to come home. He sent me home with plenty of

pain meds. He told me to take the meds round the clock and to not

allow my pain to get bad. He gave me mepergan fortis

(demerol/phenergan) and said I could take up to 3 at a time if I need

to. He also told me if it gets worse again, I am to contact him

immediately.

>

> Obviously, from the amount of drugs he is willing to give me, he

truly believes me when I tell him the pain is severe.

>

> Anyway, I am much better than I was Wednesday. I'm going to just

eat light between now and next Wed. when they do the procedure.

>

> I am also going to monitor my blood sugar over the next few days.

>

> Thanks to everyone for all your concern, prayers, and encouragement.

>

>

>

>

>

[Guest guest]

Hi ,

Welcome home! This is new member Cyndie from Indiana.

I wanted to say something in regard to elevated liver enzymes. More

often than not, my Amylase is only slightly elevated or sometimes

even normal, but my liver enzymes are always sky-high! My GI said

that was because of the close proximity of the liver & pancreas and

the adjoining bile ducts and that it was " normal " for the liver

enzymes to be effected also. Last month my PCP did some routine

blood work on me and noted that the liver enz. were high and just

asked if I had just gotten over an acute attack w/ Mr. P and I told

him yes that I had 2 weeks before.

Then at other times when I've not had a recent attack my liver enz.

will be normal.

So, I don't know what to think now. Maybe I SHOULD be concerned about

my liver, huh?

Anybody???

Take care and best of luck & God's Blessings with the

procedure/surgery next month.

Cyndie :-)

In pancreatitis@y..., " Weston " wrote:

> Well, I am home once again. I thought when I went to the hospital

that the surgeon was going to go ahead and do a laporotomy to look at

the pancreas and also do a liver biopsy. After he admitted me, he

decided he wasn't sure if that's what they should do. When I got to

the hospital on Wed. evening, my amylase and lipase were normal.

However, my liver enzymes were higher than they had been the day

before. The liver enzymes more than doubled from Wednesday night to

Thursday morning, but then this morning they were starting to go back

down.

>

> My surgeon talked at length with my GI and a couple of GIs at his

hospital. The GIs at my surgeons hospital said I was much too

complex a case for them to feel comfortable with, They both said

they send their difficult cases to Dr. Sigman, who is my GI. So, my

surgeon said I am probably with the best GI (for panc stuff) in the

area. Anyway, they have now decided that the sphincter of oddi has

to be causing my problems. The surgeon said there is no way that

adhesions would cause the liver and pancreas enzymes to be elevated.

The surgeon explained that the sphincter of oddi is not functioning

properly at times. He said this is the cause of the pain and

nausea. He said at times it's functioning so poorly that it is

irritating the pancreas and causing the enzymes to rise. He said at

other times it is only malfunctioning enough to irritate the liver

and keep the liver enzymes elevated. He said sometimes it might only

be malfunctioning enough to cause me severe pain and nausea but not

mess up the blood levels.

>

> On Wednesday, the GI is going to go in and open the duct more so

the sphincter of oddi can work properly. If that does not work, the

next step will be a sphincteroplasty. However, the surgeon said that

is a very major and difficult surgery. The surgeon gave me the

choice of staying in the hospital or going home and coming back on

Wednesday. I elected to come home. He sent me home with plenty of

pain meds. He told me to take the meds round the clock and to not

allow my pain to get bad. He gave me mepergan fortis

(demerol/phenergan) and said I could take up to 3 at a time if I need

to. He also told me if it gets worse again, I am to contact him

immediately.

>

> Obviously, from the amount of drugs he is willing to give me, he

truly believes me when I tell him the pain is severe.

>

> Anyway, I am much better than I was Wednesday. I'm going to just

eat light between now and next Wed. when they do the procedure.

>

> I am also going to monitor my blood sugar over the next few days.

>

> Thanks to everyone for all your concern, prayers, and encouragement.

>

>

>

>

>

[Guest guest]

Hi ,

Welcome home! This is new member Cyndie from Indiana.

