Re: CLAYTONS RETURN TRIP TO THE HOSPITAL ER

[Guest guest]

Sharon,

I am so sorry Clayton is having such a rough time!!!

Some of this we went through with Kody too after his Nissen. Hindsight

is 20/20 however and I am surprised you are not putting him EXCLUSIVELY

on Neocate 1+ with nothing by mouth,,, especially postop. That has been

a good solution for us...

Once things settle down and you all get used to whole situation, then

you could try introducing some of those food protiens that seem to reak

havoc with " our " kids

SJHarlow@...

http://www.c4isr.com/harlow

[Guest guest]

In a message dated 98-08-21 19:02:37 EDT, you write:

<< Some of this we went through with Kody too after his Nissen. Hindsight

is 20/20 however and I am surprised you are not putting him EXCLUSIVELY

on Neocate 1+ with nothing by mouth,,, especially postop. That has been

a good solution for us... >>

He is basically on an excelusive Neocate 1+ diet with the exception of the

feww things we knoe he can tolerate or will eat - Cheerios, french fries and a

couple of baby foods. However, with the exception of the cheerios he really

shows no desirte to eat.

love,

sharon

mommy to Jake (5) and fraternal twins (3/30/97) - Cole -(nda)

and Clayton (eosinophil gastroenteritis, food allergies, g-tube, Nissen and

possible latex allergy, some dd and undiagnosed neuro issues)

[Guest guest]

Sharon

Oh my! this is the week for pulling out g-tubes. Ben pulled his out balloon

and all, I was scared but had to stay calm for Mike. Thank goodness I had a

spare. Why cant they put a button G in now? Hope all goes better now,

Get some sleep.

HUGS

Jane

[Guest guest]

In a message dated 98-08-24 15:35:12 EDT, you write:

<< Why cant they put a button G in now? >>

They canot put a button in for at leat 4-6 weeks (closer to 6) due to the

surgery and to give the hole time to form and a scab to form. I will see the

surgeon on Thursday for a post-op visit and will get more information.

love,

sharon

mommy to Jake (5) and fraternal twins (34.5 weeks) (3/30/97) - Cole -(nda)

and Clayton (eosinophil gastroenteritis, food allergies, g-tube, Nissen and

possible latex allergy, some dd and undiagnosed neuro issues)