IgE reactions and other common denominators

[Guest guest]

In a message dated 98-08-08 22:57:33 EDT, you write:

<< We aren't doing very well here. Any problems with the pregnancies? Any

meds during pregnancy? I took synthroid. I was also on and off

antibiotics. >> I was extremely sick during my pregnancy I was hospitalized

for a total of almost 6 weeks - off an on - IV fluids and could not keep any

food down. I was violently ill - mainly from 20 weeks on. I was on lots of GI

meds and even compazine when I would start to throw up violently. It did not

help matters that I had to have my gallbladder removed 8 weeks post partum -

apparently it was one of the most diseased and rotted ones the docs have seen

in a long time.

>>And no, I didn't know the prilosec could be made into a liquid. << You

cannot get it at a pharmacy - Dr, prescribed it as a last ditch effort

before surgery for Clayton following his last horrible ph probe - no luck -

they actually have to compound it and mix it with I believe sodium bicarbonate

at the pharmacy located at St. Chris.

love,

sharon

mommy to Jake (5)-nda, and fraternal 34.5 week twins Cole (3/30/97) - nda

(reformed refluxer) and Clayton(3/30/97) (eosinophil gastroenteritis, mild

developmental delays, food allergies (milk, soy, egg, wheat) Nissen and g-tube

scheduled 8/14/97)

[Guest guest]

In a message dated 98-08-08 23:07:36 EDT, you write:

<<

> doesn't get any skin problems but his asthma does get bad when he

eats what he isn't supposed to plus he starts having diarrhea within

minutes.<< Clayton who has problems pooping also starts to have diareha(sp)

when he eats things he should not - actually it is the only time he goes

without problems - but his problems pooping are mainly due to some gastric

emptying delay.

> He also had apnea,

bradys, (was on a monitor for 16 months), trouble with keeping his

temperature, and bilirubin.<, THis is exactly Clayton. On an apnea monitor

for a long time mainly for bradys also - he still gets them while under

ansthesia so they know to keep an eye on him. He had problems maintaining his

temp and bilirubin.

>

>> My pregnancy was horrible after 24 weeks.<< I went into labor and 20 weeks

and was in labor off and on due to dehydration until I delievered at 34.5

weeks.

>> I was on Terbutaline>> I was also on this off an on while in the hospital.

love,

sharon

mommy to Jake (5)-nda, and fraternal 34.5 week twins Cole (3/30/97) - nda

(reformed refluxer) and Clayton(3/30/97) (eosinophil gastroenteritis, mild

developmental delays, food allergies (milk, soy, egg, wheat) Nissen and g-tube

scheduled 8/14/97)

[Guest guest]

> Does anyone have children with IgG based allergies? Has anyone elses

child

> been tested for this?

>

has not had any type of allergy testing. Dr. Friesen told us at his

age and with EG, they are unreliable.

>

> Besides the ecezma, any other skin problems, like hives? AJ's are

severe.

>

doesn't get any skin problems but his asthma does get bad when he

eats what he isn't supposed to plus he starts having diarrhea within

minutes.

> Arissa was in the NICU for failure to breathe but was breast fed.

>

was in the NICU for a few weeks but he was 32 weeks so that wasn't

unusual. He mostly refused to eat, I keep wondering if that was the start

of EG but it is very common for preemies to not eat. He also had apnea,

bradys, (was on a monitor for 16 months), trouble with keeping his

temperature, and bilirubin.

> Clayton couldn't poop and Aj couldn't wait. She went before she was

born.

>

went before he was born too. Did they think AJ swallowed the

merconium?

> We aren't doing very well here. Any problems with the pregnancies? Any

> meds during pregnancy? I took synthroid. I was also on and off

> antibiotics.

>

My pregnancy was horrible after 24 weeks. I went into labor at 24 weeks

and didn't stop contracting until I had , even after being

hospitalized for 3 weeks at 29 weeks. At 32 weeks, the docs decided to go

ahead and let me deliver because wasn't giving them a choice. I was

on Terbutaline and Procardia from 24 weeks and Magnesium with them from

29-32 weeks. I also had 8 weeks of Betamethasone(sp?) shots to mature his

lungs although it didn't work.