I wanted to say something in regard to elevated liver enzymes. More

often than not, my Amylase is only slightly elevated or sometimes

even normal, but my liver enzymes are always sky-high! My GI said

that was because of the close proximity of the liver & pancreas and

the adjoining bile ducts and that it was " normal " for the liver

enzymes to be effected also. Last month my PCP did some routine

blood work on me and noted that the liver enz. were high and just

asked if I had just gotten over an acute attack w/ Mr. P and I told

him yes that I had 2 weeks before.

Then at other times when I've not had a recent attack my liver enz.

will be normal.

So, I don't know what to think now. Maybe I SHOULD be concerned about

my liver, huh?

Anybody???

Take care and best of luck & God's Blessings with the

procedure/surgery next month.

Cyndie :-)

In pancreatitis@y..., " Weston " wrote:

> Well, I am home once again. I thought when I went to the hospital

that the surgeon was going to go ahead and do a laporotomy to look at

the pancreas and also do a liver biopsy. After he admitted me, he

decided he wasn't sure if that's what they should do. When I got to

the hospital on Wed. evening, my amylase and lipase were normal.

However, my liver enzymes were higher than they had been the day

before. The liver enzymes more than doubled from Wednesday night to

Thursday morning, but then this morning they were starting to go back

down.

>

> My surgeon talked at length with my GI and a couple of GIs at his

hospital. The GIs at my surgeons hospital said I was much too

complex a case for them to feel comfortable with, They both said

they send their difficult cases to Dr. Sigman, who is my GI. So, my

surgeon said I am probably with the best GI (for panc stuff) in the

area. Anyway, they have now decided that the sphincter of oddi has

to be causing my problems. The surgeon said there is no way that

adhesions would cause the liver and pancreas enzymes to be elevated.

The surgeon explained that the sphincter of oddi is not functioning

properly at times. He said this is the cause of the pain and

nausea. He said at times it's functioning so poorly that it is

irritating the pancreas and causing the enzymes to rise. He said at

other times it is only malfunctioning enough to irritate the liver

and keep the liver enzymes elevated. He said sometimes it might only

be malfunctioning enough to cause me severe pain and nausea but not

mess up the blood levels.

>

> On Wednesday, the GI is going to go in and open the duct more so

the sphincter of oddi can work properly. If that does not work, the

next step will be a sphincteroplasty. However, the surgeon said that

is a very major and difficult surgery. The surgeon gave me the

choice of staying in the hospital or going home and coming back on

Wednesday. I elected to come home. He sent me home with plenty of

pain meds. He told me to take the meds round the clock and to not

allow my pain to get bad. He gave me mepergan fortis

(demerol/phenergan) and said I could take up to 3 at a time if I need

to. He also told me if it gets worse again, I am to contact him

immediately.

>

> Obviously, from the amount of drugs he is willing to give me, he

truly believes me when I tell him the pain is severe.

>

> Anyway, I am much better than I was Wednesday. I'm going to just

eat light between now and next Wed. when they do the procedure.

>

> I am also going to monitor my blood sugar over the next few days.

>

> Thanks to everyone for all your concern, prayers, and encouragement.

>

>

>

>

>

[Guest guest]

Hi ,

Welcome home! This is new member Cyndie from Indiana.

I wanted to say something in regard to elevated liver enzymes. More

often than not, my Amylase is only slightly elevated or sometimes

even normal, but my liver enzymes are always sky-high! My GI said

that was because of the close proximity of the liver & pancreas and

the adjoining bile ducts and that it was " normal " for the liver

enzymes to be effected also. Last month my PCP did some routine

blood work on me and noted that the liver enz. were high and just

asked if I had just gotten over an acute attack w/ Mr. P and I told

him yes that I had 2 weeks before.

Then at other times when I've not had a recent attack my liver enz.

will be normal.

So, I don't know what to think now. Maybe I SHOULD be concerned about

my liver, huh?

Anybody???

Take care and best of luck & God's Blessings with the

procedure/surgery next month.

Cyndie :-)

In pancreatitis@y..., " Weston " wrote:

> Well, I am home once again. I thought when I went to the hospital

that the surgeon was going to go ahead and do a laporotomy to look at

the pancreas and also do a liver biopsy. After he admitted me, he

decided he wasn't sure if that's what they should do. When I got to

the hospital on Wed. evening, my amylase and lipase were normal.

However, my liver enzymes were higher than they had been the day

before. The liver enzymes more than doubled from Wednesday night to

Thursday morning, but then this morning they were starting to go back

down.

