's results-You won't believe it!

[Guest guest]

Well the nurse finally called today with 's results which he said were

perfectly CLEAN. No eosinophils. I still can't believe it. I still have

a ton of questions I am waiting for the actual GI doc to call me back.

Mostly, if the eosinophils are gone, why is still having diarrhea and

still having tummy pain. The nurse who I talked to said our GI doc wanted

to admit to see why these things are still going on. We still come

down to the fact that the hospital is not a good place for and I

think our GI doc is admit-happy. I asked the nurse if this meant we could

take off all the meds, mostly the Prednisone and she said no that if

you take them away too soon, the eosinophils will come back. She said we

should continue them for 8 more weeks and then see. I am unsure if this

means is cured or what. Has anyone ever had an eosinophil free

biopsy?

Dawn, mommy to Dakota, 6(going on 20) and , 2-1/2 (eosinophilic

gastroenteritis, fundo 10/96)

[Guest guest]

Dawn,

Yes yes yes.. This is exactly what happens with prednisone and EG and

EE( there are now two studies out there on this).

A hallmark difference in this disease and just reflux or other diseases

is that prednisoine is the ONLY thing that works. When my kids went on

it the first time it was the ONLY time they did not have eos in the

biopsies. We left them on it for a few months, then tapered off and all

the symptoms gradually returned and follow up biopsies showed a complete

return of all the eos.

SJHarlow@...

http://www.c4isr.com/harlow

[Guest guest]

I am so bummed!!!

So, although our GI said no, the Prednisone can mask the disease?

Can you give me your GI's phone number and name. I would like to tell Dr.

Friesen about this and have him call him if you wants to know for sure.

I am thinking a trip to Walter might not be a bad idea but my only

thing is that I don't want on Prednisone forever. Do I get a choice?

Dawn, mommy to Dakota, 6(going on 20) and , 2-1/2 (eosinophilic

gastroenteritis, fundo 10/96)

----------

> From: SJHarlow@...

> To: eosinophilic gastroenteritis (AT) onelist (DOT) com

> Subject: [eosinophilic gastroenteritis] Re: 's results-You won't believe it!

> Date: Friday, August 21, 1998 5:58 PM

>

> From: SJHarlow@...

>

> Dawn,

>

> Yes yes yes.. This is exactly what happens with prednisone and EG and

> EE( there are now two studies out there on this).

>

> A hallmark difference in this disease and just reflux or other diseases

> is that prednisoine is the ONLY thing that works. When my kids went on

> it the first time it was the ONLY time they did not have eos in the

> biopsies. We left them on it for a few months, then tapered off and all

> the symptoms gradually returned and follow up biopsies showed a complete

> return of all the eos.

>

> SJHarlow@...

> http://www.c4isr.com/harlow

>

>

> ------------------------------------------------------------------------

>

[Guest guest]

Arissa's biopsy last week was cleanER but not spotless. We feel exactly

the way you do-why is she is so much pain and so unhappy then. There was

such a big difference when she was off all foods. If it is not the EOS and

not the reflux-WHAT IS IT????? And now that she is eating again, the

asthma is back and she is on 6 treatments and day. WHY????

Phyllis-mom to

Arissa (12/22/95) EG, multiple food allergies, occasional asthma

Remi 6, Spina Bifida, developmental delays, allergies-nuts, shellfish and

latex

[Guest guest]

> Arissa's biopsy last week was cleanER but not spotless. We feel exactly

> the way you do-why is she is so much pain and so unhappy then. There was

> such a big difference when she was off all foods. If it is not the EOS

and

> not the reflux-WHAT IS IT????? And now that she is eating again, the

> asthma is back and she is on 6 treatments and day. WHY????

I am printing many of these messages to show to Dr. Friesen that I am NOT

crazy. I thank you Phyllis for this reassurance. If shows no EOS in

his biopsy then why all the diarrhea still and why does he still cry with

tummy pain. I sometimes feel so crazy.

Dawn, mommy to Dakota, 6(going on 20) and , 2-1/2 (eosinophilic

gastroenteritis, fundo 10/96)