Dawn

[Guest guest]

/i had bad pregnancy as well

----------

>

> To: eosinophilic gastroenteritis (AT) onelist (DOT) com

> Subject: [eosinophilic gastroenteritis] Re: IgE reactions and other common

denominators

> Date: Saturday, August 08, 1998 11:20 PM

>

>

>

>

>

> > Does anyone have children with IgG based allergies? Has anyone elses

> child

> > been tested for this?

> >

> has not had any type of allergy testing. Dr. Friesen told us at

his

> age and with EG, they are unreliable.

>

> >

> > Besides the ecezma, any other skin problems, like hives? AJ's are

> severe.

> >

> doesn't get any skin problems but his asthma does get bad when he

> eats what he isn't supposed to plus he starts having diarrhea within

> minutes.

>

> > Arissa was in the NICU for failure to breathe but was breast fed.

> >

> was in the NICU for a few weeks but he was 32 weeks so that wasn't

> unusual. He mostly refused to eat, I keep wondering if that was the

start

> of EG but it is very common for preemies to not eat. He also had apnea,

> bradys, (was on a monitor for 16 months), trouble with keeping his

> temperature, and bilirubin.

>

> > Clayton couldn't poop and Aj couldn't wait. She went before she was

> born.

> >

> went before he was born too. Did they think AJ swallowed the

> merconium?

>

> > We aren't doing very well here. Any problems with the pregnancies?

Any

> > meds during pregnancy? I took synthroid. I was also on and off

> > antibiotics.

> >

> My pregnancy was horrible after 24 weeks. I went into labor at 24 weeks

> and didn't stop contracting until I had , even after being

> hospitalized for 3 weeks at 29 weeks. At 32 weeks, the docs decided to

go

> ahead and let me deliver because wasn't giving them a choice. I

was

> on Terbutaline and Procardia from 24 weeks and Magnesium with them from

> 29-32 weeks. I also had 8 weeks of Betamethasone(sp?) shots to mature

his

> lungs although it didn't work.

>

> Dawn

>

> ------------------------------------------------------------------------

>

[Guest guest]

<>

Does anyone have children with IgG based allergies? Has anyone elses child

been tested for this?

AJ tested positive to 23 foods this way. It is supposedly not as accurate

but how many of us had kids tested the accurate way and gotten a false

positive or a false negative?

Besides the ecezma, any other skin problems, like hives? AJ's are severe.

Arissa was in the NICU for failure to breathe but was breast fed.

Clayton couldn't poop and Aj couldn't wait. She went before she was born.

We aren't doing very well here. Any problems with the pregnancies? Any

meds during pregnancy? I took synthroid. I was also on and off

antibiotics.

And no, I didn't know the prilosec could be made into a liquid. Two

different docs prescribed it at two different children's hospitals and no

one told me. They both explained to give it to her by opening the capsule

up. And at the begining, when we had a tough time getting it in her, I

asked at the pharmacy. Thanks for the info!!!

Phyllis-mom to

Arissa (12/22/95) EG, multiple food allergies, occasional asthma

Remi 6, Spina Bifida, developmental delays, allergies-nuts, shellfish and

latex

[Guest guest]

In a message dated 98-08-09 09:33:20 EDT, you write:

<< Several of us from the GT list have been able to get the local civilial

pharmacists to mix up the Prilosec liquid for us. I just had them call

the Rph at Watler and he told him what to do. >>

:

Have yhou and any of the others found that the liquid prilosec worked better.

It did not for clayton, but hopefully it will for others.

love,

sharon

[Guest guest]

In a message dated 98-08-09 09:39:07 EDT, you write:

<<

I bet we will find an allergic tendency in all our families that led to

this and we just got " lucky " to have this particular allergic phenomenon

in our kids. They are gene mapping my family and extended family and

scoping my brothers too (my father unfortunately died years ago after an

anti-reflux surgery -- before EG was even a known disease). to see if

there is a mappable link. >>

:

Interesting, I almost ended up with a central line when I was pregnant due to

be so sick. Luckily it was avoided. We have a very allergic family, me, my

brotehr, both my parents, barry, Jake (my older son - allergic to milk

protein, asthma and reformed reflux, 4 sets of ear tubes, tonsils and adenoids

out). ALso I have reflux (pretty severe buyt controlled usually by medicine).

ALl three of my kids had reflux, although only clayton has ended up with

severe problems. Jake is now healthy and can have some processed milk products

but one sip of milk gives him hives and makes him sick. He s also skinny for

five about 37 pounds and about 41-42 inches. Cole is the healthest with no

known food allergies - and he drinks whole milk, and eats everrything.