>

> My surgeon talked at length with my GI and a couple of GIs at his

hospital. The GIs at my surgeons hospital said I was much too

complex a case for them to feel comfortable with, They both said

they send their difficult cases to Dr. Sigman, who is my GI. So, my

surgeon said I am probably with the best GI (for panc stuff) in the

area. Anyway, they have now decided that the sphincter of oddi has

to be causing my problems. The surgeon said there is no way that

adhesions would cause the liver and pancreas enzymes to be elevated.

The surgeon explained that the sphincter of oddi is not functioning

properly at times. He said this is the cause of the pain and

nausea. He said at times it's functioning so poorly that it is

irritating the pancreas and causing the enzymes to rise. He said at

other times it is only malfunctioning enough to irritate the liver

and keep the liver enzymes elevated. He said sometimes it might only

be malfunctioning enough to cause me severe pain and nausea but not

mess up the blood levels.

>

> On Wednesday, the GI is going to go in and open the duct more so

the sphincter of oddi can work properly. If that does not work, the

next step will be a sphincteroplasty. However, the surgeon said that

is a very major and difficult surgery. The surgeon gave me the

choice of staying in the hospital or going home and coming back on

Wednesday. I elected to come home. He sent me home with plenty of

pain meds. He told me to take the meds round the clock and to not

allow my pain to get bad. He gave me mepergan fortis

(demerol/phenergan) and said I could take up to 3 at a time if I need

to. He also told me if it gets worse again, I am to contact him

immediately.

>

> Obviously, from the amount of drugs he is willing to give me, he

truly believes me when I tell him the pain is severe.

>

> Anyway, I am much better than I was Wednesday. I'm going to just

eat light between now and next Wed. when they do the procedure.

>

> I am also going to monitor my blood sugar over the next few days.

>

> Thanks to everyone for all your concern, prayers, and encouragement.

>

>

>

>

>

[Guest guest]

Cyndie,

I think it is normal for the liver enzymes to be elevated when the pancreas is

acting up. However, until my surgeon got involved, my GI was saying that

something other than the pancreas was causing the pancreatitis. He based this

on the fact that I had pain even when the pancreas enzymes were normal and the

pancreas looked fine on the ct scans, mrcp, and ultrasound. My liver enzymes

have been consistently elevated since at least March. Sometimes only slightly

elevated, but other times they have been more than 20 times the normal limit.

The sphincter of oddi problem does sound exactly like what I have going on. I

think the pancreas may look okay on all the tests only because it may not have

yet sustained enough damage to show up on the tests. However, I do believe that

it is only a matter of time before the pancreas becomes permanently damaged and

this will turn into chronic panc if they don't do something to keep me from

having these repeated attacks. Granted, I have had too many attacks to count

since this problem resurfaced on Jul 18th. The amylase and lipase were only

elevated two times out of the 6 times I've had blood work done during an attack.

The liver enzymes were elevated every time except one.

My GI was willing to simply sit back and do nothing and let me keep having the

attacks. However, my surgeon feels that they must do something now to try and

prevent the attacks before this definitely turns into chronic panc vs recurring

acute attacks.

My surgeon first talked about doing a liver biopsy but after reviewing all my

tests, he said the only thing that really makes sense with my case is a

sphincter of oddi problem that is causing three scenarios with me

1. pain and nausea but not enough irritation to the pancreas or liver to

raise the enzyme levels

2. pain and nausea with enough irritation to the liver to raise the liver

enzymes but not enough irritation to the pancreas to raise the pancreas enzymes

3. pain and nausea with the sphincter of oddi malfunctioning enough to

cause irritation to the liver and pancreas and raise both the pancreas and liver

enzyme levels

Re: home from the hospital

Hi ,

Welcome home! This is new member Cyndie from Indiana.

I wanted to say something in regard to elevated liver enzymes. More

often than not, my Amylase is only slightly elevated or sometimes

even normal, but my liver enzymes are always sky-high! My GI said

that was because of the close proximity of the liver & pancreas and

the adjoining bile ducts and that it was " normal " for the liver

enzymes to be effected also. Last month my PCP did some routine

blood work on me and noted that the liver enz. were high and just

asked if I had just gotten over an acute attack w/ Mr. P and I told

him yes that I had 2 weeks before.

