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In a message dated 98-08-11 15:58:09 EDT, you write:

<< I have a few questions...

has anyone else heard of a child having speech delays or developmental

delays from this disorder? >>

Clayton has speech delays and developmental delays - we are not sure why. He

is scheduled for a Nissen and g-tube placement on Friday.

love,

sharon

mommy to Jake (5)-nda, and fraternal 34.5 week twins Cole (3/30/97) - nda

(reformed refluxer) and Clayton(3/30/97) (eosinophil gastroenteritis, mild

developmental delays, food allergies (milk, soy, egg, wheat) Nissen and g-tube

scheduled 8/14/97)

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also has speech delays and developmental delays and I know someone

mentioned earier about the large eyes and pale complexion and has both

of these aswell. take care

angela and the munchkins

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In a message dated 98-08-12 02:58:12 EDT, you write:

<< also has speech delays and developmental delays and I know someone

mentioned earier about the large eyes and pale complexion and has both

of these aswell. take care >>

Also does nayone elses kids have big eyes, sort of lanky, almost bird chested

(with no shoulders) and pale.

love,

sharon

mommy to Jake (5)-nda, and fraternal 34.5 week twins Cole (3/30/97) - nda

(reformed refluxer) and Clayton(3/30/97) (eosinophil gastroenteritis, mild

developmental delays, food allergies (milk, soy, egg, wheat) Nissen and g-tube

scheduled 8/14/97)

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In a message dated 8/12/98, 6:57:21 AM, eosinophilic gastroenteritis (AT) onelist (DOT) com writes:

<

>

has large eyes and pale skin. I have to say that this is not uncommon

in my family. His speech is not delayed. Keep in mind he did not have a

feeding tube until he was two. He is very short for his age (bottom of the

chart). He has cherub type cheeks and is rather solid looking.

Jen

( 11/7/95, eosinophilic esophagitis, food allergies, asthma)

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My son used to have that kind of chest. He has always been very pale.

His dirty diapers were even white sometimes (I mean, the poo poo was

white in color). As far as big eyes go, I don't know, because big eyes

runs in our family. He does always have bags under his eyes, always!

(w/ Riley and Brittany)

>

><< also has speech delays and developmental delays and I know

someone

> mentioned earier about the large eyes and pale complexion and Chris

has both

> of these aswell. take care >>

>

>Also does nayone elses kids have big eyes, sort of lanky, almost bird

chested

>(with no shoulders) and pale.

>

>

>love,

>sharon

>mommy to Jake (5)-nda, and fraternal 34.5 week twins Cole (3/30/97) -

nda

>(reformed refluxer) and Clayton(3/30/97) (eosinophil gastroenteritis,

mild

>developmental delays, food allergies (milk, soy, egg, wheat) Nissen and

g-tube

>scheduled 8/14/97)

>

>

>------------------------------------------------------------------------

>

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  • 5 years later...
Guest guest

Thank you for articulating some of the things I didn't. I believe each one of

us has a piece to the puzzle.I wish to share what I have learned from many

frustrating complications. I hope to help ease any pain and suffering or

prevent any pain and suffering. I feel each one of us may know something that

others don't and it may be KEY information for someone. Please everyone who can

;speak up Feel free. Again,Thank you in respect, your new friend,Celeste

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Guest guest

I'm in Adelaide, Australia.

I was diagnosed with type 1 diabetes about 6 years ago and have now

been on insulin for about 2 1/2 years. No major complications, but it

is a constant battle to maintain some form of control.

Having a read through the messages so far, here are a few points that

I have learned:

1: Exercise is a big help. Not only to 'burn off' glucose but to

lower weight, and to help one's insulin work more effectively.

Aerobic actvitiy (for me) works better. Helps with the stress (and

energy levels) too.

2: My Dietician told me it is PROTEIN that tells us that we have

eaten. Include protein in meals to stop feeling hungry (if you are

worried about cholesterol, how about some tuna or other fish, say a

tuna salad..fish oils can be VERY healthy).

3: Carbohydrates are the body's main source of energy. Sugars (of

which there are diffferent types) are forms of carbohydrate).

The cells in the body usually burn the simplest sugar called GLUCOSE,

and insulin regulates the level of glucose in the bloodstream.

There are other forms of sugar such as fructose (found in fruit) and

Lactose (found in milk) but the body needs to convert these into

glucose before it can use them (they are usually glucose units

chained together in some form).

4: As carbodyrates need to be converted into glucose before they can

be used, they have less of an effect on glucose levels than straight

glucose (found in cane sugar). Foods such as whole weat pasta take

quite a while, so they don't raise the glucose level much - but keep

the level for much longer.

This is particularly good for diabetics where the pancreas does work

to some degree. It allows the necessary insulin to be produced over a

longer period of time, giving a more even glucose level (and also

gives you energy for longer).

There is a number used to give an idea on this called the GLYCAEMIC

INDEX (GI). The lower the number, the lower the effect on blood

glucose levels.

5: Most of managing diabetes comes down to a healthy lifestyle:

Healthy eating (low GI, low fat), Plenty of exercise, avoid stress

and no smoking.

6: Support of family & friends is very important. Being diagnosed

with diabetes changes onnes life - and it is a hard life as well.

7: Everybody is different. What works for one person may not work for

another. Part of coming to terms with diabetes is learning how it

affects the body.

In terms of chat..I am generally online during office hours - which

is basically Sunday-Thursday evenings in the 'States.

All the best,

.

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