All my kids have had problems with numerous ear infection, see Jake above and

COle also had tubes at 9onth. Clayton needed them, but with so much going on

we held off and since the spring he luckily has been ear infection free.

Anyone elses kids have recurrent ear infections requiring tubes? How about

sleep apnea?

love,

sharon

[Guest guest]

Several of us from the GT list have been able to get the local civilial

pharmacists to mix up the Prilosec liquid for us. I just had them call

the Rph at Watler and he told him what to do.

SJHarlow@...

http://www.c4isr.com/harlow

[Guest guest]

Four of our five have elevated IgE and elevated peripheral (blood)

eosinophil counts. THey all had different food allergies. THe fifth

one did NOT have elevated IgE or eos (blood) but did have eos in the

esophagus. He is the only one NOT on prednisone yet. He is also the

one from my worst pregnancy. (I ended up on TPN from my own EE and

esophageal stricture). Actually our sickest two kids were the result of

my easiest two pregnancies so I dont think that is it.

I bet we will find an allergic tendency in all our families that led to

this and we just got " lucky " to have this particular allergic phenomenon

in our kids. They are gene mapping my family and extended family and

scoping my brothers too (my father unfortunately died years ago after an

anti-reflux surgery -- before EG was even a known disease). to see if

there is a mappable link.

SJHarlow@...

http://www.c4isr.com/harlow

[Guest guest]

I only use the liquid PRilosec on the GT fed kid and it works to keep

the ulcers at bay from the prednisone... we have always used the luiqiud

for this purpose, the rest use the capsules.

SJHarlow@...

http://www.c4isr.com/harlow

[Guest guest]

My sickest two (the worst IEE and allergies) also had several sets of PE

tubes. None of my kids were in the NICU, three did require

neonatologists to ensure the meconium was out but apgars were high and

problems were few in the beginning

SJHarlow@...

http://www.c4isr.com/harlow

[Guest guest]

> Anyone elses kids have recurrent ear infections requiring tubes? How

about

> sleep apnea?

>

had one right after another only after being on the Prednisone. He

just got tubes July 27 due to the fact that every antibiotic they gave him

made his diarrhea so severe. Does anyone else have problems giving their

children antibiotics? Does any notice the suppressed immunity on

Prednisone? picks up everything blowing in the wind.

Dawn

[Guest guest]

There are absolutely no people on either my hubbys or my side that have any

allergies.

Go figure!

Dawn

----------

> From: SJHarlow@...

> To: eosinophilic gastroenteritis (AT) onelist (DOT) com

> Subject: [eosinophilic gastroenteritis] Re: IgE reactions and other common

denominators

> Date: Sunday, August 09, 1998 8:39 AM

>

> From: SJHarlow@...

>

> Four of our five have elevated IgE and elevated peripheral (blood)

> eosinophil counts. THey all had different food allergies. THe fifth

> one did NOT have elevated IgE or eos (blood) but did have eos in the

> esophagus. He is the only one NOT on prednisone yet. He is also the

> one from my worst pregnancy. (I ended up on TPN from my own EE and

> esophageal stricture). Actually our sickest two kids were the result of

> my easiest two pregnancies so I dont think that is it.

>

> I bet we will find an allergic tendency in all our families that led to

> this and we just got " lucky " to have this particular allergic phenomenon

> in our kids. They are gene mapping my family and extended family and

> scoping my brothers too (my father unfortunately died years ago after an

> anti-reflux surgery -- before EG was even a known disease). to see if

> there is a mappable link.

>

> SJHarlow@...

> http://www.c4isr.com/harlow

>

>

> ------------------------------------------------------------------------

>

[Guest guest]

In a message dated 98-08-08 22:57:32 EDT, you write:

<< Does anyone have children with IgG based allergies? Has anyone elses child

been tested for this?

AJ tested positive to 23 foods this way. It is supposedly not as accurate

but how many of us had kids tested the accurate way and gotten a false

positive or a false negative? >>

At the last Food Allergy Network Conference in April in NJ, Dr. Wood

(Director of Allergy at 's Hopkins, with whom Dr. Sampson worked before he

went to Mt. Sinai last year), stated that IgG testing for food allergies is

inconclusive at best, and RAST and IgE skin testing for FOOD allergies (not

environmental allergies) are also less than accurate, and up to 50% of

" positives " can be false positives.

