Guest guest Posted August 16, 1998 Report Share Posted August 16, 1998 Hi all: Well clayton did not make it out of the special care unit today. He had a very rough day - spending most of the day screaming none stop no matter what he was given, morphine, atarax, atavan, benadryl. he screamed non stop from 4 pm until after midnight. Right now he is quiet but not sleeping yet. If he does not fall asleep soon (1am) then he will be trying chloral hydrate. It does not appear to be being caused by the Nissen or g-tube thus it appears to be caused by something else. We will be having the neuro consult tomorrow. I am now going crazy but at least the nurses and doctors (mainly residents) are seeing what I deal with at home and that I am not crazy. MAYBE I WILL GET SOME ANSWERS WHEN WE ARE IN HERE. Feeling very depressed and wondering if it will get any better. love, sharon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 1998 Report Share Posted August 17, 1998 Sharon, It appears this has become more of an ordeal than you planned for. Unfortunately that seems to be the way it goes for our kids. My thoughts and prayers continue to be with you, Clayton and your family. I hope you do get some answers while your there. I know Luke's extended stay at s Hopkins made believers of many Doctor's that were skeptical, once they observed the sudden and strange changes in his condition. If there is anything at all that I can do to help, just let me know. Traci Quote Link to comment Share on other sites More sharing options...
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