No more food

[Guest guest]

<< I think I have counted 3-4 on this list now who definitely do better off

of food. I know I fought that trial but now that I see how much

better Kody feels without food, I could honestly say that as long as he

stays this happy.. eating is not all that important to me!>>

We are there!! Arissa doesn't know but she had her last 'meal' a few hours

ago. Starting tomorrow, it will Neocate and only Neocate. She has been

'asleep' for 2 hours and been crying for 1.5 hours of this sleep. I have

had it. We are all miserable. We have nothing to lose and EVERYTHING to

gain!! Let you know how it goes.

Phyllis-mom to

Arissa (12/22/95) EG, multiple food allergies, occasional asthma

Remi 6, Spina Bifida, developmental delays, allergies-nuts, shellfish and

latex

[Guest guest]

> We are there!! Arissa doesn't know but she had her last 'meal' a few

hours

> ago. Starting tomorrow, it will Neocate and only Neocate. She has been

> 'asleep' for 2 hours and been crying for 1.5 hours of this sleep. I have

> had it. We are all miserable. We have nothing to lose and EVERYTHING to

> gain!! Let you know how it goes.

>

Please keep us informed how this goes. I would love to do this and I think

I truly would if we could get to just drink the formula but forgoing

food for us means tube feeds. Hubby and I decided last night that when

was tube fed strictly the formula, he was the healthiest we have ever

seen him. Even on the Prednisone then, he was rarely sick.

We are trying again to get to drink the formula to no avail today.

We will continue to try but until we can depend upon it for nutrition we

will have to continue to feed .

Dawn, mommy to Dakota, 6(going on 20) and , 2-1/2 (eosinophilic

gastroenteritis, fundo 10/96)

>