Then at other times when I've not had a recent attack my liver enz.

will be normal.

So, I don't know what to think now. Maybe I SHOULD be concerned about

my liver, huh?

Anybody???

Take care and best of luck & God's Blessings with the

procedure/surgery next month.

Cyndie :-)

In pancreatitis@y..., " Weston " wrote:

> Well, I am home once again. I thought when I went to the hospital

that the surgeon was going to go ahead and do a laporotomy to look at

the pancreas and also do a liver biopsy. After he admitted me, he

decided he wasn't sure if that's what they should do. When I got to

the hospital on Wed. evening, my amylase and lipase were normal.

However, my liver enzymes were higher than they had been the day

before. The liver enzymes more than doubled from Wednesday night to

Thursday morning, but then this morning they were starting to go back

down.

>

> My surgeon talked at length with my GI and a couple of GIs at his

hospital. The GIs at my surgeons hospital said I was much too

complex a case for them to feel comfortable with, They both said

they send their difficult cases to Dr. Sigman, who is my GI. So, my

surgeon said I am probably with the best GI (for panc stuff) in the

area. Anyway, they have now decided that the sphincter of oddi has

to be causing my problems. The surgeon said there is no way that

adhesions would cause the liver and pancreas enzymes to be elevated.

The surgeon explained that the sphincter of oddi is not functioning

properly at times. He said this is the cause of the pain and

nausea. He said at times it's functioning so poorly that it is

irritating the pancreas and causing the enzymes to rise. He said at

other times it is only malfunctioning enough to irritate the liver

and keep the liver enzymes elevated. He said sometimes it might only

be malfunctioning enough to cause me severe pain and nausea but not

mess up the blood levels.

>

> On Wednesday, the GI is going to go in and open the duct more so

the sphincter of oddi can work properly. If that does not work, the

next step will be a sphincteroplasty. However, the surgeon said that

is a very major and difficult surgery. The surgeon gave me the

choice of staying in the hospital or going home and coming back on

Wednesday. I elected to come home. He sent me home with plenty of

pain meds. He told me to take the meds round the clock and to not

allow my pain to get bad. He gave me mepergan fortis

(demerol/phenergan) and said I could take up to 3 at a time if I need

to. He also told me if it gets worse again, I am to contact him

immediately.

>

> Obviously, from the amount of drugs he is willing to give me, he

truly believes me when I tell him the pain is severe.

>

> Anyway, I am much better than I was Wednesday. I'm going to just

eat light between now and next Wed. when they do the procedure.

>

> I am also going to monitor my blood sugar over the next few days.

>

> Thanks to everyone for all your concern, prayers, and encouragement.

>

>

>

>

>

[Guest guest]

Cyndie,

I think it is normal for the liver enzymes to be elevated when the pancreas is

acting up. However, until my surgeon got involved, my GI was saying that

something other than the pancreas was causing the pancreatitis. He based this

on the fact that I had pain even when the pancreas enzymes were normal and the

pancreas looked fine on the ct scans, mrcp, and ultrasound. My liver enzymes

have been consistently elevated since at least March. Sometimes only slightly

elevated, but other times they have been more than 20 times the normal limit.

The sphincter of oddi problem does sound exactly like what I have going on. I

think the pancreas may look okay on all the tests only because it may not have

yet sustained enough damage to show up on the tests. However, I do believe that

it is only a matter of time before the pancreas becomes permanently damaged and

this will turn into chronic panc if they don't do something to keep me from

having these repeated attacks. Granted, I have had too many attacks to count

since this problem resurfaced on Jul 18th. The amylase and lipase were only

elevated two times out of the 6 times I've had blood work done during an attack.

The liver enzymes were elevated every time except one.

My GI was willing to simply sit back and do nothing and let me keep having the

attacks. However, my surgeon feels that they must do something now to try and

prevent the attacks before this definitely turns into chronic panc vs recurring

acute attacks.

