Clayton ph probe results - OUCH

July 6, 1998

Hi all:

got a printout of claytosn ph probe here they are - any comments are welcome:

This was a 2 channel 24 hour (actually 22.5 hours) ph probe done while clayton

was on propulsid and zantac,

CHannel 1: # of reflux episodes: 271

Longest episode: 34 minutes

Episodes over 5 minutes : 18

Percentage of time below 4.0 - 31% (358 minutes)

Channel 2: # of reflux episodes: 316

Longest episode: 115 minutes

Episodes over 5 minutes : 13

Percentage of time below 4.0 - 33.2% (416 minutes)

Also they gave a numerical scoring on acid reflux for both channels:

Channel 1 Total Score 100.6 DeMeester normals <14.72

Channel 2 Total Score 125.3 DeMeester normals <14.72

I have not idea what those numbers mean.

Today was not a great day for Clayton - only consumed 10 ounces but he did eat

2 little pieces of turkey and some cheerios. Not enough calories though.

Hope all is well with everyone else. Can anyone who has the Nissen or a

modified version of the surgery please let me know what levels your kids were

at when they had the surgery. THanks.

Love,

Sharon

July 7, 1998

Gee, Sharon, those sound to me like Clayton is in too much pain to eat! That

poor child needs some major relief.

Matt had was in miserable pain before his reflux diagnosis was made when he

was a baby--as I told you his pH probe showed he refluxed 71% of the time,

which the Stanford docs said was one of the worst results they had ever seen.

I sure didn't want to win that contest!

I don't know what you mean by " levels your kid was " --are you referring to the

pH probe results? In any event Matt had a Thal-Nissen done via an abdominal

(laparotomy) approach. When he was smaller they wanted to do it by

thoracotomy (open the chest) but I wanted to wait until he was older so they

could do it by laparotomy instead.

Hugs!

Lynda

Recommended Posts