IgE levels

[Guest guest]

In a message dated 98-08-08 21:43:49 EDT, you write:

<< bottle fed? all in NICU >>

Clayton was bottle fed.

Not in NICU but should have been, Discharged after 4 days - readmitted 2 days

later when stopped breathing and gagging and chocking. ALso he did not poop

until almost 54 hours old. He was 4.14 at birth but only 34.5 weeks.

he also has wide set very large eyes. FOr some reason I hear this is common in

EG? anyone else. He also has a small head - about 2-5%.

love,

sharon

mommy to Jake (5)-nda, and fraternal 34.5 week twins Cole (3/30/97) - nda

(reformed refluxer) and Clayton(3/30/97) (eosinophil gastroenteritis, mild

developmental delays, food allergies (milk, soy, egg, wheat) Nissen and g-tube

scheduled 8/14/97)

[Guest guest]

I am answering a couple of different messages. 's IGE was over 2,000

while he was on Neocate and daily antihistamine. It is now around 1,800.

I think IGE is also affected by environmental allergens.

He also has suffered from severe excema. Even as a newborn, he would

scratch until he bled. When we first tried blind food challenges at s

Hopkins, after the first couple of days he was covered with excema. They

didn't think, at the time, it was associated with the foods he was trying

(they were a few of the foods that he had negative skin tests to). After

we brought him home and gave him the foods, in one month he was completely

loaded with eos. When we stopped those few foods, his eos cleared up

again. His excema has been so bad that I would have to put vaseline on him

an inch thick, just so he could tolerate the water to bathe him.

We also have seen Dr. and Dr. Sampson while they were at s

Hopkins and have kept in touch over the years.

And was breastfed for 10 months. Before we knew anything about his

allergies, I was always shocked at how responsive he was to the foods I

ate. He had a Nissen fundoplication done that we also have wondered if it

was necessary.

Suzanne

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>

> To: eosinophilic gastroenteritis (AT) onelist (DOT) com

> Subject: [eosinophilic gastroenteritis] IgE levels

> Date: Sunday, August 09, 1998 5:08 AM

>

>

>

> Normal IgE levels are less than 12. AJ's were also in the hundreds.

They

> haven't been run in a while but will be again on Tuesday. Aj is rare

form

> right now. Gotta go.

>

> My dad was asking what the common denominator is between all the kids, if

> any. IgE levels? breast fed? bottle fed? all in NICU? etc.....It

would

> be great if we could come up with some.

>

> Phyllis

> Phyllis-mom to

> Arissa (12/22/95) EG, multiple food allergies, occasional asthma

> Remi 6, Spina Bifida, developmental delays, allergies-nuts, shellfish and

> latex

>

>

> ------------------------------------------------------------------------

>

[Guest guest]

Normal IgE levels are less than 12. AJ's were also in the hundreds. They

haven't been run in a while but will be again on Tuesday. Aj is rare form

right now. Gotta go.

My dad was asking what the common denominator is between all the kids, if

any. IgE levels? breast fed? bottle fed? all in NICU? etc.....It would

be great if we could come up with some.

Phyllis

Phyllis-mom to

Arissa (12/22/95) EG, multiple food allergies, occasional asthma

Remi 6, Spina Bifida, developmental delays, allergies-nuts, shellfish and

latex

[Guest guest]

Looking for similarities.

Its not head size. 3 of my kids have huge heads, 2 are normal sized.

All their eyes are different but no one's are wide set.

the " books " say " our " kids usually have elevated IgE levels and eos in

the GI tract, some with eczema (NONE of mine have much trouble with

this) and allergic history (one of my kids anaphylaxed during skin

testing!!!!) Both my husband and myself have also had anaphylactic

reactions (that is a life-threatining, swelling up and dying type

allergic reaction). Beyond that, I am not aware of any other documented

similariities, but we have a great opportunity here to come up with some

more. How about mom's that are all gong out of their minds with

frustration? Theres a similarity!

SJHarlow@...

http://www.c4isr.com/harlow

[Guest guest]

Spencer has never had eczema only hives and airway closure, asthma and

anaphlaxed reaction (when he got a drop of ice cream on his lip)!!!

I am going crazy myself. I only have one, can't imagine what it would be

like with 5. ahhh.

----------

> From: SJHarlow@...

> To: eosinophilic gastroenteritis (AT) onelist (DOT) com

> Subject: [eosinophilic gastroenteritis] Re: IgE levels

> Date: Sunday, August 09, 1998 9:47 AM

>

> From: SJHarlow@...

>

> Looking for similarities.

>

> Its not head size. 3 of my kids have huge heads, 2 are normal sized.

> All their eyes are different but no one's are wide set.

>

> the " books " say " our " kids usually have elevated IgE levels and eos in

> the GI tract, some with eczema (NONE of mine have much trouble with

> this) and allergic history (one of my kids anaphylaxed during skin

> testing!!!!) Both my husband and myself have also had anaphylactic

> reactions (that is a life-threatining, swelling up and dying type

> allergic reaction). Beyond that, I am not aware of any other documented

> similariities, but we have a great opportunity here to come up with some

> more. How about mom's that are all gong out of their minds with

> frustration? Theres a similarity!

>

> SJHarlow@...

> http://www.c4isr.com/harlow

>

>

> ------------------------------------------------------------------------

>

[Guest guest]

Bryce's IGE level was 217 when first problems started then it continued to

climb up to 278. Below 12 is normal. The weird thing (I prefer to call it

a miracle) is that since he has been on the Flonase and the EE has totally

cleared up the IGE dropped to 151 (not sure that is the exact number..I am

too lazy to go pull all the notes!) No explanation of why this happened.

Of course they want it lower but is seems to be coming down. Regardless,

we are still cheering! I just wish Flonase would have worked for

and her family. Our allergist feels like Bryce just happened to grow out

of this and we only THINK it is the Flonase. Both GI specialists that

Bryce has seen do not agree. I guess we will never know for sure unless it

flares up again after we take him off the Flonase, BUT we are in no hurry

to do that.

Amy (mom to 7yr old girl, 3 yrold son, eosinophilic esophagitis,nissen,

gtube, food allergies)

drawe@...

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> Spencer's IgE level was 526. Normal is in the teen's right? If AJ has it

> all over still she may have disease that affects all areas.

>

> P.s. Anybody else can we compare IgE levels?

>

> ----------

> >

> > To: eosinophilic gastroenteritis (AT) onelist (DOT) com

> > Subject: [eosinophilic gastroenteritis] Re:

> > Date: Saturday, August 08, 1998 7:23 PM

> >

> >

> >

> > -

> >

> > In AJ's case, she was eating practically everything last October and had

> > biopsies. They came back that there were EOS everywhere, through out

the

> > whole tract.

> >

> > From then til 2 weeks ago, she had been on Neocate. In the last 2

weeks,

> > she stopped drinking it because we switched to the powdered version.

Now

> > she will be biopsied on Tuesday.

> >

> > If they are in one area more than another, that area has the disease.

If

> > they are still everywhere, the EOS are triggered by allergens. The

> > doctor's guess is they will be everywhere since at one time or another

> she

> > has tested allergic to 44 foods. She also has a very high IgE level.

> >

> > If they are nowhere, she is cured. LOL.

> >

> > Thanks for the explanations. I do have a better understanding now.

> >

> >

> > Phyllis-mom to

> > Arissa (12/22/95) EG, multiple food allergies, occasional asthma

> > Remi 6, Spina Bifida, developmental delays, allergies-nuts, shellfish

and

> > latex

> >

> >

> > ------------------------------------------------------------------------

> >