My surgeon first talked about doing a liver biopsy but after reviewing all my

tests, he said the only thing that really makes sense with my case is a

sphincter of oddi problem that is causing three scenarios with me

1. pain and nausea but not enough irritation to the pancreas or liver to

raise the enzyme levels

2. pain and nausea with enough irritation to the liver to raise the liver

enzymes but not enough irritation to the pancreas to raise the pancreas enzymes

3. pain and nausea with the sphincter of oddi malfunctioning enough to

cause irritation to the liver and pancreas and raise both the pancreas and liver

enzyme levels

Re: home from the hospital

Hi ,

Welcome home! This is new member Cyndie from Indiana.

I wanted to say something in regard to elevated liver enzymes. More

often than not, my Amylase is only slightly elevated or sometimes

even normal, but my liver enzymes are always sky-high! My GI said

that was because of the close proximity of the liver & pancreas and

the adjoining bile ducts and that it was " normal " for the liver

enzymes to be effected also. Last month my PCP did some routine

blood work on me and noted that the liver enz. were high and just

asked if I had just gotten over an acute attack w/ Mr. P and I told

him yes that I had 2 weeks before.

Then at other times when I've not had a recent attack my liver enz.

will be normal.

So, I don't know what to think now. Maybe I SHOULD be concerned about

my liver, huh?

Anybody???

Take care and best of luck & God's Blessings with the

procedure/surgery next month.

Cyndie :-)

In pancreatitis@y..., " Weston " wrote:

> Well, I am home once again. I thought when I went to the hospital

that the surgeon was going to go ahead and do a laporotomy to look at

the pancreas and also do a liver biopsy. After he admitted me, he

decided he wasn't sure if that's what they should do. When I got to

the hospital on Wed. evening, my amylase and lipase were normal.

However, my liver enzymes were higher than they had been the day

before. The liver enzymes more than doubled from Wednesday night to

Thursday morning, but then this morning they were starting to go back

down.

>

> My surgeon talked at length with my GI and a couple of GIs at his

hospital. The GIs at my surgeons hospital said I was much too

complex a case for them to feel comfortable with, They both said

they send their difficult cases to Dr. Sigman, who is my GI. So, my

surgeon said I am probably with the best GI (for panc stuff) in the

area. Anyway, they have now decided that the sphincter of oddi has

to be causing my problems. The surgeon said there is no way that

adhesions would cause the liver and pancreas enzymes to be elevated.

The surgeon explained that the sphincter of oddi is not functioning

properly at times. He said this is the cause of the pain and

nausea. He said at times it's functioning so poorly that it is

irritating the pancreas and causing the enzymes to rise. He said at

other times it is only malfunctioning enough to irritate the liver

and keep the liver enzymes elevated. He said sometimes it might only

be malfunctioning enough to cause me severe pain and nausea but not

mess up the blood levels.

>

> On Wednesday, the GI is going to go in and open the duct more so

the sphincter of oddi can work properly. If that does not work, the

next step will be a sphincteroplasty. However, the surgeon said that

is a very major and difficult surgery. The surgeon gave me the

choice of staying in the hospital or going home and coming back on

Wednesday. I elected to come home. He sent me home with plenty of

pain meds. He told me to take the meds round the clock and to not

allow my pain to get bad. He gave me mepergan fortis

(demerol/phenergan) and said I could take up to 3 at a time if I need

to. He also told me if it gets worse again, I am to contact him

immediately.

>

> Obviously, from the amount of drugs he is willing to give me, he

truly believes me when I tell him the pain is severe.

>

> Anyway, I am much better than I was Wednesday. I'm going to just

eat light between now and next Wed. when they do the procedure.

>

> I am also going to monitor my blood sugar over the next few days.

>

> Thanks to everyone for all your concern, prayers, and encouragement.

>

>

>

>

>

[Guest guest]

Cyndie,

I think it is normal for the liver enzymes to be elevated when the pancreas is

acting up. However, until my surgeon got involved, my GI was saying that

something other than the pancreas was causing the pancreatitis. He based this

on the fact that I had pain even when the pancreas enzymes were normal and the

pancreas looked fine on the ct scans, mrcp, and ultrasound. My liver enzymes

have been consistently elevated since at least March. Sometimes only slightly

elevated, but other times they have been more than 20 times the normal limit.

