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CLAYTON IS HOME

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CLAYTON IS HOME, CLAYTON IS HOME, CLAYTON IS HOME. I CANNOT SHOUT THIS LOUD

ENOUGH.

Clayton came home this afternoon. He is doing ok - he is still very pale and

weaker than before the surgery but all in all seems to be ok. He is not as

happy as he was a couple of days ago - but we have been pumping more food into

his little body in the past 3 days than he has eaten in the past several

months (only a slight exageration). I do not think his tummy is used to all

that food. Last night he had 4 gaging and wretching episodes where the nurse

had to turn off the feeding pump and vent him. But he still seems happier than

before and is still sleeping somewhat better (not through the night but at

least he is not screaming through the night either).

He is still is basically refusing to eat by mouth and now he will not drink

his bottle anymopre but will at least take some juice by mouth and a few

cheerios. We will keep trying but at least now I know he is getting some

nutrition.

Well I am getting ready to crash as my body is just worn out. Thanks to

everyone for all their support and prayers. Please keep praying that Clayton

keeps getting better.

love,

sharon

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