The scopes

[Guest guest]

Hi All Its Zachs mom After all of this talk about eos levels and dxs,

Zach is going to be scoped and have a biopsy when he goes in for his eye

surgery in 2 weeks. Last nite he got really sick on his tube feeds he gets fed

24/7 on Peptamen Jr through his jtube hes had 7 nissens a pyloroplasty an

esophageal myotomy and I am anxious to see what the outcomes are of his scopes

and biopsies. His last eos levels were ok but that was over a year ago and

that was just through a routine CBC count Right now he is on pedialyte and he

gets this way every 3-4 weeks where he cant tolerate anything but pedialyte

for a week and then hes ok for a couple then it starts all over again He

doesnt fit the typical regimen for his dxs We dont have an official dx of EE

yet but hope to find out more soon

TTFN

[Guest guest]

We are back from St. Chris. It seems like this day is lasting forever. I

have to say this was my 4th time in the SPU and this was the most organized

they have ever been. I was impresses. Enough about the hospital, on to

Arissa.

Well, there was nothing glaring in the scopes. She was biopsied thru out

the whole tract again and she had higher than usual bleeding. This

happened last time. The doc feels this is due to so much inflammation. We

won't know much until Friday or Monday, when the results are in. He did

same the duodenrum or small intestines were the worst. I do feel

like the guessing we have been doing is somewhat accurate (that she is not

a cranky kid but in pain) since she is still inflamed. And since she is

not on food and is happier, that is even more support for that conclusion.

AFter the procedures was a disaster agian. She started having blue spells

in the OR when they woke her up. They had to sedate her to get her to calm

down. When it wore off in the first recovery room, the same thing happened

and more morphin. When she was up, she turned blue a few more times, the

sat keep falling and she needed oxygen. She just doesn't want to breathe.

I was more prepared for it to happen but that isn't much comfort when she

is gasping for air. I do not look forward to going thru this again.

I asked about Vivanex since Arissa won't drink the Neocate anymore. The

doc felt it is more of a tube feed because of its taste but he said we can

give it a try. Also, he is holding off on the prilosec until the results

are in but if we go on it, it will be compounded. Thanx for the info!!

Thank you for all your good wishes. I am glad it is over. I wish Sharon,

Clayton, and Dawn good luck too, and an even easier time than we had!

Phyllis-mom to

Arissa (12/22/95) EG, multiple food allergies, occasional asthma

Remi 6, Spina Bifida, developmental delays, allergies-nuts, shellfish and

latex

[Guest guest]

In a message dated 98-08-11 20:53:00 EDT, you write:

<< We dont have an official dx of EE

yet but hope to find out more soon >>

:

good luck with the surgery and the cope. We will be thinking of you. I hope

that the scope yiled hte answers that you are looking for.

love,

sharon

mommy to Jake (5)-nda, and fraternal 34.5 week twins Cole (3/30/97) - nda

(reformed refluxer) and Clayton(3/30/97) (eosinophil gastroenteritis, mild

developmental delays, food allergies (milk, soy, egg, wheat) Nissen and g-tube

scheduled 8/14/97)