The sphincter of oddi problem does sound exactly like what I have going on. I

think the pancreas may look okay on all the tests only because it may not have

yet sustained enough damage to show up on the tests. However, I do believe that

it is only a matter of time before the pancreas becomes permanently damaged and

this will turn into chronic panc if they don't do something to keep me from

having these repeated attacks. Granted, I have had too many attacks to count

since this problem resurfaced on Jul 18th. The amylase and lipase were only

elevated two times out of the 6 times I've had blood work done during an attack.

The liver enzymes were elevated every time except one.

My GI was willing to simply sit back and do nothing and let me keep having the

attacks. However, my surgeon feels that they must do something now to try and

prevent the attacks before this definitely turns into chronic panc vs recurring

acute attacks.

My surgeon first talked about doing a liver biopsy but after reviewing all my

tests, he said the only thing that really makes sense with my case is a

sphincter of oddi problem that is causing three scenarios with me

1. pain and nausea but not enough irritation to the pancreas or liver to

raise the enzyme levels

2. pain and nausea with enough irritation to the liver to raise the liver

enzymes but not enough irritation to the pancreas to raise the pancreas enzymes

3. pain and nausea with the sphincter of oddi malfunctioning enough to

cause irritation to the liver and pancreas and raise both the pancreas and liver

enzyme levels

Re: home from the hospital

Hi ,

Welcome home! This is new member Cyndie from Indiana.

I wanted to say something in regard to elevated liver enzymes. More

often than not, my Amylase is only slightly elevated or sometimes

even normal, but my liver enzymes are always sky-high! My GI said

that was because of the close proximity of the liver & pancreas and

the adjoining bile ducts and that it was " normal " for the liver

enzymes to be effected also. Last month my PCP did some routine

blood work on me and noted that the liver enz. were high and just

asked if I had just gotten over an acute attack w/ Mr. P and I told

him yes that I had 2 weeks before.

Then at other times when I've not had a recent attack my liver enz.

will be normal.

So, I don't know what to think now. Maybe I SHOULD be concerned about

my liver, huh?

Anybody???

Take care and best of luck & God's Blessings with the

procedure/surgery next month.

Cyndie :-)

In pancreatitis@y..., " Weston " wrote:

> Well, I am home once again. I thought when I went to the hospital

that the surgeon was going to go ahead and do a laporotomy to look at

the pancreas and also do a liver biopsy. After he admitted me, he

decided he wasn't sure if that's what they should do. When I got to

the hospital on Wed. evening, my amylase and lipase were normal.

However, my liver enzymes were higher than they had been the day

before. The liver enzymes more than doubled from Wednesday night to

Thursday morning, but then this morning they were starting to go back

down.

>

> My surgeon talked at length with my GI and a couple of GIs at his

hospital. The GIs at my surgeons hospital said I was much too

complex a case for them to feel comfortable with, They both said

they send their difficult cases to Dr. Sigman, who is my GI. So, my

surgeon said I am probably with the best GI (for panc stuff) in the

area. Anyway, they have now decided that the sphincter of oddi has

to be causing my problems. The surgeon said there is no way that

adhesions would cause the liver and pancreas enzymes to be elevated.

The surgeon explained that the sphincter of oddi is not functioning

properly at times. He said this is the cause of the pain and

nausea. He said at times it's functioning so poorly that it is

irritating the pancreas and causing the enzymes to rise. He said at

other times it is only malfunctioning enough to irritate the liver

and keep the liver enzymes elevated. He said sometimes it might only

be malfunctioning enough to cause me severe pain and nausea but not

mess up the blood levels.

>

> On Wednesday, the GI is going to go in and open the duct more so

the sphincter of oddi can work properly. If that does not work, the

next step will be a sphincteroplasty. However, the surgeon said that

is a very major and difficult surgery. The surgeon gave me the

choice of staying in the hospital or going home and coming back on

Wednesday. I elected to come home. He sent me home with plenty of

pain meds. He told me to take the meds round the clock and to not

allow my pain to get bad. He gave me mepergan fortis

(demerol/phenergan) and said I could take up to 3 at a time if I need

to. He also told me if it gets worse again, I am to contact him

immediately.

>

> Obviously, from the amount of drugs he is willing to give me, he

truly believes me when I tell him the pain is severe.

>

> Anyway, I am much better than I was Wednesday. I'm going to just

eat light between now and next Wed. when they do the procedure.

