Thank You

[Guest guest]

Hi everyone......

I have really been out of commission for a while. Just wanted to send out

a BIG Thank You!!!! You have all been very supportive during this hard

time in our lives. I am sorry that I haven't been able to reply back to

everyone. I have been so busy.......but I do want you all to know that the

word's of comfort and support have helped out. Special thank you to all.

We will keep you all posted as time goes on. Spencer is now even skinnier

than before, not really responding to treatment well, but happy and acting

like a two year old...as if it wasn't bad enough that he disconnects his

g-tube...now he is disconnecting his IV's at night. He can't just pull

this one apart he has to twist it to get it apart. agh.......oh well. I

guess I will have to figure out how to handle this one.

Oh, and he is always telling me " No " . Like Spencer it's time for

bed.....he say's " no, no, no, no " ..........on and on, very funny, though I

try not to laugh in front of him as it is going to get annoying after a

while.

Love,

Mum to Spencer....Pyloric Stenosis....fixed. Nissen Fundo due to

misdiagnosis of Reflux, G-tube, Primary Eosinophilic Colitis, eosinophilic

Esophogitis and gastritis, NeuroPathic Motility Disorder of the small

intestines, Dumping Syndrome, Non-Functional stomach, Severe allergies (to

everything on the face of the earth), Athsma, and TPN (IV) Dependent

and..........just the cutest little guy in the world and a blessing to all.

andrea.allred@...