Guest guest Posted September 6, 1998 Report Share Posted September 6, 1998 Hi I hope this finds everyone well. Tomorrow we are going to half of 's regular dose. I am so nervous. He has been doing ok. Not great, just ok. I can definitely tell the difference in his appetite. He rarely even asks for food and at mealtimes, he gets up to the table and says, " I'm full " without eating anything. His stools have not really been that numerous but are definitely more watery. I have really been trying to keep my hopes up that when we get him off the Prednisone that his biopsy will be clean but I am so afraid to be let down again. If all continues to go fairly well with this weaning we will see the GI on the 23rd. This is the first time we have got to go a whole month. keeps asking when we are going to see Dr. Friesen. On a good note, I think I have definitely noticed getting taller. Even a neighbor commented on it today. I tried on the Tommy coat we paid an arm and a leg for last year when we were sure he would get a few years use out of it and it doesn't look like it will make it to winter. This is one time I don't mind a kid outgrowing his clothes. Dawn, mommy to Dakota, 6(in 1st grade, only a few more years before the boys are pounding down the doors) and , 2-1/2 (eosinophilic gastroenteritis, fundo 10/96) Quote Link to comment Share on other sites More sharing options...
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