>

> I am also going to monitor my blood sugar over the next few days.

>

> Thanks to everyone for all your concern, prayers, and encouragement.

>

>

>

>

>

[Guest guest]

Cyndie,

I think it is normal for the liver enzymes to be elevated when the pancreas is

acting up. However, until my surgeon got involved, my GI was saying that

something other than the pancreas was causing the pancreatitis. He based this

on the fact that I had pain even when the pancreas enzymes were normal and the

pancreas looked fine on the ct scans, mrcp, and ultrasound. My liver enzymes

have been consistently elevated since at least March. Sometimes only slightly

elevated, but other times they have been more than 20 times the normal limit.

The sphincter of oddi problem does sound exactly like what I have going on. I

think the pancreas may look okay on all the tests only because it may not have

yet sustained enough damage to show up on the tests. However, I do believe that

it is only a matter of time before the pancreas becomes permanently damaged and

this will turn into chronic panc if they don't do something to keep me from

having these repeated attacks. Granted, I have had too many attacks to count

since this problem resurfaced on Jul 18th. The amylase and lipase were only

elevated two times out of the 6 times I've had blood work done during an attack.

The liver enzymes were elevated every time except one.

My GI was willing to simply sit back and do nothing and let me keep having the

attacks. However, my surgeon feels that they must do something now to try and

prevent the attacks before this definitely turns into chronic panc vs recurring

acute attacks.

My surgeon first talked about doing a liver biopsy but after reviewing all my

tests, he said the only thing that really makes sense with my case is a

sphincter of oddi problem that is causing three scenarios with me

1. pain and nausea but not enough irritation to the pancreas or liver to

raise the enzyme levels

2. pain and nausea with enough irritation to the liver to raise the liver

enzymes but not enough irritation to the pancreas to raise the pancreas enzymes

3. pain and nausea with the sphincter of oddi malfunctioning enough to

cause irritation to the liver and pancreas and raise both the pancreas and liver

enzyme levels

Re: home from the hospital

Hi ,

Welcome home! This is new member Cyndie from Indiana.

I wanted to say something in regard to elevated liver enzymes. More

often than not, my Amylase is only slightly elevated or sometimes

even normal, but my liver enzymes are always sky-high! My GI said

that was because of the close proximity of the liver & pancreas and

the adjoining bile ducts and that it was " normal " for the liver

enzymes to be effected also. Last month my PCP did some routine

blood work on me and noted that the liver enz. were high and just

asked if I had just gotten over an acute attack w/ Mr. P and I told

him yes that I had 2 weeks before.

Then at other times when I've not had a recent attack my liver enz.

will be normal.

So, I don't know what to think now. Maybe I SHOULD be concerned about

my liver, huh?

Anybody???

Take care and best of luck & God's Blessings with the

procedure/surgery next month.

Cyndie :-)

In pancreatitis@y..., " Weston " wrote:

> Well, I am home once again. I thought when I went to the hospital

that the surgeon was going to go ahead and do a laporotomy to look at

the pancreas and also do a liver biopsy. After he admitted me, he

decided he wasn't sure if that's what they should do. When I got to

the hospital on Wed. evening, my amylase and lipase were normal.

However, my liver enzymes were higher than they had been the day

before. The liver enzymes more than doubled from Wednesday night to

Thursday morning, but then this morning they were starting to go back

down.

>

> My surgeon talked at length with my GI and a couple of GIs at his

hospital. The GIs at my surgeons hospital said I was much too

complex a case for them to feel comfortable with, They both said

they send their difficult cases to Dr. Sigman, who is my GI. So, my

surgeon said I am probably with the best GI (for panc stuff) in the

area. Anyway, they have now decided that the sphincter of oddi has

to be causing my problems. The surgeon said there is no way that

adhesions would cause the liver and pancreas enzymes to be elevated.

The surgeon explained that the sphincter of oddi is not functioning

properly at times. He said this is the cause of the pain and

nausea. He said at times it's functioning so poorly that it is

irritating the pancreas and causing the enzymes to rise. He said at

other times it is only malfunctioning enough to irritate the liver

and keep the liver enzymes elevated. He said sometimes it might only

be malfunctioning enough to cause me severe pain and nausea but not

mess up the blood levels.

