CLAYTONS RETURN TRIP TO THE HOSPITAL ER

[Guest guest]

Hi all:

No sooner had Clayton been discharged from the hospital did we have to make an

emergency visit to the St. s ER. Last night when the home nurse

came over to demonstate the equipment and do vitals on Clayton he went

balistic (SLAB). He would not calm down. We hooked him up to the pump at 8pm

and he screamed almost non-stop unitl 8:45 when he finally calmed down and

fell asleep (allbeit not a deep sleep). He was up screaming at 10pm (we vented

him - an explosion came out) and rehooked him up. (THe nurse was there only to

show us how to use the equip and do a visit). He then screamed on and off

until 11pm. At 11pm Barry filled the bag and about 1/2 hour later Calyton

started to get hysterical again. We vented him - some air but no explosion

this time. However Clayton would not calm down so Barry picked him up and held

him - this seemed to calm him and we put him back down (mind you he is

sleeping in our room at this time). Clayton again got hysterical and we

decided to see if he would calm down - he did for about 15 minutes and then

got hysterical again. We agreed to let him cry for 15 minutes - however he

kept getting more hysterical so I got up a checked on him and lo and behold -

CLAYTON PULLED OUT HIS G-TUBE. THe surgeon half ecpected the tube not to last

4-6 weeks due to the fact that they had to use a silicon tube and not a latex

one. (they had to put it in twice during surgery because it fell out the first

time).

got to the ER around 1:30am (they were expecting me as Barry had called to say

I was on the way) and the surgery fellow (yes Dr. Putz) was waiting

for us. He was able to get a tube in but we had to wait an hour for the

radiolosit to get there to shoot some dye into the tube to see where it was.

Once the dye showed the tube was in place they took it out and put in another

one with a ballon and then blew up the balloon. He was then readmitted (to the

same room) to ensure that the tube worked properly. They also put an IV in him

(took 4 sticks to do it) so they could hydrate him as he missed most of his

feeds. Around 8am they started to pump pedicalyte through the tube and around

11am they started the Neocate 1+ - clayton was very cranky I am not sure if it

was from being overtired, the pump, or pain (but I suspect a combination of

all 3). ANyway around 3pm they let us go home. Clayton was still cranky but we

decided to go.

Barry, being the salesman that he was has convinced our insurance company to

provide 8 hours of nursing (11pm-7am) for the next week to ensure that the

tube stays in and that he does not pull it out so that the hole can form and

scar properly. It is going to be a long couple weeks until he can get his

button. I expected him to pull it out - but no this soon. Oh well - my luck -

if it can go wrong with Clayton it usually does. We now have to watch for

fever and any possible infection.

Well gotta run. Clayton is starting to rustle and is about to get up from his

nap. BTW he is still refusing to drink his bottles (will take some juice by

mouth) and will eat nothing but some cheerios. Oh well.

Thanks for the support.

love,

sharon