Guest guest Posted August 10, 1998 Report Share Posted August 10, 1998 In a message dated 98-08-10 13:52:07 EDT, you write: << I am hoping this is a legitimate group. Anything I can do to help families get coverage for Neocate is worthwhile. BUT, I am concerned because the only recent correspondence I have received has given very little info while requesting money and personal information. Unfortunately, in today's society you can never be too careful. Has anyone else heard from them. Have you responded. Has anyone been in touch with the two women who started this group. >> THey 2 women are legitimate and used to be patients of Dr. in Washington. However, I have only heard for them, sporadically and thus the reason I started this list. I would love to do a web page but do not have the know hows. Any one know how to do this. One of them called me once regarding an e-mail I sent, but I never got any information other than that except the same questionaire and an e-mail indicating the questionaire was coming. love, sharon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 1998 Report Share Posted August 10, 1998 In a message dated 98-08-10 18:33:12 EDT, you write: << What is PIC?? I have never heard of them. >> It is a group called Protein Intolerant Children that was started in Washington D.C> area by parents who had EG or so and saw Dr. in Baltimore. Here is a link to their site. http://members.aol.com/PIChildren/index.html " >PIChildren's Home Page love, sharon mommy to Jake (5)-nda, and fraternal 34.5 week twins Cole (3/30/97) - nda (reformed refluxer) and Clayton(3/30/97) (eosinophil gastroenteritis, mild developmental delays, food allergies (milk, soy, egg, wheat) Nissen and g-tube scheduled 8/14/97) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 1998 Report Share Posted August 10, 1998 Me neither...... ---------- > > To: eosinophilic gastroenteritis (AT) onelist (DOT) com > Subject: [eosinophilic gastroenteritis] Re: PIChildren > Date: Monday, August 10, 1998 9:49 PM > > > > What is PIC?? I have never heard of them. > > > Phyllis-mom to > Arissa (12/22/95) EG, multiple food allergies, occasional asthma > Remi 6, Spina Bifida, developmental delays, allergies-nuts, shellfish and > latex > > > ------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 1998 Report Share Posted August 10, 1998 Hi Jen....yeah I got that same questionaire from them. I have never been asked for membership fee that I can recall. Amy (mom to 6yr old girl, 33 mon son, eosinophilic esophagitis,nissen, gtube, food allergies) drawe@... ---------- > > > I was curious if anyone else received a questionnaire from PIC in the mail > last week. Has anyone had any recent correspondence with this group. They > contacted me months ago stating they were starting a non-profit organization > and a newsletter. At the time they had a web page. > > I tried e-mailing them several times but never received any reply until > recently when they sent a letter requesting a membership fee. I did not > reply. Now I have received a survey requesting lots of personal info. They > say it is to help get laws passed for the coverage of Neocate. > > I am hoping this is a legitimate group. Anything I can do to help families > get coverage for Neocate is worthwhile. BUT, I am concerned because the only > recent correspondence I have received has given very little info while > requesting money and personal information. > > Unfortunately, in today's society you can never be too careful. Has anyone > else heard from them. Have you responded. Has anyone been in touch with the > two women who started this group. > > Jen > ( (11/7/95) eosinophilic esophagitis, food allergies, asthma) > > ------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 1998 Report Share Posted August 10, 1998 What is PIC?? I have never heard of them. Phyllis-mom to Arissa (12/22/95) EG, multiple food allergies, occasional asthma Remi 6, Spina Bifida, developmental delays, allergies-nuts, shellfish and latex Quote Link to comment Share on other sites More sharing options...
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