>

> On Wednesday, the GI is going to go in and open the duct more so

the sphincter of oddi can work properly. If that does not work, the

next step will be a sphincteroplasty. However, the surgeon said that

is a very major and difficult surgery. The surgeon gave me the

choice of staying in the hospital or going home and coming back on

Wednesday. I elected to come home. He sent me home with plenty of

pain meds. He told me to take the meds round the clock and to not

allow my pain to get bad. He gave me mepergan fortis

(demerol/phenergan) and said I could take up to 3 at a time if I need

to. He also told me if it gets worse again, I am to contact him

immediately.

>

> Obviously, from the amount of drugs he is willing to give me, he

truly believes me when I tell him the pain is severe.

>

> Anyway, I am much better than I was Wednesday. I'm going to just

eat light between now and next Wed. when they do the procedure.

>

> I am also going to monitor my blood sugar over the next few days.

>

> Thanks to everyone for all your concern, prayers, and encouragement.

>

>

>

>

>

[Guest guest]

Welcome to the ranks of the home and healing! Keep those

zip-n-squeezes handy... and be sure to use the clips on the tops of

the puree bags! I had a Mount Vesuvius-scale eruption of tomato soup

a couple of days after getting out of the hospital.

Beth

> Hi all. I came home from the hospital this afternoon. For those about

> to go in, it was nowhere as bad as I imagined. The biggest surprise

> is that I can't talk at all (what my friends have been waiting for

> for years!). Seriously though, thank you for the advice, the humor

> and the zip n squeeze. Now the craziness begins.

[Guest guest]

HIya glad 2 hear everything went ok for u. were u wired? how the

swelling and pain for you? hope its not too bad

[Guest guest]

HIya glad 2 hear everything went ok for u. were u wired? how the

swelling and pain for you? hope its not too bad

[Guest guest]

HIya glad 2 hear everything went ok for u. were u wired? how the

swelling and pain for you? hope its not too bad

[Guest guest]

In a message dated 6/24/2004 12:38:27 PM Pacific Standard Time,

hdlong@... writes:

,

I was in the hospital for three days due to my asthma and my diabetes.

I am still not feeling to good, so am resting a lot. I had a bacterial

infection in my lungs, so i am pumped up on steroids and taking double the

insulin

to combat the high blood sugars.

Hi Helen, glad you are home. I am sure glad I pray for my loopy families,

as we never know what is going on. Rest, drink lots and recover. I know you

will be right back here as soon as you are feeling chipper. Hugs, Marilyn

[Guest guest]

hi helen! glad you are home and hope you feel better soon!

rach

> Hi,

> I was in the hospital for three days due to my asthma and my

diabetes. I am still not feeling to good, so am resting a lot. I

had a bacterial infection in my lungs, so i am pumped up on steroids

and taking double the insulin to combat the high blood sugars.

>

> Will write more later...

>

> Helen

>

>

[Guest guest]

I'm glad you are home. Have a safe trip to MI next week. My appointment is

on the 7th. I get to go have a high resolution lung CAT scan on Sunday - NPO

for 6 hours before hand.

laurie

>

> Reply-To:

> Date: Fri, 14 Jan 2005 18:37:11 -0800 (PST)

> To:

> Subject: Home from the Hospital

>

> Hey everyone,

>

> I just wanted to let you know that I am home from the hospital. The Doctors

> at the hospital down here finally got a hold of Dr. Simpson today. He had

> them run some different blood tests, one to see if there were any blood clots

> running through my bloodstream anywhere and a couple of others...I think maybe

> to check my lactic acid level and stuff. Anyway, I am getting a wheelchair

> delivered to me on Monday. The doctors down here new little or nothing about

> Mito but we gave them the UMDF website and I think that one of the Dr's

> actually looked at it. Anyway, the ER doctor that admitted me said that he

> has actually seen a few patients at the emergency room with MITO disorders. I

> will be going through speech, occupational, and physical therapy for a month

> or so there.

>

> My speech is not 100% yet. I have trouble starting sentences, and also using

> some words sucah as W, M, and B.

>

> Anyway, I will be going to Dr. Simpson on Tuesday. I will let you know what

> happens with that.

>

> Thanks,

>

>

>

> McCombs

> 2 Cor 1:3-4

>

>