Guest guest Posted August 10, 1998 Report Share Posted August 10, 1998 I was curious if anyone else received a questionnaire from PIC in the mail last week. Has anyone had any recent correspondence with this group. They contacted me months ago stating they were starting a non-profit organization and a newsletter. At the time they had a web page. I tried e-mailing them several times but never received any reply until recently when they sent a letter requesting a membership fee. I did not reply. Now I have received a survey requesting lots of personal info. They say it is to help get laws passed for the coverage of Neocate. I am hoping this is a legitimate group. Anything I can do to help families get coverage for Neocate is worthwhile. BUT, I am concerned because the only recent correspondence I have received has given very little info while requesting money and personal information. Unfortunately, in today's society you can never be too careful. Has anyone else heard from them. Have you responded. Has anyone been in touch with the two women who started this group. Jen ( (11/7/95) eosinophilic esophagitis, food allergies, asthma) Quote Link to comment Share on other sites More sharing options...
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