I've had my son test negative and positive for soy allergy (which we know he

has) and he has tested positive for tomato yet he eats these without a

problem.

Also, I might add that they stated that food challenge would be the only way

to disprove a " positive " (they do their food challenges in-house, not at

home!) and that once an allergy is " outgrown " , the IgE testing can still

remain positive for years.

Lynda

[Guest guest]

>> Anyone elses kids have recurrent ear infections requiring tubes?

Bad ear infections but everytime we took Arissa off of all foods, they went

away.

>>How about sleep apnea?

Arissa had apnea and was on the monitor for 5 months. She was a full term

baby.

>>Does anyone else have problems giving their children antibiotics?

There isn't an antibiotic that Arissa has taken that she hasn't gotten a

reaction too.

But the senario goes like this-intro new food, ear infection, antibiotics,

allergic reaction to antibiotic. reactions included swelling, hives,

rashes, throwing up.....My doc hides when he sees us coming. Then we

stopped trying to add foods and just increase the volume of the 4 she eats.

Phyllis-mom to

Arissa (12/22/95) EG, multiple food allergies, occasional asthma

Remi 6, Spina Bifida, developmental delays, allergies-nuts, shellfish and

latex

[Guest guest]

Spencer has never had an ear infection and never apnea monitar. Our

family, both sides, are mostly allergy free (except maybe hay fever). No

food allergies in our family either. My pregnancy was very rough as well.

----------

> From: SDidinsky@...

> To: eosinophilic gastroenteritis (AT) onelist (DOT) com

> Subject: [eosinophilic gastroenteritis] Re: IgE reactions and other common

denominators

> Date: Sunday, August 09, 1998 9:47 AM

>

>

>

> In a message dated 98-08-09 09:39:07 EDT, you write:

>

> <<

> I bet we will find an allergic tendency in all our families that led to

> this and we just got " lucky " to have this particular allergic phenomenon

> in our kids. They are gene mapping my family and extended family and

> scoping my brothers too (my father unfortunately died years ago after an

> anti-reflux surgery -- before EG was even a known disease). to see if

> there is a mappable link. >>

>

> :

>

> Interesting, I almost ended up with a central line when I was pregnant

due to

> be so sick. Luckily it was avoided. We have a very allergic family, me,

my

> brotehr, both my parents, barry, Jake (my older son - allergic to milk

> protein, asthma and reformed reflux, 4 sets of ear tubes, tonsils and

adenoids

> out). ALso I have reflux (pretty severe buyt controlled usually by

medicine).

> ALl three of my kids had reflux, although only clayton has ended up with

> severe problems. Jake is now healthy and can have some processed milk

products

> but one sip of milk gives him hives and makes him sick. He s also skinny

for

> five about 37 pounds and about 41-42 inches. Cole is the healthest with

no

> known food allergies - and he drinks whole milk, and eats everrything.

>

> All my kids have had problems with numerous ear infection, see Jake above

and

> COle also had tubes at 9onth. Clayton needed them, but with so much going

on

> we held off and since the spring he luckily has been ear infection free.

> Anyone elses kids have recurrent ear infections requiring tubes? How

about

> sleep apnea?

>

> love,

> sharon

>

> ------------------------------------------------------------------------

>

[Guest guest]

I would like to know as well about the suppressed immunity. I have been

more relaxed lately about Spencer being around other kids. I hope this is

not a bad decission. He just is feeling better and can't have him confined

to his room.

----------

>

> To: eosinophilic gastroenteritis (AT) onelist (DOT) com

> Subject: [eosinophilic gastroenteritis] Re: IgE reactions and other common

denominators

> Date: Sunday, August 09, 1998 11:07 AM

>

>

>

>

>

> > Anyone elses kids have recurrent ear infections requiring tubes? How

> about

> > sleep apnea?

> >

> had one right after another only after being on the Prednisone. He

> just got tubes July 27 due to the fact that every antibiotic they gave

him

> made his diarrhea so severe. Does anyone else have problems giving their

> children antibiotics? Does any notice the suppressed immunity on

> Prednisone? picks up everything blowing in the wind.

>

> Dawn

>

>

>

> ------------------------------------------------------------------------

>