Guest guest Posted August 23, 1998 Report Share Posted August 23, 1998 Dawn, I think I was answering some of your questions to me yesterday but got distracted mid-post and could not return until now. If you want to contact our kids GI, he is back from vacation tomorrow. His name is Jeff Bornstein and voice number is . He LISTENS to what I have to tell him and has always respected the fact that I see my children round the clock and none of them do. Putting my kids on the " roids " as he calls them was a last resort and he hates it as much as I do. As far as you having a " choice " on giving the kids prednisone, I would think that would be dictated by the child;s response and symptoms. I guess I can't relate to your reluctance to go to just GT feedings. For us it does not seem to be a choice because Kody cannot tolerate bolus feeds. He has to be tube fed and since we got the Zevex pump, it is a non-issue. IT does not limit him (at all) or us in any way and has proven to be a valuable asset in his treatment. More power to you guys that can get your kids to drink Neocate. We had NO luck with that one, he took one sip, one time and never again. Oh well. .. SJHarlow@... http://www.c4isr.com/harlow Quote Link to comment Share on other sites More sharing options...
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