Guest guest Posted August 14, 1998 Report Share Posted August 14, 1998 Well, I think I have determined where the blood in Kody's stool yesterday was coming from. Today when I went to get him up from his nap, he had fresh blood around his GT site (the site otherwise is clear, NO granulation and no swelling or unusual redness around the site, just fresh, red blood) There is also not a lot of blood, it covers just less than an inch in circumference around the site, He is not complaining much of anything either, his activity level is about normal for him. I was beginning to think yesterday that he might need a bigger tube, he has gained a whole pound this week and is getting double the formula he was getting two weeks ago, he is doing so well. the tube is a little snug. I hate to put him through taking it out and measuring it,but this blood thing is a bit disturbing. DOES ANYONE HAVE ANY THOUGHTS ON THIS OR HAVE YOU GONE THROUGH THIS. SJHarlow@... http://www.c4isr.com/harlow Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 1998 Report Share Posted August 17, 1998 In a message dated 8/14/98 9:11:58 PM Central Daylight Time, SJHarlow@... writes: << I hate to put him through taking it out and measuring it,but this blood thing is a bit disturbing. >> You could withdraw the water from the balloon without taking the tube out if it is a mickey tube. then reinsitll the correct amount. Maybe there was more irritation around the site and caused some bleeding, just a thought. Jane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 1998 Report Share Posted August 19, 1998 Kody continues to do well, off of all food and on the prednisone. It is a terrble thing to refuse him food. WE try to distract him and eat when he is not around. Someimtes it works better than others. However, he has done better over the last couple of weeks than EVER before in his life. As much as you don't want to keep food away from your son, (and I would have agreed with you until the past couple of weeks).. this is a definite eye opener for me. It is more important for Kody to have a happy daily life without the constant pain, retching, etc etc. than it is for him to eat. It is not much of a stretch to say that food was killing him. we have had trouble with the tube but that was solved by putting in a larger one and his bleeding seems to hae subsided. SJHarlow@... http://www.c4isr.com/harlow Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 1998 Report Share Posted August 19, 1998 How is Kody doing? Dawn, mommy to Dakota, 6(going on 20) and , 2-1/2 (eosinophilic gastroenteritis, fundo 10/96) ---------- > From: SJHarlow@... > To: eosinophilic gastroenteritis (AT) onelist (DOT) com; gtube@... > Subject: [eosinophilic gastroenteritis] Blood around GT site > Date: Friday, August 14, 1998 9:11 PM > > From: SJHarlow@... > > > Well, I think I have determined where the blood in Kody's stool > yesterday was coming from. > > Today when I went to get him up from his nap, he had fresh blood around > his GT site (the site otherwise is clear, NO granulation and no swelling > or unusual redness around the site, just fresh, red blood) There is > also not a lot of blood, it covers just less than an inch in > circumference around the site, > > He is not complaining much of anything either, his activity level is > about normal for him. I was beginning to think yesterday that he might > need a bigger tube, he has gained a whole pound this week and is getting > double the formula he was getting two weeks ago, he is doing so well. > the tube is a little snug. I hate to put him through taking it out and > measuring it,but this blood thing is a bit disturbing. > > DOES ANYONE HAVE ANY THOUGHTS ON THIS OR HAVE YOU GONE THROUGH THIS. > > SJHarlow@... > http://www.c4isr.com/harlow > > > ------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
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